I've been away (from this site) for awhile and, I'll play catch up later. I started taking LDN 2 weeks ago, so far so good. If anyone has taken LDN, please share your results with our community. I will share my results in a few weeks. I just want to give it a little more time. Details will follow...
God Bless, mrshaney
Hey mrshaney,
I have just read a book, written by a member on this forum, named @positiveness, about his experience with taking LDN. The book is called 'Finding Good During Bad Times With Multiple Sclerosis' by James Harmon, and I found it on Amazon.
Keep smiling,
Carole 
I also read his book. I gave it a good review, especially since, I related to it so well. I do much of my reading with Amazon Kindle, that's how I found the book. 😊
mrshaney,
I loved his book because of his candor and courage to share his story. I also gave his book a positive review. And I also read it on my Kindle.
I don't have LDN as part of my treatment. I hope that others who have LDN as part of their treatment can respond to your post with their experiences. Please give us an update when you can, and in the mean time,
Keep smiling,
Carole
I guess I’m considered an old-time LDN user since I’ve been on it for two years. After having a horrible time with Avonex on my second go around with it I started researching more natural and “off label” remedies which led me to LDN. I started at 3mg, went up to 4 or 4.5 (can’t remember) but went back to 3 and that’s where I remain today. I haven’t had any side effects whatsoever. The most important thing to me is that my MRI completely stabilized since being on LDN.
I’m currently reading Ann Sawyer’s book, “The MS Recovery Diet” and trying to implement more of her regimen. I’m also back to meditating every day and doing some form of exercise and stretching.
I’ll be happy to try to answer any questions anyone has. LDN may not be for everyone but it seems to have worked for me.
I'm glad it helps you. Did you ask your Dr. for a prescription?
I never heard of it before.
Leslie
My regular primary care physician refused to prescribe it no matter what I said or evidence I printed out. I had to go online and research then finally found a physician suggested from a member of the LDN Facebook group.
Just curious. Did you ask your neurologist?
Yes, both of them lol! I was in between neuros at the time. My original neuro at Johns Hopkins was the suspected “NO” and more recently my neuro at Penn said I may as well be on nothing. I’m probably getting ready to move on to another neuro because my current one doesn’t specialize in MS and I’d prefer to find someone out there that is a little more open minded (aka not worried about kickbacks and corporate policies.)
Thanks for sharing. I never heard of it before. So I went on the computer to read about it-sounds
good. Keep us posted.
Leslie
A neurologist at Hershey Medical Center prescribed it about 8 years ago or so. I've been on 3 mg the whole time (he did not start me on a lower dose and then increase it). I'm not really sure what it has done for me. My more recent doctor didn't want to rock the boat so he hasn't suggested that I should/could go off of it. I'm not sure he really believes it has an effect but keeps writing refills. I've done fairly well (until the last six month); not sure if Rebif, exercise, regular massages, or LDN has kept me fairly stable.
I tried contacting the Hershey Medical Center’s Neuro department but was told they don’t prescribe it even though it was one of their physicians that originally did extensive research on LDN. It was super-frustrating to say the least. I believe that LDN is good but I believe that it’s better with massage therapy and a good diet. JMHO 💐
PS...I heard that there was a big turnover of neuro’s at Hershey Med Center but not sure if it’s true or not.
it is true that all of their ms neurologists left several months ago. a big scandal that made the news....hershey med sent letters to all their ms patients that said they all needed to go out and find new doctors (hershey realized their mistake and sent a follow up letter that said hershey would help them find new doctors). we don't have many neurologists in central PA who specialize in ms.... also, i agree about the good diet (something i need to enhance a bit more)
I have been on LDN for about 6 months now. I love it! My MS hasn't been this stable in years. My spasticity is way less. I also have less dizziness, fewer headaches, and less fatigue. Now don't get me wrong these issues have not gone totally away but they are better than they have been in the last 10 years. I have had no negative side effects either. It's a keeper for me.
Vaccine dose #2 done: next Ocrevus infusion in 4 weeks
Part 2 of 1st dose of Ocrevus
1st half dose of Ocrevus yesterday.
Low white blood count
