Introductions about Amanda

Good morning, I'm new here almost fresh out of intense therapy since June 20th. I went in patient on that day for thoughts of self harm or harming others. Thanks be to God, I am no longer having those thoughts. My anxieties are somewhat better now that I am back with my husband trying to live a "new normal" life. My main MS related symptom, new, is tingling and numbness in my hands every morning. It is also painful and spreads up arms and across my upper back. Anyone else experience this on a regular basis?

12 Replies

  • Welcome Childof1God to our chat that is growing bigger by the day and no wants to be part of. So glad your feeling better and your husband is great support. Have you gone to any MS support groups in your town? They are great also. I don't have the symtems you have, but lm sure someone might.

  • Yes on Support Group. We meet twice a month. I am trying not to over do the holiday season this year. It is always hard for me since I was diagnosed in December formally. Thank you for reaching out! Hope you are well and ready for this season.

  • Hi Childof1God it's great to hear from you again :) l hope your doing well. How is the tingling doing? Have your Dr's been able to relieve that some for you?

    The holidays are usually always stressful, lm sure for you even more so. How long since you're dx? For me it's been it's been 18 mos. And lm still getting used to the new me.

    Being here though helps me a TON!!! And l dont just say that because they asked me to becom. ambassador. I say it because these ppl on here are the same as me! We understand what alot of others just can't comprehend. To me? That's priceless ♡

    I truly hope you come back more often. We always need more input here.



  • I had those symptoms for about 7 years before my dx. The depression is normal I guess. I've experienced i and have read about quite a few others that have. Itus important to ha e someone to talk to when you're feeling emotional. The pain is a hard part of this. The MS hug can cause pain across your chest, through yourabdomen and around your back just like your being constanly squeezed. I believe that's what you're referring to. Someone else told me about it. It made me feel good to know there is a name for it. You will be alright. We are here and this is a great family. I don't know how i would get through if not for this

  • Thank you for the kind words of encouragement.

  • Yep, all day every day tingling and numbness. Would drive anyone nuts. I've started hydroxyzine to get to sleep at night. Otherwise is weakness in hands and trouble walking. Have a hard time buttoning shirts, tying shoes, or anything involving precise movement with fingers - like picking up change from my pocket. Feet and legs tingling and numbness also. Sucks

  • Totally agree, it sucks big time. My neuro put me on a nerve specific medicine that seems to be helping.

  • Morning, I have the tingling and numbness in my fingers. It's worse in my right hand. I also get it in my toes, again worse in my right foot. I am not on any ms medication because I have RLS, I cannot take anti nausea drugs, but for me the cocktail I take for RLS works and so far keeps the pain subdued. Like audiophile I have difficulty fastening buttons, and using a pen, so writing is a problem. Thank God for tablets. Again the depression, I can't take anything for that as it irritates the RLS so some days are really tough. God bless Jimeka

  • That is terrible, I seem to have restless legs if I have too much stimulation or too much sugar. Hope you have better luck finding things that help without effecting RLS.

  • Morning from the uk. How are you doing Amanda, I love your user name, I hope life is better for you. I have had Rls for 35 years and only known about ms for the last 6 years, but they reckon I have had it as long as the Rls. Hope you have a good sleep in the big USA, blessings Jimeka

  • I have numbness and tingling on and off in my left hand and arm. Less frequently in my feet. For me it seems to last minutes to hours. It is annoying. Makes me want to keep rubbing my hands tonwake them up! And makes it hard to style my hair. And use heavy dishes. I went out and got plastic plates, nice ones, because I was breaking all our dishes dropping them.

  • I can relate, I drop my pill box quite often and anything else I get my hands on. Makes me feel like a big klutz.

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