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Multiple System Atrophy Trust

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mandg profile image
12 Replies

I don`t post on here too often but have had some good advise and information from you all in the past.

I am sad to say that Graham passed away on Sunday,.

He had apart from this horrible MSA been quite well over the years really, but just one bout of pneumonia floored him, his swallow deteriorated so much he was unable to eat and drink, and nothing could be done except have him home and care for him.

It was horrible to be so helpless but he was comfortable and peaceful, and now at rest.

Good luck to you all out there.

Mary x

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mandg profile image
mandg
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12 Replies
Monkeyfeet1 profile image
Monkeyfeet1

so sorry for your loss xx

Derkie54 profile image
Derkie54

Hello,

So sorry to hear that news, remember all the good times you had and look after yourself now.

Take care

Derek

Gill-C profile image
Gill-C

oh I am so sorry to hear this news. You must feel lost after caring for Graham for so long.

It’s a lesson to those of us who are soldiering on with fairly slow progression MSA that we must value what we have as one illness can be enough to derail us.

You gave Graham absolutely the best closure that you could. Now is the time to prioritise looking after yourself. Thank you so much for telling us-it can’t have been easy. Take good care. Gill x

Paul_and_Sue_Wood profile image
Paul_and_Sue_Wood

We all feel sorry for your loss and glad the forum did help in some way.Take time for yourself and family now and use those beautiful memories to move forward.

Peace be with you.

Paul & Sue

Niknak74 profile image
Niknak74

So sorry for your loss and my heart goes out you and your family. I understand this loss and know it is such a complex and emotional journey.

Look after yourself and take your lovely memories with you and the good times you had together.

Sending you love

Nic xx

Kaye31 profile image
Kaye31

oh my word I am so so sorry for your loss, lots of love to you all xxx

Ruffner profile image
Ruffner

It's strange that the passing of someone whom you've never met can bring about so many emotions. We are a small group and share so many struggles so when the passing of one of ours occurs it feels like we have lost a friend. Your husband is at peace so it is now your time to rest and reflect on all the memories you shared with Graham.

Seasider12 profile image
Seasider12

So sorry for your loss xxx

Jolanes profile image
Jolanes

So sorry for your loss, tough times for a lot of us on here at the moment x

Soco74 profile image
Soco74

So very sorry for your loss xx

Onedaymore1 profile image
Onedaymore1

🥲

TK-67 profile image
TK-67

I'm so sorry to hear your news. As others have said please look after yourself, MSA also takes so much from those who care. Reach out for help if and when you need it - the Good Grief Trust have lots of avenues for support thegoodgrieftrust.org/. Keep the love and memories close xx

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