Posts - My MSAA Community | HealthUnlocked

My MSAA Community

9,019 members • 20,711 posts

All posts for September 2016

Hello my friends

41 years old. Married 15 years to my best friend and soul mate. 2 kids (21 year old son and 11 year old daughter). Diagnosed "officially" in 2009 but had...

41 years old. Married 15 years to my best friend and soul mate. 2 kids (21 year ...

•8 years ago

Newbie

MS December 2004, Breast Cancer 2009, husband of 30 yrs. We gone through alot together & our motto is; God only gives us what we can handle & theses things...

MS December 2004, Breast Cancer 2009, husband of 30 yrs. We gone through alot t...

•8 years ago

Bioness L300

Has anyone heard of this device? Are any of you using it?

Has anyone heard of this device? Are any of you using it?

•8 years ago

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Ms is a killer ...

MS is really, really horrible ... cruel and unrelenting.

MS is really, really horrible ... cruel and unrelenting.

•8 years ago

I'm Producing a Seattle MS Fundraiser, Sat 10/1!

Hi Seattle (and nearby)! What are you doing this Saturday? Would you like to help fight MS? Sure! :) Three hours of live swing dance music (dancing not...

Hi Seattle (and nearby)! What are you doing this Saturday? Would you like to hel...

•8 years ago

I'm a newbie!

I was diagnosed in May of 2015, at age 65, with primary progressive MS. Befor that I was seeing a neurologist for Essential Tremor and considering having...

I was diagnosed in May of 2015, at age 65, with primary progressive MS. Befor ...

•8 years ago

Hello :)

Hello thank you for inviting me to the community :)

Hello thank you for inviting me to the community :)

•8 years ago

My MS Journey

Hello fellow sojourner in life with Multiple Sclerosis. I am a 58 year old woman who was diagnosed with MS in 2007. I know that I had this disease for at...

Hello fellow sojourner in life with Multiple Sclerosis. I am a 58 year old woma...

ReformedRosie16

•8 years ago

Coffee ☕️ after a long stressful day

•8 years ago

Dx today

I was just given my diagnosis today after a positive MRI, so I'm just beginning this adventure. I'll be seeing a neurologist soon and wondered if anyone has...

I was just given my diagnosis today after a positive MRI, so I'm just beginning ...

•8 years ago

Anxiety, stress,frustration

Warning, ranting and venting Tomorrow is my monthly appointment with my primary care. This will be the first one since the neurology appointment where I was...

Warning, ranting and venting Tomorrow is my monthly appointment with my primary...

•8 years ago

It's a beautiful Wednesday

Howdy from the great state if Texas,It's a wonderful day and all is well in gods world, I'm wishing your all having a great day and things are going your...

Howdy from the great state if Texas,It's a wonderful day and all is well in god...

•8 years ago

Injections

Has anyone ever tried or heard if you can use a numbing gel or cream on the injection site before you do your shot? I know you probably couldn't leave it on...

Has anyone ever tried or heard if you can use a numbing gel or cream on the inje...

•8 years ago

Bulbar Affect

Does anyone have this? Where you laugh or cry in the wrong place or at the wrong time? I have heard that it can affect ppl with MS. I don't have it, l dont...

Does anyone have this? Where you laugh or cry in the wrong place or at the wrong...

CommunityAmbassador•8 years ago

Questions

Hi, I am new to this site and I have a few questions that some of you might be able to help me with. Does anyone see their neurologist more than twice a year?...

Hi, I am new to this site and I have a few questions that some of you might be a...

•8 years ago

Anyone love their neurologist in Phoenix, AZ?

Hi, I'm looking for a new neurologist in Phoenix. I feel its time to switch specialist because he doesn't seem to "hear" me. I've been told one too many times...

Hi, I'm looking for a new neurologist in Phoenix. I feel its time to switch spec...

•8 years ago

Blood in urine

Hi all can anyone please tell me if red and white blood in urine with no infection is a common occurrence for MS patients? and whether there may be a link...

Hi all can anyone please tell me if red and white blood in urine with no infecti...

•8 years ago

Visual evoked potentials test

One of the diagnostic tests my neurologist insisted to do was the well known visual evoked potentials test, even though I have never had diplopia/blindness...

One of the diagnostic tests my neurologist insisted to do was the well known vis...

•8 years ago

home help

I need help. I am constantly fighting to get proper home help. It is a revolving door or agencies and aides that are coming and going. I need consistent...

I need help. I am constantly fighting to get proper home help. It is a revolving...

•8 years ago

Thank you all!

Thank you all for all the support you've given me these past week. Mom's off the ventalater and breathing on her own, the sedation is wearing off and talked to...

Thank you all for all the support you've given me these past week. Mom's off the...

CommunityAmbassador•8 years ago

Introductions about Amanda

Good morning, I'm new here almost fresh out of intense therapy since June 20th. I went in patient on that day for thoughts of self harm or harming others....

Good morning, I'm new here almost fresh out of intense therapy since June 20th. ...

•8 years ago

My introduction

Hiya folks. I'm new to the site, but not MS. Diagnosed May 2011, checks of my medical records indicated the symptoms began in mid-1998. Seems that Sciatic...

Hiya folks. I'm new to the site, but not MS. Diagnosed May 2011, checks of my m...

•8 years ago

Shower bar.....

Does anyone use or need a shower bar? I just bought one, along with a shower mat and nozzle. I need to feel as though I can take care of myself and this is a...

Does anyone use or need a shower bar? I just bought one, along with a shower mat...

•8 years ago

Had enough!

I have my 2007 massive heart attack,leaving me with heart failure.i also find out I have heart disease, two years later diabetes came along. Then in March of...

I have my 2007 massive heart attack,leaving me with heart failure.i also find ou...

•8 years ago

Copaxone 3 day

Can anyone tell me the difference between Copaxone 7 day vs Copaxone 3 day other than the obvious in amount of days you take it? Has anyone had problems with...

Can anyone tell me the difference between Copaxone 7 day vs Copaxone 3 day other...

•8 years ago

Moving back

Good afternoon my friends. Well my we found a place to move to in Southern California. Only thing it's a friend of my roommates and she doesn't want my dog...

Good afternoon my friends. Well my we found a place to move to in Southern Cali...

•8 years ago

Doctors

Has anyone on here had a doctor(s) throw every test at them even after being diagnosed with MS? I want to manage my MS but I work a limited amount and have...

Has anyone on here had a doctor(s) throw every test at them even after being dia...

•8 years ago

Shoes?

Hi, still kinda new to group. What kind of shoes , brand names do you recommend? My feet are numb & tingling, at times feel like they are encased in blocks of...

Hi, still kinda new to group. What kind of shoes , brand names do you recommend?...

CommunityAmbassador•8 years ago

New to the MSAA Family

Hi Everyone, my name is Emily (Em) and I was diagnosed with MS on 5/18/16 one week after my 50th bday. June 2015 I started feeling numbness and tingling in my...

Hi Everyone, my name is Emily (Em) and I was diagnosed with MS on 5/18/16 one we...

•8 years ago

WTF is wrong with me!?

Why am I usable to talk to my husband? Why am I so scared all the time? Why do I need to prove myself time and time again? Why does he always say I've given up...

Why am I usable to talk to my husband? Why am I so scared all the time? Why do I...

•8 years ago

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