Posts - My MSAA Community | HealthUnlocked

My MSAA Community

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All posts for March 2017

Backyard Wildlife :Downy Woodpecker

Hi everyone! I've been having to use my limited visual powers to do things this week that were much less fun than this chat room. Hopefully, I'll be able to...

Hi everyone! I've been having to use my limited visual powers to do things this ...

Iona60

•7 years ago

23 Replies

Acupoints Massage Therapy For PPMS

For years I tried to reach out for PPMS patients like me. Since 1995, I was diagnosed with Fibromyalgia and IBS. In year 2000, I was confirmed with Spinal...

For years I tried to reach out for PPMS patients like me. Since 1995, I was diag...

yuehmei56

•7 years ago

9 Replies

Report from the work trenches

Hello all! After some paperwork mishaps, I was able to work 2.5 days this week. It was so good to be back with my colleagues and the students. Within 10...

Hello all! After some paperwork mishaps, I was able to work 2.5 days this week. ...

latellama

•7 years ago

13 Replies

Want to take advantage of all our features? Just log in!

I'll be back in full swing soon!

To everyone in the awesome MSAA chat room. It's Fancy1959 and there is ony 1 week from tomorrow left until the silent auction I am putting together for the...

To everyone in the awesome MSAA chat room. It's Fancy1959 and there is ony 1 wee...

Fancy1959

•7 years ago

9 Replies

Amitiza vs Linzess

Is anyone on Linzess? I have been taking amitiza (24mcg twice daily) for over a year now. I have bowel issues due to MS (neurogenic bowels and motility...

Is anyone on Linzess? I have been taking amitiza (24mcg twice daily) for over a ...

WAshingtongirl

•7 years ago

23 Replies

Solumedrol

I'm on to second of five Solumedrol iv treatment. I'm a paraplegic fighting to save my upper body. Right side ok but left is numb, tingling and plain dumb...

I'm on to second of five Solumedrol iv treatment. I'm a paraplegic fighting to s...

karenmbloom

•7 years ago

18 Replies

MS specialist in San Francisco area?

A friend of mine just contacted me to ask about an MS specialist in the bay area. His sister-in-law is suffering and trying to get diagnosed and treated up...

A friend of mine just contacted me to ask about an MS specialist in the bay are...

littleshelley

•7 years ago

6 Replies

So frustrated

As most of you know, I had a wicked relapse from August to January. Well, last week I was unable to get out of bed, hubby had to come home to get me to the...

As most of you know, I had a wicked relapse from August to January. Well, last w...

Amore55

•7 years ago

31 Replies

Oh my brain

Tonight I told my son we were having hot dogs because I was tired of "rewinds!" Ha! That's pretty close to leftovers!

Tonight I told my son we were having hot dogs because I was tired of "rewinds!" ...

StacyHayward

•7 years ago

21 Replies

To our friends in the UK

Really saddened by the news of the terror attack in London. My thoughts and prayers are with you all and your fellow countrymen. 💞

Really saddened by the news of the terror attack in London. My thoughts and pray...

WAshingtongirl

•7 years ago

9 Replies

March Madness

I think this is named in honor of MS! I swear it's my worst month every year. Something about spring takes the spring out of my step! Anyone else regularly...

I think this is named in honor of MS! I swear it's my worst month every year. So...

StacyHayward

•7 years ago

13 Replies

Lesions

I was diagnosed Feb 2010. At that time I had 11 lesions on my brain, none on my spine. I was told that I had SPMS by my neurologist. I now have over 50 lesions...

I was diagnosed Feb 2010. At that time I had 11 lesions on my brain, none on my ...

Peacey

•7 years ago

11 Replies

Nerve conduction and optical tests

I survived all the testing yesterday. Quite an experience. The optical tests were my eyes focusing on a colored dot while all the surrounding space twirled and...

I survived all the testing yesterday. Quite an experience. The optical tests wer...

CalfeeChick

CommunityAmbassador•7 years ago

22 Replies

Distractions

I tell my wife multitasking is IMPOSSIBLE. If the phone rings and someone else is in the room, I have to leave. At one of our routine stops, there is NO...

I tell my wife multitasking is IMPOSSIBLE. If the phone rings and someone else i...

Iggyvair

•7 years ago

7 Replies

Update on antidepressant medication change :)

Saw my family doctor last week to have my antidepressant changed from Pristique/Abilify combo so that I could go back to getting some sleep and not having...

Saw my family doctor last week to have my antidepressant changed from Pristique/...

bxrmom

•7 years ago

7 Replies

Trigeminal neuralgia

Dr Sekula did a percutaneous glycerol rhizotomy. Says it is specialized and does not work for everyone

Dr Sekula did a percutaneous glycerol rhizotomy. Says it is specialized and does...

