Posts - My MSAA Community | HealthUnlocked

My MSAA Community

9,019 members • 20,711 posts

All posts for January 2017

Introducing me

I was diagnosed with RRMS in 1979. I am 65 and a retired teacher living in Michigan. Now my Dr. thinks I am in the second phase of this disease and has opted...

I was diagnosed with RRMS in 1979. I am 65 and a retired teacher living in Mich...

DebbyLou

•7 years ago

15 Replies

Air travel and MS

Just curious, so many things that I don't expect to inflame my MS seem to aggravate it, I'm wonder in long planes rides has bothered anyone's MS symptoms? I'm...

Just curious, so many things that I don't expect to inflame my MS seem to aggrav...

CalfeeChick

CommunityAmbassador•7 years ago

14 Replies

Auto-injector, Copaxone, wasting a syringe

Over the past 16+ years my wife, a PWMS, has benefited from Copaxone. For 15 years, every day (20 ml), since early 2016, three a week (40ml). In all those...

Over the past 16+ years my wife, a PWMS, has benefited from Copaxone. For 15 yea...

BUZZ1397

•7 years ago

15 Replies

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Hello

48 years old, coming up on 10 years of having MS. My neurologist doesn't classify what type. Currently living alone in my new condo, in a power chair 90% of...

48 years old, coming up on 10 years of having MS. My neurologist doesn't classi...

cnichols

•7 years ago

16 Replies

Hoping to Build Strength & Stamina

I spend most of my time in the wheelchair. Yes, I can walk a little with the aid of a walker. My longest walk lately was about 30 yards with the walker and...

I spend most of my time in the wheelchair. Yes, I can walk a little with the aid...

tellnhelen

•7 years ago

11 Replies

Okay, another post...

If you are interested in our exciting get together, please let me know what city and state you live in so that we can choose as central a location as possible....

If you are interested in our exciting get together, please let me know what city...

Amore55

•7 years ago

32 Replies

Get together

Okay, I have gathered some info. Just very preliminary facts. I looked up the five least expensive airports to fly round trip to. As follows with average round...

Okay, I have gathered some info. Just very preliminary facts. I looked up the fi...

Amore55

•7 years ago

11 Replies

Potential get together

I'm getting some positive feedback about a big get together. If you would be interested in something like this, let me know. Also, ideas on a possible city in...

I'm getting some positive feedback about a big get together. If you would be int...

Amore55

•7 years ago

9 Replies

Johnny jumper exercise for disabilities

For jimeka and WAshingtongirl once she gets the crane 😂

erash

•7 years ago

5 Replies

Clinical Trials for multiple sclerosis - News Update

In case anyone hasn't heard yet, we're excited to announce that MSAA has partnered with a company called Antidote to provide easy access to important MS...

In case anyone hasn't heard yet, we're excited to announce that MSAA has partner...

johnMSAA

Partner•7 years ago

3 Replies

New PPMS member

In the Orlando area. Male, 62, have PPMS diagnosed in 06. I use nutrition, high dose biotin, recently restarted LDN and looking forward to OCRELIZUMAB coming...

In the Orlando area. Male, 62, have PPMS diagnosed in 06. I use nutrition, high ...

Richardgiam

•7 years ago

8 Replies

Wonderful lunch, wish you were all there

Bygonelines (Jacqui) and I live in Salt Lake City. We have been talking on the phone countless times and yesterday we finally met! We went to lunch. She is...

Bygonelines (Jacqui) and I live in Salt Lake City. We have been talking on the p...

Amore55

•7 years ago

5 Replies

Hi everyone...

I'm Pat....im 51y and was diagnosed with MS in Nov. 2013. Been rough, but I keep going. I am a proud mother of 3 and they are what keeps me going. I would...

I'm Pat....im 51y and was diagnosed with MS in Nov. 2013. Been rough, but I kee...

Trish1002

•7 years ago

8 Replies

magnetic therapy

Been checking in every once in awhile , but tomorrow I'm going try a magnetic therapy session , has any one tried this ? Go spend an hour in an magnesphere...

Been checking in every once in awhile , but tomorrow I'm going try a magnetic th...

dhammes

•7 years ago

10 Replies

Results of MRI

I got my MRI results but have not discussed w my neuro yet. It showed lesions in the left subcortical frontal lobe and in the pons. I knew about the ones in...

I got my MRI results but have not discussed w my neuro yet. It showed lesions in...

Karen-x

•7 years ago

3 Replies

Am stiffness

The past couple of wks I've been walking up very stiff. This is now effecting my kids and getting to school on time. As I wobble the kids to school my brain...

The past couple of wks I've been walking up very stiff. This is now effecting m...

