You're not alone in this, Jesmcd2 . Pseudobulbar affect (PBA) occurs in 10% of people with MS, maybe even more. Everything MSAA has on PBA can be found here:
Thanks for the info johnMSAA will definitely have to ck that out. I don't think l have it tho. Thank goodness. I just say things backwards, then get fustrated, then more angry at myself for not being able to express myself then l cry lol tics me off to no end.
I was diagnosed with pba about 6 months ago. It was a relief to know I wasn't completely insane. The medication for it did not work for me. So I am just learning to live with it and educating my family and friends as to why I burst into tears at times. I also become extremely agitated when many things are going on at the same time. Sensory overload. MS has so many faces.
I received the magazine Momentum last night. It has an article showing that my type of ms progressive relapsing has been eliminated and now I am in the ppms category. Which means the Aubagio has been a huge waste of money and a torturous time of side effects for no purpose. How do I convince my neurologist to take me off this poison and prescribe the medicine to flush it out of my bile? She seems defensive about keeping me on this despite serious side effects.
You ask very good questions about your medical care, Vlbrown57 , and ones that hopefully your doctor can be open to trying to answer:
* First, asking your doctor what type of MS it is they believe you’re experiencing at this time may be a place to start, and you can inform them of the information you read and your concerns surrounding this.
* It can also help to ask your doctor about their decision to keep you on this MS therapy and why they think it’s effective for you; hopefully they can provide more clarification as to why it’s necessary and how they think it’s benefiting you.
* Letting the doctor know the side effects and concerns you have about this particular medication can add to the conversation as well.
When you feel like your questions and concerns aren’t being heard or addressed, it’s important to know that as a patient you do have the right to seek another medical opinion of your case and obtain another perspective of your care; either with your current medical team or a new one hopefully you can receive the support and clarification you deserve.
As always, if you feel you would like to get into this in more depth with one of MSAA's client services consultants, please feel free to contact our Helpline:
@jesmcd2, I don't think you're describing pseudobulbar affect when you mention crying because your dyslexia sometimes causes you to say things backwards. Pseudobulbar affect would be a situation, for example, where a friend told you of the death of someone you both were fond of and you began to laugh without being able to control your laughter. It just appeared out of nowhere. Or if the police came for you to lock you up and you began to laugh as you were herded into the paddy wagon. That's pseudobulbar affect--an emotional response that is totally unexpected and inappropriate. Crying from frustration about your speech problem seems to me to be in the normal range of responses. Many people cry from frustration or disappointment with themselves.
agate lt does get extremely fustrating when l argue and my words get mixed up ugh. An Lord help me if l ever got arrested lol l probably would laugh. But l agree it's not pba. I was just wondering about it all.
Jesmcd2, it's Fancy1959 back. A decade one more before I was diagnosed with MS I had an episode I believe was the Balbar Affect. Long story short on a camping trip with 6 or so other families the kids were playing football. I picked up the football to get back to them and they held their hands up for me to throw it. I couldn't ever throw a football to save my life so I threw it short to make sure I didn't hit anyone with.it. Well don't you know the ball took a. big bounce an it hit a girlfriend in the face on the bridge of your nose and broke her glasses in two.. I watched in horror as it unfolded. As I raced over to apologize, it hit. I started laughing uncontrollably. I couldn't make it stop.My husband thought I was nuts and quite frankly so did i. It never happened again. But looking back I believe that was an early sign of my MS.
Oh no Fancy1959 lm so sorry that happened to you. Sounds like something l would do. Make sure you throw short just to make sure. I hope your friend was ok and all n all saw the humor in it at the end.
I treat people with PBA ( due to dementia or TBI). Most were diagnosed by neuro-psychiatrists. Nuedexta (medication) is available, helps, but side effects. Agree with above, doesn't seem like your symptoms are PBA, but if concerned discuss with your health care provider.
9rs bandwagon, huh? It pretty comfortable here,isn't it. Go 9rs !!! But without Nuexdexta PBA can be embarrassing. One of the few MS meds. that I can actually tell works.
no not really i do isolate alot but i have a understanding wife that knows ask your doctor about nuedexta and see if they will perscribe it to you it may help it has helped me
So glad that your wife is so understanding. It's always a good thing to have an amazing support system! But as l said before l dont have it... not now anyway. I'm just curious about it.
I had one episode that was probably PBA though I had no idea what that was at the time, and it was 3 years before MS was diagnosed. It was a very stressful situation, one where nobody would laugh, but I found I was laughing uncontrollably. It lasted only a short time, and afterwards I wondered why in the world I had been laughing.
No not really whiche can be frustrating, but when 'you can't remember what a word is this is what I do,I wait a little bit and think as if I am a Book with other words that are similar and I fill in the word. It is so much better than leaving the phrase bl
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