Iggyvair

•7 years ago

3 Replies

Como vivir con la esclerosis múltiple y que inventen la cura para dicha enfermedad

Quiero hacer nuevas amistades y compartir experiencias

aliceam8334

•7 years ago

23 Replies

Sound like anyone you know? 😂

Wondering what percentage of us with MS have problems with distractions and concentration... I do.

Wondering what percentage of us with MS have problems with distractions and conc...

WAshingtongirl

•7 years ago

28 Replies

Trigeminal neuralgia

My trigeminal neuralgia was cured by Dr Raymond Sekula UPMC Pittsburgh Pennsylvania. JOY 😂

My trigeminal neuralgia was cured by Dr Raymond Sekula UPMC Pittsburgh Pennsylv...

Iggyvair

•7 years ago

11 Replies

Can one work oneself into a relapse?

That's a question I'd love to have the answer to! I've read conflicting reports about this. Some folks report a true relapse after very stressful or physically...

That's a question I'd love to have the answer to! I've read conflicting reports ...

greaterexp

•7 years ago

40 Replies

Back Spasms

Had MS since 2014 and my symptoms are spasms in the back on both side and trigeminal neurolog (tn). Does any one have the back spasms? Right side approx 80%...

Had MS since 2014 and my symptoms are spasms in the back on both side and trigem...

Booda

•7 years ago

43 Replies

Happy Spring!

Saw this and couldn't help but laugh. 😂 My spring bulbs are pushing up through the soil all over the place. Hoping for color soon! 🌷

Saw this and couldn't help but laugh. 😂 My spring bulbs are pushing up through ...

WAshingtongirl

•7 years ago

15 Replies

DENIED BENEFITS

I RECENTLY BROKE MY LEG IN MY HOME WHEN BOTHLEGS COLLAPSE DUEING ASTAND TO TOILET. I SPENT 3 MONTHS IN A SKILLED NURSING FACILITY IN A NON WEIGHT BEARING...

I RECENTLY BROKE MY LEG IN MY HOME WHEN BOTHLEGS COLLAPSE DUEING ASTAND TO TOILE...

traveljaff

•7 years ago

12 Replies

MS support group

Has anyone gone or joined a MS support group? What did you think of it? Was it helpful?

Has anyone gone or joined a MS support group? What did you think of it? Was i...

rjoneslaw

•7 years ago

15 Replies

Increasing heat intolerance

Anyone notice their heat intolerance getting worse? We are just getting our first days of spring like weather and 30 minutes outside and I'm totally flushed...

Anyone notice their heat intolerance getting worse? We are just getting our firs...

StacyHayward

•7 years ago

20 Replies

Faking it

I recently realized how confusing it must be to those around me who don't understand MS. I'm super open about it but few people take time to understand what...

I recently realized how confusing it must be to those around me who don't unders...

StacyHayward

•7 years ago

15 Replies

Reminds Me of Jimeka, Erash and Amore54

Sorry if I left any others out--be sure to let us know if you, too, are cyclers like jimeka, erash and Amore55. CalfeeChick, I hope to hear that you are riding...

Sorry if I left any others out--be sure to let us know if you, too, are cyclers ...

WAshingtongirl

•7 years ago

32 Replies

Tougher one

This one took me five days but I had to read the new Fablehaven book too. Puzzles, books, flowers and crosswords keep me going. I don't know why it's...

This one took me five days but I had to read the new Fablehaven book too. Puzzl...

StacyHayward

•7 years ago

16 Replies

WE ARE NOT ALONE!

Is anyone on Lemtrada? I did not do well on Tysabri and have been without treatment since Nov. 16. I attended a health session on Lemtrada on Monday, March 13...

Is anyone on Lemtrada? I did not do well on Tysabri and have been without treatm...

lexsarset

•7 years ago

16 Replies

Broken shoulder & Returning to work!

10 days ago, i fell and broke my shoulder. This is the first ive felt up to typing. Fall was not MS related...instead there was some loose flooring thst...

10 days ago, i fell and broke my shoulder. This is the first ive felt up to typ...

latellama

•7 years ago

7 Replies

Posts - My MSAA Community | HealthUnlocked

My MSAA Community

All posts for March 2017

Backyard Wildlife :Downy Woodpecker

Acupoints Massage Therapy For PPMS

Report from the work trenches

I'll be back in full swing soon!

Amitiza vs Linzess

Solumedrol

MS specialist in San Francisco area?

So frustrated

Oh my brain

To our friends in the UK

March Madness

Lesions

Nerve conduction and optical tests

Distractions

Update on antidepressant medication change :)

Trigeminal neuralgia

Como vivir con la esclerosis múltiple y que inventen la cura para dicha enfermedad

Sound like anyone you know? 😂

Trigeminal neuralgia

Can one work oneself into a relapse?

Back Spasms

Happy Spring!

DENIED BENEFITS

MS support group

Increasing heat intolerance

Faking it

Reminds Me of Jimeka, Erash and Amore54

Tougher one

WE ARE NOT ALONE!

Broken shoulder & Returning to work!

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