Hi Friends,
I. Am new here. I have lived with MS for 39 years and have taken many punches and got back up — so to speak — especially physically. I am wheelchair dependent — actually I rely on others to help me with just about everything as well, including being able to get myself in and out of bed, getting on and off the toilet, showering, dressing — all the basic essentials except for eating. I am thankfully left handed, and that hand and arm are the last of my fully abled limbs. My right arm has contracture for many years , which has caused the arm to stay bent at the elbow, and the fingers on my right hand to curl into a fist. Both hands are always in so much pain! For the past 6 months or so, I feel my good left hand in more pain and contorting into unnormal positions and wanting to also start curling if I don’t conscientiously keep it flat. I have had arthritis and strength testing by my neurologist. He says its the MS and there is nothing that can really be done. Does or has anyone else experienced this? It’s very scary! Any advice please? I am very healthy as far as my weight, diet, blood pressure. Seems every way except MS. How will I survive? I am VERY freightened!
Welcome to our family. I’m sorry about your pain, but you are an inspiration with your great attitude.
Has your doctor not recommended physical therapy to help maintain function, relieve the pain, and prevent further contractures? It may be worth asking for that.
I hope others will have some suggestions for you.