Stepinup

•7 years ago

2 Replies

Neuroplasticity

As the name suggest, neuroplasticity explores the extent to which our neurological systems may be kinetic in their form, function and/or development....

As the name suggest, neuroplasticity explores the extent to which our neurologic...

GasLight

•7 years ago

13 Replies

Morning Has Broken

I promise not to sing the song. 😉 This is for jimeka. My favorite time of day is just before sunrise. It's quiet, unhurried, and the view from our window...

I promise not to sing the song. 😉 This is for jimeka. My favorite time of day ...

WAshingtongirl

•7 years ago

22 Replies

Beauty in Creation

My husband took this picture the other night when the moon was full at sunset. Just beautiful...

My husband took this picture the other night when the moon was full at sunset. J...

WAshingtongirl

•7 years ago

16 Replies

Backyard Otters

We live on a little lake in FL that connects to the river. Many years when the river gets cold, the otters find their way into our lake. Saw one yesterday....

We live on a little lake in FL that connects to the river. Many years when the r...

Iona60

•7 years ago

20 Replies

How are you?

How is everyone today? I hope finding something to enjoy or feel better in anyway! I've just send an email to the UCSF MS Clinic in hopes that they will start...

How is everyone today? I hope finding something to enjoy or feel better in anywa...

CalfeeChick

CommunityAmbassador•7 years ago

11 Replies

Falls and dreams

Recalled from childhood, a dream a nightmare, a bear, towering enveloping me in my crib forearms crushing my face to his furred chest and the struggle to find...

Recalled from childhood, a dream a nightmare, a bear, towering enveloping me in ...

goatgal

•7 years ago

5 Replies

Spasticity

I wake up really stiff. I'm in PT too so I asked my therapist. Suggested a few things that really didn't help. So I started searching books. What conclusion...

I wake up really stiff. I'm in PT too so I asked my therapist. Suggested a few t...

Dpjinx

•7 years ago

32 Replies

Advice needed on mobility

Hi All, this spring I will two teen boys doing various college tours. I will not, let me repeat will NOT miss this special time w them. However, many tours are...

Hi All, this spring I will two teen boys doing various college tours. I will not...

Karen-x

•7 years ago

16 Replies

MS Hug?

Hi Y'all! I hope everyone is having a good Saturday night. For the last couple weeks I have had what I think could be the hug, but I'm not sure. For the...

Hi Y'all! I hope everyone is having a good Saturday night. For the last couple...

joys-an21

•7 years ago

17 Replies

Baby Stuff

This week's project. Granny square blankie and booties. It keeps me calm to crochet, our area of California has been under a flood watch all week from heavy...

This week's project. Granny square blankie and booties. It keeps me calm to croc...

CalfeeChick

CommunityAmbassador•7 years ago

23 Replies

May help others

Something that helps me through out the day is my symptom checker. I was getting tired of writing everything down over and over again. Especially when I get...

Something that helps me through out the day is my symptom checker. I was gettin...

Stepinup

•7 years ago

9 Replies

Before Diagnosis

Long ago before I was diagnosed, I knew there was something wrong. I thought it was me, clumsy. I fell up stairways, never down. Sometimes a knee or an ankle...

Long ago before I was diagnosed, I knew there was something wrong. I thought it ...

goatgal

•7 years ago

17 Replies

Waking with numb arms or legs?

Hi! I have been experiencing a new symptom, I have adjusted my bed every which way from Sunday. Anyway I wake up, (if I have slept) and both my arms or legs....

Hi! I have been experiencing a new symptom, I have adjusted my bed every which w...

Hidden

•7 years ago

19 Replies

Question

Does anyone have burning in their feet like they are on fire? My husband has been complaining of this recently. I think it's an MS thing but wanted to check...

Does anyone have burning in their feet like they are on fire? My husband has be...

mcheri

•7 years ago

8 Replies

Posts - My MSAA Community | HealthUnlocked

My MSAA Community

All posts for January 2017

Introducing me

Air travel and MS

Auto-injector, Copaxone, wasting a syringe

Hello

Hoping to Build Strength & Stamina

Okay, another post...

Get together

Potential get together

Johnny jumper exercise for disabilities

Clinical Trials for multiple sclerosis - News Update

New PPMS member

Wonderful lunch, wish you were all there

Hi everyone...

magnetic therapy

Results of MRI

Am stiffness

Neuroplasticity

Morning Has Broken

Beauty in Creation

Backyard Otters

How are you?

Falls and dreams

Spasticity

Advice needed on mobility

MS Hug?

Baby Stuff

May help others

Before Diagnosis

Waking with numb arms or legs?

Question

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