Neurofilament light chain as measure of disease progression

[erash]

This is beginning to emerge out of the research realm. Is anyone getting these blood tests?

[greaterexp]

I’ve been reading about this for a while, and though I had good intentions, I forgot to ask my neurologist about it. Is it readily available, usually covered by insurance, and is it reliable? Those are some of the questions I’d like to ask.

[erash in reply to greaterexp]

I read a blurb this am, cannot remember where, that said it was ready for prime time...

[OKgal]

My question is will this information change my course of treatment? If yes, then let's find out. If no, then why bother.

[erash in reply to OKgal]

Depends...if it means your dmt could or should be changed to something else...

[OKgal in reply to erash]

Exactly what I mean!!! If nothing can be done, I'd rather stay in the dark and live life in the moment. I would understand knowing the information if I was in some type of clinical study trial analyzing this data.

[Doubled51 in reply to erash]

That’s why I’m having these MRIs. I would sure love to have an easier method of doing these things.

Donnie

[carolek572 CommunityAmbassador]

Not sure, but I will ask my neuro when I see her this month.

[Iona60]

Are you still getting OCT scans? I had them for two years with no changes.

[erash in reply to Iona60]

Every 6 mos oct x 2 yrs in that study

Next time is December

Did your oct correlate with mris

[Iona60 in reply to erash]

I forgot that you were in that study. I guess they correlated as I haven't had any MRI changes in 2 years.

[Ali_B62]

Haven't heard anything about this - do you have a link, please?

[erash in reply to Ali_B62]

Will have to search for it

[Ali_B62 in reply to erash]

Thank you!

[erash in reply to Ali_B62]

ncbi.nlm.nih.gov/m/pubmed/2...

[Ali_B62 in reply to erash]

Thank you so much for this

[kris1973]

I asked my neuro this morning @ my appointment. He said the jury is still out in the MS medical community and that his clinic wasn’t ordering the test. But...he did agree to order it for me when they can bc it could be very helpful to show the progression when my lesions have stayed unchanged on MRIs. For now...another MRI. -Kris