Posts - My MSAA Community | HealthUnlocked

My MSAA Community

9,019 members • 20,711 posts

All posts for November 2018

Has the dr told you there is a pill for that?

Is there really a pill ?

rjoneslaw

•6 years ago

6 Replies

Another day in my life enjoying RRms

Yes, that was sarcasm but it really is not so bad. When people say "oh it could be worse it could be xyz disease" They really are right, it is only...

Yes, that was sarcasm but it really is not so bad. When people say "oh it coul...

RoyceNewton

•6 years ago

4 Replies

Computer games

I play a lot of computer games, mostly Match 3 and coloring ones. There is something gratifying about sitting down with my IPad when I am fatigued and playing...

I play a lot of computer games, mostly Match 3 and coloring ones. There is somet...

Mssailor

•6 years ago

8 Replies

Want to take advantage of all our features? Just log in!

Messages from person i cant seem to find on here now???

@Franklin2805...ive had private messages from franklin 2805..i open it and say page no longer exists ..has anyone else had this person...my other messagez...

@Franklin2805...ive had private messages from franklin 2805..i open it and say p...

luvhair

•6 years ago

3 Replies

Thought you guys would like this 👍

Donnie this is for you 🤪😂🤣😊👍🙏🐾. Ken

Kenu

•6 years ago

12 Replies

Help with managing bowel and UTI issues

A toilet seat bidet called Swash 300 made by Brondell , the S300 model can replace a regular toilet seat and helps to keep rectal area clean. Miralax as...

A toilet seat bidet called Swash 300 made by Brondell , the S300 model can repla...

StemSearcher63

•6 years ago

5 Replies

ideas for when walking long distances is a problem

Newly diagnosed. I can walk and get around home/my town ok. My problem is walking long distances, like when you go on vacation, visit my daughter's college...

Newly diagnosed. I can walk and get around home/my town ok. My problem is walk...

peony101

•6 years ago

9 Replies

Trying to stay positive with hand issues

Hi Friends, I. Am new here. I have lived with MS for 39 years and have taken many punches and got back up — so to speak — especially physically. I am...

Hi Friends, I. Am new here. I have lived with MS for 39 years and have taken m...

Lulu521

•6 years ago

20 Replies

DO NOT PANIC

In large red letters, name the book. This week if "YOU" are newly diagnosed (Newbie) with ms, sit back have a long hard cry but DO NOT PANIC, we got you....

In large red letters, name the book. This week if "YOU" are newly diagnosed (Ne...

RoyceNewton

•6 years ago

5 Replies

Have Another Wonderful Week All Precious Family!💐😍😃👍💗❤💙

Gotta Love our Precious Furrbabies One & All!!🐶🐱🐺🐯🐅🐕🐾🐾🐈🐆🐩🍀🌷🌸💐🍁🌺🌻🌵🍄🌾🌴Love Ya'All!💗❤💚💙💛💕💓💖💞💘💌--Jazzy💜🌹

Gotta Love our Precious Furrbabies One & All!!🐶🐱🐺🐯🐅🐕🐾🐾🐈🐆🐩🍀🌷🌸💐🍁🌺...

Jazzihorsecat

•6 years ago

6 Replies

Hello, it has been awhile

I want to give everyone a big hello and hug! I have been absent for a number of reasons. You know my dearest friend Jonnie is dying of cancer, everywhere in...

I want to give everyone a big hello and hug! I have been absent for a number of ...

Amore55

•6 years ago

34 Replies

Thrush

The other day hubby noticed something on my lower lip. I thought maybe it was just chapped (always dry since gamma knife several yrs ago) or maybe irritated at...

The other day hubby noticed something on my lower lip. I thought maybe it was ju...

erash

•6 years ago

14 Replies

Sleepless Foodie 🙄🍝🍳

So it's almost midnight and sleep isn't gonna happen for me anytime soon! What to do? Cook! Making meatloaf and augratin potatoes. In a cooking mood, I guess...

So it's almost midnight and sleep isn't gonna happen for me anytime soon! What t...

Bamfan1442

•6 years ago

7 Replies

Joke of the day

MS showed him who was boss😁😂😩

rjoneslaw

•6 years ago

2 Replies

MS hot flashes and an Intolerance to the cold

How is everyone dealing with hot flashes now that it’s cold out? I just started to experiencing extreme hot flashes, I am sweating as if it was 100 degrees...

How is everyone dealing with hot flashes now that it’s cold out? I just started...

rjoneslaw

•6 years ago

19 Replies

Just to clarify, nobody said anything.

If anybody makes a comment like god bless you or any such. I am never upet or are my feelings hurt. Jusr because I do not fully understand your belief,...

If anybody makes a comment like god bless you or any such. I am never upet or ...

RoyceNewton

•6 years ago

21 Replies

Let us what we have for today.

Good afternoon and warm or coolish greetings to "YOU" all. Yesterday I was reminded of a lesson I learned long ago and should make a greater effort to...

Good afternoon and warm or coolish greetings to "YOU" all. Yesterday I was rem...

