Questions

[mrsmike]

Hi, I am new to this site and I have a few questions that some of you might be able to help me with. Does anyone see their neurologist more than twice a year? Also has anyone tried the Wahl's Protocol and have you had any improvement in your health? Thanks.

[erash]

I see my neuro 1x/yr and his nurse practitioner 1x/yr. I've been on Wahls level 2 for 197 days. Initially, first 3 months, fantastic improvements. Then had to deviate because of travel. And had some increase in my symptoms that haven't gotten better. But overall do feel better. Possibly could be even better if I followed more strictly.

[Fancy1959 in reply to erash]

Mrsmike, hello I'm Fancy1959 and I wanted to welcome you to this wonderful chat room. There are many many kind people who are going through the same thing you are or similar to what you are. As a result there's lots of great insights.

I have been seeing my neurologist about 3 times a year due to some issues I've been having. And I have never been on the Wahls Protocol and I'm not even sure what it is. The only thing I have done is change my diet Tu Amor Mediterranean diet with lots of fruits and vegetables. You have found a safe haven to ask any question you have about in it. You will get honest answers here and it won't be long before you feel like you're part of our family. I invite you to become an MS warrior with us. As an MS Warrior we never give up and we never give in. If Ms knocks us down we get back up. Always remember that together we are stronger! Fight on Ms warrior, fight on!

[Ctownsend1]

I see my neurologist probably 3 or 4 times a year. Not on the Wahl'S treatment.

[Jesmcd2 CommunityAmbassador]

Welcome mrsmike to 5he monster they call MS club. l see my neorolgost 3x's a yr right now with mri's every time. Never even heard of the Wahl Protocol diet until erash mentioned it before.

[Hidden]

I see my neurologist 3 times a year, and more if I have any issues in between. I get a MRI at least every other year. I have not tried the Wahl's Protocol, or heard of it before now. I'm definitely going to look into it as soon as I finish writing. I try to read up on any new information or suggestions. It never hurts to read about and sometimes try new things.

[Hidden]

Hello. I see my neurologist quarterly, with mri's accomplished every 6months. This has been so since diagnosis in May 2011. Have the Wahl's book, but have difficulty maintaining the diet. My wife is a wonderful cook.

[Karen-x]

As for Wahl's, I have not tried it. Are you aware they are starting clinical trials to study it? There have been recent studies of similar diets, plant based, that show it only helps decrease fatigue and not very dramatically. The Wahl's study won't start until 2017 and it will be 2020 before its complete. I know lots of people swear by it. But I keep going back to this, if it were a cure as easy as food, wouldn't they have discovered that by now and we all be healthy? Maybe I have too much faith in the medical community!

[SepFromWisco in reply to Karen-x]

Not a cure but something to just help with symptoms, especially the considerable fatigue that comes with this disease

[erash in reply to Karen-x]

Food is a very strong medicine...albeit not likely a panacea, or cure for all. Even Wahls recommends exercise, stress management. All good considerations. I'm not an extremist though 😉

[sdgriffin763]

I only see my neurologist 2 x's a year right now.

I started in on the Wahl's Protocol about 18 months ago. From day one I began to feel better. Physically i was doing well, my energy was really up and my brain was functioning quite well. I fell off the protocol after about 3 months. The holidays came around with my kids and grandkids all back home to visit. I still have not gotten back to it. My difficulty is taking the time to get a good plan for myself as far as what I will eat in a week and getting it ready. My husband's work schedule keeps me off balance as far as being able to stick to a routine.

Now that I am giving this some thought, I owe it to myself to get back in the swing of things. Thank you for bringing it up!

[Andrea50]

I see my Neuroligist every 3 months. I have not tried the Whals diet. I just try to eat healthier foods, and drink a lot of water. When I can, I walk twice a day.

[WAshingtongirl]

Hi, Mrsmike, normally, I see my neuro once a year and have a new MRI done then. This past year and a half has been rough and I've seen her more often. It depends on my symptoms and whether I'm able to live with them. As for the diet, I see that someone else already commented on the upcoming trial. At a recent MS conference I attended, the doctors spoke about diets and MS. They said a healthy diet,combined with exercise, is best for MS (and anyone else), but that NO diet was a cure for MS.

[mrsmike]

Thanks to all who helped with my questions. I see my neuro twice a year w/ a once a year MRI. I was just wondering if that was often enough. As for the Wahls Protocol, I know diet alone can't help, otherwise, yes they would have come up with it years ago (I hope!!), but it can't hurt. Exercise is also extremely important, which some times is hard to get yourself to do, but do it anyway. Thanks again one and all and let's keep fighting!