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My MSAA Community

9,351 members • 21,119 posts

All posts for September 2016

Looking for name for my MS blog

I am looking for some opinions on blog names. I am going to be starting a blog about living with MS. I will talk about the challenges and ways to live your...

I am looking for some opinions on blog names. I am going to be starting a blog a...

Bygonelines

•8 years ago

20 Replies

Heat and Cold Intolerance.

Does anyone experience heat/cold intolerance? What are your symptoms? I'm not sure if this is related to ms but I feel like Ive been hot most of the summer...

Does anyone experience heat/cold intolerance? What are your symptoms? I'm not ...

Judi4

•8 years ago

13 Replies

New pain

Has anybody experienced pain in their tailbone While sitting? It's so bizarre I am a hairdresser I stand 5 to 6 hours a day all of a sudden when I sit I I...

Has anybody experienced pain in their tailbone While sitting? It's so bizarre ...

Satinshaw

•8 years ago

5 Replies

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Introducing myself

Good evening. I'm Eleyne, and I was diagnosed in 2006 although I'm sure I had MS for years before. I can point to specific incidents that would probably be...

Good evening. I'm Eleyne, and I was diagnosed in 2006 although I'm sure I had MS...

Eleyne92

•8 years ago

13 Replies

Coffee

Finally pulled down enough to come out front and sit on the front porch I have some coffee

Finally pulled down enough to come out front and sit on the front porch I have s...

Sleek78

•8 years ago

10 Replies

Not all there days!

dose anyone have one of those blae day where your there physically but not all there mentally? and what can you do about it?

dose anyone have one of those blae day where your there physically but not all ...

mik48

•8 years ago

6 Replies

How do you deal telling ppl you can't visit the hospital?

This is sort of a rant. My mom was put into the hospital Saturday for phuniona with the MRSA infection. My dad keeps asking me to go see her, my brothers keep...

This is sort of a rant. My mom was put into the hospital Saturday for phuniona w...

Jesmcd2

CommunityAmbassador•8 years ago

30 Replies

Over exertion and the day after

So here I sit on the couch feeling like a mac truck ran over me. Yesterday I had errands to run so got out there and did what a non-MS person does at their...

So here I sit on the couch feeling like a mac truck ran over me. Yesterday I had...

Vlbrown57

•8 years ago

8 Replies

LEMTRADA

Had my first dose the week of 1/27/2016 It had been 2 years since my last MRI, had an MRI 7/12/2016 lesion on my spine. I figured it had been there before...

Had my first dose the week of 1/27/2016 It had been 2 years since my last MRI, ...

REDLIPS44

•8 years ago

2 Replies

Moving back to California

Well the day after my birthday I am moving back to California. Arizona did not work out for me as I thought it would. It turn out I lost everything. Even my...

Well the day after my birthday I am moving back to California. Arizona did not w...

Sleek78

•8 years ago

14 Replies

Injection Sites

Has anyone taking Copaxone found that the back of the arms and the back of the hips are difficult? Any suggestions on how to inject, manually though. Also, I...

Has anyone taking Copaxone found that the back of the arms and the back of the h...

Cathy616

•8 years ago

56 Replies

Shots

Anyone else out there on Extavia? I started taking shots every other day for the last few months and some nights it hurts ( theshot that is) where is the...

Anyone else out there on Extavia? I started taking shots every other day for th...

Satinshaw

•8 years ago

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Questioning. ..possible ms possible Hemiplegic migraine

I am new here. 6+ months of insane symptoms plus several past episodes that lasted a few days and went away have put me on a rollercoaster ride seeking a...

I am new here. 6+ months of insane symptoms plus several past episodes that last...

Eva1981

•8 years ago

14 Replies

Is it?...must be my MS!

Anyone else have a tendency to attribute any new or crazy symptom to MS? And of course my neurologist often says, "it could be." No definitives... A few years...

Anyone else have a tendency to attribute any new or crazy symptom to MS? And of...

erash

•8 years ago

7 Replies

I FEEL LIKE UNCLE FESTER FROM THE ADDAMS FAMILY!

Does anyone have nerve pain that makes them feel like they plugged themselves into an electric socket? I know the starting point is somewhere in my neck, but...

Does anyone have nerve pain that makes them feel like they plugged themselves in...

Sukie427

•8 years ago

3 Replies

Gilenya

I am looking for feedback on Gilenya. Success? Side effects? How long have you been on it?

I am looking for feedback on Gilenya. Success? Side effects? How long have you b...

jandrews

•8 years ago

24 Replies

Introducing myself

Hi everyone! I am new to the community but I have lived with RRMS since 2/29/200. I was dx a month before my 21st birthday. I have been on a number of...

