Warning, ranting and venting
Tomorrow is my monthly appointment with my primary care.
This will be the first one since the neurology appointment where I was told possible hemiplegic migraine and basically left hanging by my neurologist.
I am terrified that my primary care could lend credence to the so called expert and leave me hanging as well. Neuro said because my csf has no o-bands that rules out ms. Everything I've read says that isn't true.
Based on a conversation on the migraine board,I intend to ask about further testing for auto immune issues.
I also intend to ask for a new Neuro referral. I am so tired of feeling like I have to scream and demand to be treated properly. I am struggling each day to function. I can't keep on without some answers, without some tool to fight with.
If not for my fiancé I would just give up. He is my only reason to keep going. He gives me hope and strength to carry on.
I am just frustrated with the medical community at this point.
I apologize for ranting. Just needed to let it out somewhere and this seemed to be a safe place.