Hello, my name is MS: Hi, my name is MS... - My MSAA Community

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Hello, my name is MS

TexasLawman profile image
19 Replies

Hi, my name is MS and I'm an invisible chronic illness. I am now velcroed to you for life. Others around you can't see me or hear me, but YOUR body feels me. I can attack you anywhere and anyhow I please. I can cause severe pain, or, if I'm in a good mood, I can just cause you to ache all over.

Remember when you and Energy ran around together and had fun? I took Energy from you and gave you Exhaustion. Try to have fun now! I also took Good Sleep from you and in its place gave you Brain Fog. I can make you tremble internally, or make you feel cold or hot when everyone else feels normal. Oh yeah, I can make you feel anxious or depressed too. If you have something planned or are looking forward to a great day, I can take that away too. You didn't ask for me. I chose your for various reasons: that virus you had that you never recovered from, or that car accident, or maybe it was the years of abuse and trauma. Well, anyway, I'm here to stay!

I hear you're going to see a doctor who can get rid of me. I'm rolling on the floor laughing! Just try. You will have to go to many, many doctors until you find one who can help you effectively. You will be put on pain pills, sleeping pills, energy pills; told you are suffering from anxiety or depression, given a TENS unit, get massaged, told if you just sleep and exercise properly I will go away; told to think positively, poked, prodded, and MOST OF ALL, not taken as seriously as you feel when you cry to the doctor how dibilitating life is every day.

Your family, friends, and coworkers will all listen to you until they just get tired of hearing about how I make you feel, and that I'm a dibilitating disease. Some of them will say things like "Oh, you are just having a bad day" or "Well, I can't do the things I used to do 20 YEARS ago", not hearing that you said 20 DAYS ago. Some will just start talking behind your back, while you slowly feel that your are losing your dignity trying to make them understand, especially when your are in the middle of a conversation with a "Normal" person and can't remember what you were going to say next!

In closing, (I was hoping that I kept this part a secret..but I guess that you already found out!)....the ONLY place you will get any support and understanding in dealing with me is with Other People With MS

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TexasLawman profile image
TexasLawman
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19 Replies
Doubled51 profile image
Doubled51

So true. Nobody will support you if they don’t live with this crazy disease called Multiple Sclerosis.

Good post TexasLawman

Donnie

Peruzzot profile image
Peruzzot

So true...so true...😧😧😧

jimeka profile image
jimeka

Great writing and so true, every word. You write from your heart, I look forward to reading your first book, Blessings Jimeka 👍

Fancy1959 profile image
Fancy1959

Interesting article with a very unique take on MS. I loved it! Fancy.

jackiesj profile image
jackiesj

I really liked this..after my own sister said I had all this time lied about the spots on my brain, going thru so many things....so many doctors....oh dreams...unseen, not real....your artcle cheered me up.ty

rjoneslaw profile image
rjoneslaw

true

leking1 profile image
leking1

Very well said! Great job!

pamgarner profile image
pamgarner

well said,it did make me sob because this article says bunches of truths as i I shrieked"this says it"

Angelchef80 profile image
Angelchef80

Truth

Kenu profile image
Kenu

Very well said! Great Post 👍 Ken 🐾🐾

rrw5620 profile image
rrw5620

You ace it. Every word. The only people who can really relate to this MADNESS call MS is all of US.

leapsnbounds profile image
leapsnbounds

Goodness, this was perfect. I appreciate you all because we know what each of us are up against every day. Thank you so much for your creativity and your gift TexasLawman.

bxrmom profile image
bxrmom

This was great and so true! Thanks for sharing it with us.

Jessie

mrsmike9 profile image
mrsmike9

Love that you have a photo of Bill the cat at the top! He's a perfect representative of how many people feel with MS!

carolek572 profile image
carolek572CommunityAmbassador

Well said, TexasLawman You can rant, and vent and I will be here to listen, and give you a nod, and a gentle vHug and vSmile because I get it :-D

twooldcrows profile image
twooldcrows

you said it all....

Timeflies5 profile image
Timeflies5

Sadly true...and people who are back talkers only disgrace themselves...”nothing is hidden that will not be made seen”...very creative read...a lot of work goes into writing and editing to turn it into an easy read....thank you for sharing 🦢🌺

Raingrrl profile image
Raingrrl

So true... great piece of writing.

Cutefreckles72 profile image
Cutefreckles72

Oh, so true. MS is a friend that never leaves. Always with you. I had to learn that.

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