Guess what, today I got a call from Genteck, the drug manufacturer of Ocrevus. I start with Medicare on June 1st, eight days away, and they decided to wait until after the first to contact Medicare to see what my drug benefits are. They hope to have me on Ocrevus by mid-june! I understand many of you have misgivings about the new therapy but I am willing to try anything to stop the continuing progression of my MS symptoms. I'm going at it with a very positive attitude because we all know that a positive attitude can do so much to help the body heal and medications to work its best. So here's to my starting Ocrevus. I'll make sure and let you know more information, when I get ready to start and how I feel after the first dose. I feel like a kid that's been let loose in a candy shop! Keep smiling with me and as I have always said together we are stronger and together we can create miracles. Let's hope this Ocrevus is the miracle that so many of us have been waiting to find.ππππππ€
I'M SO EXCITED,I JUST CAN'T HIDE IT!ππ... - My MSAA Community
I'M SO EXCITED,I JUST CAN'T HIDE IT!ππππππ.....
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I'm dancing with you, Fancy1959 (what a sight that would be π―) as your song plays over and over again in my head. πI'm happy for you and can't wait to hear how you do on the new drug. π
I am happy π for you in many ways I hope this medicine is all paid for and it works for you. Let us know how everything works for you. Celebrate π ππππ
I'm excited for you!!
Please be assured that we are behind you but Fancy please rest up and make sure that you are as well as you can be before the first infusion. Be good to yourself, blessings Jimeka π π¦ π πͺ π
Fancy1959 yay! On the good news.
I think Ocrevus sounds like a good drug. Perhaps any negativity is due to the expectations that it was advertised as THE wonder drug and now we see that like any other drug, you just have to be cautious.
I def. agree about the positive outlook...self-fulfilling prophecies and all that.
I'm so happy for you !! Wooo Hoooo!!!ππππππ
Thrilled for you!!
ππππβ€οΈπππΎπππ¦πΌπΈπΊππ
Fancy1959 , You go girl! Sending good vibes your way!
Hurrah!
Fancy1959 Hurray for you! I am in hopes to get a similar call soon, then we can compare our reactions! I am wondering how things are going for Allen5280 , hope he is doing OK after his second infusion.
Fancy1959 Many smiles coming your way!
So excited with you Dear lady. Keep up that perfect attitude! Can't wait to see how it goes. πππ
Fancy1959
Fancy1959
Someone has to be brave enough to try it! Hope it works wonders for you.
Fancy1959 I am so very happy for you! I pray it is just what you need to fight this monster. God bless you, dear friend. Love, Kelly
I wanted to thank everyone in this chat room set good thoughts and well-wishes my way. The response was overwhelming and I'm privileged to be part of such a wonderful group of people. It is said that adversity brings out the best in people and if that is so we are bonded together by the adversity we find ourselves in as we fight this beast that has attacked! I will take everyone's ideas in attempt to follow the guidelines that you so worthily put out. About making sure I go rested and a strong as I can into my first infusion. That is a great idea I will do my best to follow it. Thanks again. I feel blessed to be part of this extended family and friends with many within the family.πππ
Fancy1959
I'm so glad you got a call from Gentech about Ocrevus and will be starting Medicare on June 1st!
Hope all goes well when you receive the Ocrevus infusions and it helps you too!
Please share your outcome!
Love, prayers and HUGS for you!
Jennie
Wishing a good response for you and all the others taking this step.
Fancy1959 Wishing the best for you. Hope this treatment works for you.
Fancy1959 comgratulations! Do not forget our lunch date'
π yippee hip hip hooray.... also when I talked to Genteck they checked how much would be covered. Since I was on copaxone I had met the high medicare deductibles already (which were covered by a grant from healthwell foundation) the rep for Genteck told me they would also help find funding if necessary. If it comes back as to much there are outlets availabe, it just takes a little time. I had already been through it with Copaxone so I was OK for this year. Next year I will have to go t hough the process again.