New PPMS member: In the Orlando area. Male... - My MSAA Community

My MSAA Community

9,019 members20,711 posts

New PPMS member

Richardgiam profile image
8 Replies

In the Orlando area. Male, 62, have PPMS diagnosed in 06. I use nutrition, high dose biotin, recently restarted LDN and looking forward to OCRELIZUMAB coming soon for us PPMS folks.

Written by
Richardgiam profile image
Richardgiam
To view profiles and participate in discussions please or .
Read more about...
8 Replies
Morllyn profile image
Morllyn

Welcome!

WAshingtongirl profile image
WAshingtongirl

Hi Richardgiam . Welcome! I hope you find this a great place to share your experience, ask questions, vent, make friends, and laugh. I have!

I know you and others with PPMS are anxiously awaiting the final approval of ocrelizumab. It sounds promising.

erash profile image
erash

Hi and welcome Richardgiam

I'm in Winter Park

We're neighbors 😊

GasLight profile image
GasLight

Hi, Richardgiam . I'm just North of you (in Atlanta), and have PPMS also.

It's very nice to meet you.

--Christopher

Karen-x profile image
Karen-x

Welcome, look forward to getting to know you. What is LDN?

Jesmcd2 profile image
Jesmcd2CommunityAmbassador

Hi Richardgiam and welcome to the best chat ever! I hope you find a home here as so many of us have. As you can see from the others posts we talk about pretty much anything and everything here, but most of all Support each other. We are in the same boat after all. ☺ Although think l want outta this boat.!😁

Out of curiosity how did you hear about us?

Pease jump in at anytime!

Jes🌠

Jbahnan profile image
Jbahnan

Hello Richard welcome!

dmaskal1 profile image
dmaskal1

Welcome to the PPMS community Richard. I was diagnosed in 1987 and took disability in 2000 in Indianapolis, IN. I'm still volunteering for groups in Pittsburgh, PA. Take care. Dave

You may also like...

Ocrevus for PPMS

I am 65 with PPMS Anyone else 65 with PPMS taking Ocrevus? Is it helping? My doctor recommended...

PPMS and Unvaccinated Friend

to All, I have a bit of a dilemma and would like your opinions. I am 61 years old with PPMS. I...

PPMS - hand stiffness

demyelinating polyneuropathy (CIDP) on top of my battle with PPMS (primary progressive). After many...

PPMS community

online chatter. Anyone know of a blog for PPMS diagnosed and their families?

RRMS TO PPMS

Had appointment today and doc feels I have moved from rrms to ppms. I definitely know things are...