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My MSAA Community

9,019 members • 20,711 posts

All posts for May 2017

Genentech Reports PML Case with Ocrevus

This happened in a JC virus-positive patient who had stopped taking Tysabri in February after being on it for three years and switched to Ocrevus with a first...

This happened in a JC virus-positive patient who had stopped taking Tysabri in F...

•7 years ago

Aubagio

I'm back at my neuro tomorrow (very unexpected). Looks like I will be trying Aubagio. Anyone out there on it with good experiences with it? Very much...

I'm back at my neuro tomorrow (very unexpected). Looks like I will be trying Aub...

•7 years ago

Canadian Crutches

I saw a lady tooling along the beach the last time we were there with her Canadian crutches. We are heading there in a few weeks and am seriously thinking...

I saw a lady tooling along the beach the last time we were there with her Canadi...

•7 years ago

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GOD IS GOOD ALL THE TIME

Hello everyone. pray all is well with everyone. even when we think its bad,just take a moment and think about how much worse it could be. I thank God for the...

Hello everyone. pray all is well with everyone. even when we think its bad,just ...

•7 years ago

Pelegridy opinions.

Hi. I'm new to the site. I'm 65 years old and was diagnosed with ms the first week of April after an episode of losing use of my left arm and weakness and...

Hi. I'm new to the site. I'm 65 years old and was diagnosed with ms the first we...

•7 years ago

This study sounds interesting

I just saw some info on this new study for MS. It came out in Multiple Sclerosis News Today. I have requested more information because this sounds like...

I just saw some info on this new study for MS. It came out in Multiple Sclerosi...

•7 years ago

B12 has any one been helped by it?

There is a retired doctor in Uk called Dr chandy who has campaigned for a better understanding of B12 deficiency. I spoke to him a couple of weeks ago,...

There is a retired doctor in Uk called Dr chandy who has campaigned for a better...

•7 years ago

I'M SO EXCITED,I JUST CAN'T HIDE IT!😁😆😊😄😃😀.....

Guess what, today I got a call from Genteck, the drug manufacturer of Ocrevus. I start with Medicare on June 1st, eight days away, and they decided to wait...

Guess what, today I got a call from Genteck, the drug manufacturer of Ocrevus. ...

•7 years ago

Our U.K. Family

I am so sad to see on the news what must be another terrorist attack in your home country. You are in my prayers. You are our British family and we love you....

I am so sad to see on the news what must be another terrorist attack in your hom...

•7 years ago

MRI contrast

You may be aware that there is a supposed risk to accumulation of the gadolinium contrast in the brain with repeat MRIs This study reports no significant...

You may be aware that there is a supposed risk to accumulation of the gadolinium...

•7 years ago

Symptoms but no MRI change?

Good Morning! My name is Rhonda. I Am 50 years old . I have RRMS. This is my first time to post. I appreciate this forum and those with similar circumstances...

Good Morning! My name is Rhonda. I Am 50 years old . I have RRMS. This is my fi...

•7 years ago

My Symptoms Are Back

Not only are they back, I still don't have any medicine. I just want to cry and scream at the top of my lungs but that won't help, it'll probably even make my...

Not only are they back, I still don't have any medicine. I just want to cry and...

•7 years ago

Here's one for you Gerri

A flower for your book GerriG ! Don't know what it is but it's in my garden.

A flower for your book GerriG ! Don't know what it is but it's in my garden.

•7 years ago

Progress!

I'm making progress my friends!!

I'm making progress my friends!!

•7 years ago

Vision

I wonder, how many others have the issue of vertigo from simply reading? Just when i think i can sit for a moment without feeling the spins, comes right back...

I wonder, how many others have the issue of vertigo from simply reading? Just w...

•7 years ago

My mum had polio

My mum will want to join the group if it's Polio related, is there a group?

My mum will want to join the group if it's Polio related, is there a group?

•7 years ago

Ankles/foot drop

Hi friends! I'm curious to hear from anyone who has developed foot drop (or anyone with an opinion). I have been having some pretty severe ankle pain when i...

Hi friends! I'm curious to hear from anyone who has developed foot drop (or anyo...

•7 years ago

My Smile for the day!

You said that you wanted a picture of a smile, jimeka, here it is.

You said that you wanted a picture of a smile, jimeka, here it is.

•7 years ago

Surgery

Has anyone had surgery with MS? I am having a procedure in June and i am afraid the stress on my body will cause a relapse.

Has anyone had surgery with MS? I am having a procedure in June and i am afraid...

•7 years ago

Hopkins the Owl (name courtesy of @dianekjs son😊)

Well Hopkins is hopefully safe in his burrow with his momma and siblings. I was very worried because he was still on the same branch, same shrub last evening...

Well Hopkins is hopefully safe in his burrow with his momma and siblings. I was ...

•7 years ago

Anyone else experience this?

It's brutally hot in Florida right now and I relish the relief of my pool to be able to stay active but (and even though the water is not cold) my fingers...

It's brutally hot in Florida right now and I relish the relief of my pool to be ...

•7 years ago

Found this lil guy this AM

He (baby screech owl) was able to climb into a shrub and we were told he'd call for his momma when he got hungry. In the mean time, keeping our eye out for...

He (baby screech owl) was able to climb into a shrub and we were told he'd call ...

•7 years ago

Gilenya update

Hey all. !! Thank you for your prayers and thoughts. I have FINALLY been accepted through Good Days for help paying my Gilenya. I only pay $20. instead of a...

Hey all. !! Thank you for your prayers and thoughts. I have FINALLY been accep...

•7 years ago

Today's first MS Neuro visit

Well, it could have been worse? Yes, clear signs of MS, with symptoms dating back as far as 15 yrs ago. Some blind spots in my left eye. Also, some...

Well, it could have been worse? Yes, clear signs of MS, with symptoms dating ba...

•7 years ago

When You're Hungry But Nothing Tastes Good :-(

Ok sorry, it's me again just need to see if anyone here has experienced this yet. I am freakin starving but nothing that sounds good actually is. I've had...

Ok sorry, it's me again just need to see if anyone here has experienced this yet...

•7 years ago

Heat?

It seems that just about everyone with MS struggles with heat - except me, that is. Heat doesn't really seem to phase me more than it did pre-MS. I love hot...

It seems that just about everyone with MS struggles with heat - except me, that ...

•7 years ago

Update

Hello everyone! I've been off the grid here lately due to well, let's just say too much paper and pen pushing! I finally finished my SSI work history and...

Hello everyone! I've been off the grid here lately due to well, let's just say ...

•7 years ago

Remember weeding?

Sorry for sideways photo. This site and samsung don't get along. It is the section of my property that desperately needs to be weeded. It is driving me crazy...

Sorry for sideways photo. This site and samsung don't get along. It is the secti...

•7 years ago

Falling

I know so many have had some terrible falls (aren't they ALL terrible?), and I wondered if balance problems were always the cause or if any were from a muscle...

I know so many have had some terrible falls (aren't they ALL terrible?), and I w...

•7 years ago

My driving skill instructions 😉

This is me! 😊

This is me! 😊

•7 years ago

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