RoyceNewton

•6 years ago

3 Replies

Neurofilament light chain as measure of disease progression

This is beginning to emerge out of the research realm. Is anyone getting these blood tests?

This is beginning to emerge out of the research realm. Is anyone getting these ...

erash

•6 years ago

16 Replies

TRYING TO SLEEP

Well here I am trying to sleep but the rain is pouring down out side. This weather is unbelievable it has been raining I think every weekend. I don’t think...

Well here I am trying to sleep but the rain is pouring down out side. This weath...

ssdw1958

•6 years ago

10 Replies

Any wheelchair users here?

I have been in a manual chair 75% of the time for the past year. It’s not so bad. Wheelies are fun, but my shoulders ache all the time.

I have been in a manual chair 75% of the time for the past year. It’s not so bad...

SjWilcox

•6 years ago

7 Replies

My version of "Use it or Lose it" for My MS

You might or not be familiar with the "Use it or Lose it" concept (https://www.collinsdictionary.com/us/submission/7372/Use+it+or+lose+it) I've always believed...

You might or not be familiar with the "Use it or Lose it" concept (https://www.c...

anaishunter

•6 years ago

7 Replies

The purpose of Ocrevus

Ocrevus is not supposed to provide cure for MS or even symptoms. It is the only MS medication that is supposed to slow down disability. When I told my neuro...

Ocrevus is not supposed to provide cure for MS or even symptoms. It is the only...

IFwczs

•6 years ago

32 Replies

Single mom, it's hard 2 keep up.

I'm a single mom for two boys ages 8 and 10. I'm already on SSD. It's so emotionally, physically and financially overwhelming. My credit is bad due to...

I'm a single mom for two boys ages 8 and 10. I'm already on SSD. It's so emoti...

La-Morena11

•6 years ago

25 Replies

Avoiding the flu

There has been discussion about whether or not to get the flu vaccine, but these are tips we can all employ:...

There has been discussion about whether or not to get the flu vaccine, but these...

greaterexp

•6 years ago

11 Replies

Guilt

Often, I plan my day and try to do too much, then feel guilty for not finishing. Yesterday, I planned to go to an exercise class but got sidetracked by some...

Often, I plan my day and try to do too much, then feel guilty for not finishing....

Mssailor

•6 years ago

10 Replies

November Appointments

If you'd like to share, let us know what appointments you're having this month. It's nice to be in the loop about one another.

If you'd like to share, let us know what appointments you're having this month. ...

greaterexp

•6 years ago

61 Replies

New results

Mri of spine clear of lesions...neuro returns next week waitting for further instructions from him...tues I started having a sore throat it got worse wed my...

Mri of spine clear of lesions...neuro returns next week waitting for further ins...

Shaunaice

•6 years ago

7 Replies

SSI Hearing Scheduled!

Wow wasn't expecting that to happen so soon! Got my Notice of Hearing in the mail today. Scheduled for February 1st, 2019 @ 11:15 am! Right here in Grand...

Wow wasn't expecting that to happen so soon! Got my Notice of Hearing in the mai...

Bamfan1442

•6 years ago

25 Replies

Anyone on medicare that is on Ocrevus?

I should be shifting over to Medicare in Dec. but haven't called Genentech yet. I remember them asking me if I had employer insurance or government during the...

I should be shifting over to Medicare in Dec. but haven't called Genentech yet. ...

Raingrrl

•6 years ago

17 Replies

MS and being yourself.Sort of..taking time before and after events...be nice to yourself and say NO sometimes...

I stayed in bed to make a couple hours of makeup and go to a local care center....I fit in because of walkers compassion and all around smiles and loves.Now in...

I stayed in bed to make a couple hours of makeup and go to a local care center.....

jackiesj

•6 years ago

8 Replies

Posts - My MSAA Community | HealthUnlocked

My MSAA Community

All posts for November 2018

Has the dr told you there is a pill for that?

Another day in my life enjoying RRms

Computer games

Messages from person i cant seem to find on here now???

Thought you guys would like this 👍

Help with managing bowel and UTI issues

ideas for when walking long distances is a problem

Trying to stay positive with hand issues

DO NOT PANIC

Have Another Wonderful Week All Precious Family!💐😍😃👍💗❤💙

Hello, it has been awhile

Thrush

Sleepless Foodie 🙄🍝🍳

Joke of the day

MS hot flashes and an Intolerance to the cold

Just to clarify, nobody said anything.

Let us what we have for today.

Neurofilament light chain as measure of disease progression

TRYING TO SLEEP

Any wheelchair users here?

My version of "Use it or Lose it" for My MS

The purpose of Ocrevus

Single mom, it's hard 2 keep up.

Avoiding the flu

Guilt

November Appointments

New results

SSI Hearing Scheduled!

Anyone on medicare that is on Ocrevus?

MS and being yourself.Sort of..taking time before and after events...be nice to yourself and say NO sometimes...

Search posts

Pinned Posts

Latest poll

Have you ever attended a webinar hosted by MSAA?

Topics

Archive