Post 586 ms is unpredictable so be prepa... - My MSAA Community

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Post 586 ms is unpredictable so be prepared 26 Jan 2019

RoyceNewton profile image
7 Replies

Read the title again. Good, yes it is unpredictable and I am not sure that ever ends. 20+ years, and today I had to sit down because my legs were shaking so much I thought it better to sit down before I feel down. I do not mind falling down, I have had lots of practice so I can do it quite well. I do not think the people around me would have taken it well, so I sat down. Discretion being the better part of valour. I thought twice and thought them asking why I was sitting was better tan them trying to pick me up off the floor. Same goes for my needle prior to my MRI on Friday. It cost me nothing to say I am scared of needles and I may feint, The nurse was prepared and I got a nice needle stick. My whole street knows I am disabled so when they see me drunkenly walking along the street, they do not call the police and say there is some drunk in the street, it is only me.

Relapsing- Remitting ms(RRmS) may be unpredictable, but I can do everything to make it however small predictable for me. I can exert some control over an unpredictable illness. I do not have to be its total helpless victim, always. I can and “YOU” can as well, study yourself. Pay attention and adapt yourself to this illness. It will never ever go away, remember it is incurable, but that does NOT mean that “YOU” are going to have to spend years as a victim Develop a mindset of success, coping adapting to this illness. Roll with the punches. adapt and be prepared for heartache disappointment abandonment. Roll with them and set about overcoming them as soon as “YOU” can.

Your first step should be protective underwear, second Disease Modifying Therapy (DMT). After my moment of wobbliness today I walked around the parking lot, 2500+ steps. I was still wobbly but I did not give in. I never give in, and neither should “YOU” RRms asks a lot and sometimes “YOU” are not sure that “YOU” can go on. Let me assure “YOU” that give yourself a moments rest and YES “YOU”CAN. “YOU” my RRms sister and brother are made of very strong stuff it just takes a little time to find your way.

Royce (the ms writer)

YOU can survive with RRms, have confidence in yourself

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RoyceNewton
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7 Replies
twooldcrows profile image
twooldcrows

i so love your posts for you are honest and i sure hope others take the time to read them for it doesn't hurt to be honest about what is going on with living with it....we all have our ways to cope with it ... i too have to sit when the legs say ha you have done enough just rest for a while get them to stop and get the strength back to go where you had planned on going to...just be safe and yes love life....we will beat this junk in our path of life our journey not someone else's ....take care and be safe and laugh ,scream at times if it helps or just feels better ...smile saying yes i am happy ...

RoyceNewton profile image
RoyceNewton in reply totwooldcrows

I am happy, if I think about it very happy I could not wsah for more in this life, maybe next time, but we shall see.

twooldcrows profile image
twooldcrows in reply toRoyceNewton

are you making a funny for what i had said....ahhahahhahaha....have a wonderful life filled with lot of funnies and jokes and laughs and smiles....

RoyceNewton profile image
RoyceNewton in reply totwooldcrows

no, I actually like my life, the alternative is a little scary nobody will forwarn me about it

twooldcrows profile image
twooldcrows in reply toRoyceNewton

i am sorry i was being an .....you know what i was going to say but the message is there right ..hahahhah....we do need all of the laughter in our lives to help us stay positive ...keep fighting when we get so tired ....love and happiness....

RoyceNewton profile image
RoyceNewton in reply totwooldcrows

no problem at all

carolek572 profile image
carolek572CommunityAmbassador

Good post, Royce :-D

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