Hi everyone! I am new to the community but I have lived with RRMS since 2/29/200...

JeenaRae

•8 years ago

25 Replies

Hello, anyone else in a similar situation

Dec of 2013 had a kidney stone on each side. During the process small lowgrade cancerous tumors were found in my bladder. I had to go to a urologist every 3...

Dec of 2013 had a kidney stone on each side. During the process small lowgrade c...

Michael1961

•8 years ago

5 Replies

A question

Here they tell us it s the sickness that mostly affects Young adults and in this blog most people claim to be 65-70 and having been diagnosed a few years ago....

Here they tell us it s the sickness that mostly affects Young adults and in thi...

gpersiani

•8 years ago

18 Replies

Ups and downs...

Can anyone relate? One day, I'm ok...may even be able to get by without a cane. The next day, it's a no go. Just up In the air. I, at this point, don't know...

Can anyone relate? One day, I'm ok...may even be able to get by without a cane. ...

Kj9681

•8 years ago

61 Replies

Medical record issue

Has anyone on here been labeled in your medical record as being a problem patient or psychological overlay by a neurologist and says your MS symptoms are all...

Has anyone on here been labeled in your medical record as being a problem patien...

Hidden

•8 years ago

11 Replies

Tecfidera

Hi everyone! Has anyone on here had bad reactions to Tecfidera that weren't documented by the manufacturer? It stressed my body out more and made my cognitive...

Hi everyone! Has anyone on here had bad reactions to Tecfidera that weren't docu...

Hidden

•8 years ago

28 Replies

Rituximan

Recently taken off Tecfidera because it was not working. I did my first infusion of Rituximan yesterday. Things went well.

Recently taken off Tecfidera because it was not working. I did my first infusio...

lmstunned

•8 years ago

7 Replies

INTRODUCING MYSELF

I was diagnosed in 2005 with RRMS and have been on multiple medications since now im on aubagio and it seems to work great . i have a loving wife that...

I was diagnosed in 2005 with RRMS and have been on multiple medications since n...

cloudbear

•8 years ago

12 Replies

About me 😊

Diagnosed with RRMS 4 years ago. Treated with Aubagio. I , unfortunately , Have most of the signs and symptoms of MS. I have multiple health issues besides MS...

Diagnosed with RRMS 4 years ago. Treated with Aubagio. I , unfortunately , Have ...

Char66

•8 years ago

26 Replies

THANKS FOR SUPPORTING PETITION ON CHANGE.ORG

I want to thank the people in this Community for supporting my petition on Change.org which aims to have the Congress amend the anti-kickback provision of the...

I want to thank the people in this Community for supporting my petition on Chang...

Sukie427

•8 years ago

7 Replies

Alkaline water

Hi. I am trying to explain why alkaline water would be good for our body. Our metabolism waste produce acid, and acid level is not health. Alkaline water is...

Hi. I am trying to explain why alkaline water would be good for our body. Our me...

Miriade

•8 years ago

13 Replies

Memory

Hi group,just a quick one dose anyone have problems with there memory?? If so has anyone got any tips on how to help to improve it??

Hi group,just a quick one dose anyone have problems with there memory?? If so ha...

Runobear1983

•8 years ago

13 Replies

MS hug?

I've been having difficulty breathing, as if I can't take a deep breath especially with activity x few weeks. I am seeing my physician and we are working this...

I've been having difficulty breathing, as if I can't take a deep breath especial...

erash

•8 years ago

8 Replies

Spasms

My right leg and arm at night lately have been spasming and jerking so bad! So bad that it's like I can feel the nerve in my limbs starting to be tweaked. Like...

My right leg and arm at night lately have been spasming and jerking so bad! So b...

MSSurvivor

•8 years ago

14 Replies

Posts - My MSAA Community | HealthUnlocked

My MSAA Community

All posts for September 2016

Looking for name for my MS blog

Heat and Cold Intolerance.

New pain

Introducing myself

Coffee

Not all there days!

How do you deal telling ppl you can't visit the hospital?

Over exertion and the day after

LEMTRADA

Moving back to California

Injection Sites

Shots

Questioning. ..possible ms possible Hemiplegic migraine

Is it?...must be my MS!

I FEEL LIKE UNCLE FESTER FROM THE ADDAMS FAMILY!

Gilenya

Introducing myself

Hello, anyone else in a similar situation

A question

Ups and downs...

Medical record issue

Tecfidera

Rituximan

INTRODUCING MYSELF

About me 😊

THANKS FOR SUPPORTING PETITION ON CHANGE.ORG

Alkaline water

Memory

MS hug?

Spasms

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