I don`t post on here too often but have had some good advise and information from you all in the past.
I am sad to say that Graham passed away on Sunday,.
He had apart from this horrible MSA been quite well over the years really, but just one bout of pneumonia floored him, his swallow deteriorated so much he was unable to eat and drink, and nothing could be done except have him home and care for him.
It was horrible to be so helpless but he was comfortable and peaceful, and now at rest.
Good luck to you all out there.
Mary x