Anyone else experience this?: It's... - My MSAA Community

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Anyone else experience this?

erash profile image
erash
β€’13 Replies

It's brutally hot in Florida right now and I relish the relief of my pool to be able to stay active but (and even though the water is not cold) my fingers begin to ache within a few minutes after getting in. Usually I try to ignore it but yesterday the aching was going more proximal (sorry away from my nail beds) and causing my fingers to get a bit contracted (spasms)

I have raynauds but the pool really isn't cold.

any thoughts or others with this experience?

🏊🏼🏊🏼🏊🏼

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erash profile image
erash
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13 Replies
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Jesmcd2 profile image
Jesmcd2CommunityAmbassador

I have no idea on how to help. I know my fingers ache all the time but l just blow it off.

I do say pool party at your house though!!πŸ˜…β˜Ί. I hope it goes away soon! What about a cortisone cream?

J 🌠

erash profile image
erashβ€’ in reply toJesmcd2

Jesmcd2 pool party! Great idea πŸ‘

greaterexp profile image
greaterexp

Sometimes living with MS is like living with a controlling spouse. We feel like we are walking on eggshells, always trying to find the "right" thing to do. If only we do the right thing, he/she will be content and leave us alone. (BTW, I have a marvelous husband!)

I think our neurological systems are so complex, and our bodies have no completely independent parts, so it is our challenge to find things that help one situation and not hurt another.

Is it only the temperature of the water, or could it be the resistance of the weight of the water as you move about? Could you wear a sort of mitten with hand warmers while you are in the water if temperature is a factor? Sounds silly, but if it helps, who cares? I wish I had an answer for you.

erash profile image
erashβ€’ in reply togreaterexp

greaterexp i was thinking a swim glove might be helpful. I will have to check the Internet. Likely divers use something like that.

Hmmm. MS = abusive spouse. I want a divorce! πŸ˜‰

Raingrrl profile image
Raingrrlβ€’ in reply toerash

greaterexp ...love the analogy...living with MS IS like living with an abuser and walking on eggshells all the time!

rlh1974 profile image
rlh1974β€’ in reply toerash

Me TOOOOOOOO! She is awful!

Sukie427 profile image
Sukie427

When I lived in South Florida our swimming pool wasn't heated so I used to do my aquatherapy at the nearby hospital's rehab center. The only thing that I can tell you is that the water can't be too hot or too cold or you will become overheated or too chilled and the MS symptoms will start up. One time the pool was too warm at the rehab center and I ended up having severe symptoms and they took me by ambulance from the hospital rehab to the ER. They gave me Ativan to control the tremors and some pain medication for the horrific pain in my muscles caused by the tremors and I ended up staying overnight. So those of you who do aquatherapy or swim, watch the water temp! And stay out of hot tubs or spas unless YOU can control the termperature!

jennie62 profile image
jennie62β€’ in reply toSukie427

I've been told by two different therapist: the occupational therapist (who I met with once) and my physical therapist both recommend I do aqua therapy, but having read what happened to Sukie427 , and erash ...eh, I dunno. Yeah, there is a place right around the corner, but I don't know if it's worth it.

I think the swim glove is a great idea! Let us know if you look them up and try one @erash!

Jennie

greaterexp profile image
greaterexp

I'm thinking about taking a water aerobics class that someone recommended to me. It's in an indoor pool, so I think the water stays at a relatively even temperature. I can't swim, but even I may be able to handle it. I'm glad you brought up the temperature thing, erash , since I hadn't thought about that part of it. Getting chilled causes muscle spasms and pain, so maybe I can find a wetsuit or a turn-of-the-last-century full-body bathing suit. At my age, the more that's covered, the better, anyway!

erash profile image
erashβ€’ in reply togreaterexp

greaterexp theres little that's worse than bathing suit shopping. I'm a running shorts, running bra swimmer.

And, thanks! For the suggestion. I located divers neoprene gloves and socks on Amazon--the price isn't bad.

You might start a new trend wearing a wet suit to water aerobics 😊

I paddled with my legs on a pool noodle, kept my hands above water and did ok in the pool today. But I still might get those diving booties and gloves. Then again, the pool will likely feel like a bathtub soon given the unrelenting temperature.

rlh1974 profile image
rlh1974β€’ in reply togreaterexp

I can't find a walk in pool anywhere around here! I would love to get in the water and take the weight off for a while!

goatgal profile image
goatgal

erash My guess is that this is perhaps related to an abrupt change in temperature. In summer, my Raynaud's can be triggered by getting something from the refrigerator, opening a frozen food package, going from a scorching parking lot and entering an air conditioned store. My wiring is so faulty I should probably see an electrician instead of a neurologist. You are probably on the right track with the swim glove idea. I hope it helps!

Shona68 profile image
Shona68

Hi Erash I was on holiday in turkey with my daughters and granddaughter when I came out swimming pool my fingers and toes were white ' it's always just been 1/2 fingers that go like this so it's all fairly new to me ' my thinking was the cool pool was just a shock to the system,next time I'm at doctors I'm gonna mention it ' maybe you should too x

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