Les’s arms hurting

[DeeMilo25]

Les seems to get worse everyday, just small things I notice, he has trouble with his left arm, lots of pain in shoulder and arm locks, doesn’t have much use of this arm anymore, today he said the right arm was starting to do the same, has anyone else come across this ? He seems to be leaning to the right all the time as well and his neck hurts all the time , we are going for a Datscan tomorrow so hopefully we might gets some answers on why he is deteriorating so quickly , or am I overthinking is this not fast just normal progression?

[JJAJJ]

Hello Dee

My husband’s right arm has been giving him pain for over two years now. Recently his neck and other arm has started aching…three nights ago his back started to ache. massage helps. The GP has prescribed Naproxen twice a day. Now and then he learns to the right and drools from the right. He was drooling and coughing a lot last week but his temperature was okay and didn’t seem to have an infection. I phoned the Parkinson nurse and she said if it gets worse get the GP out and get him to put Beware Silent Aspersion on his records. X

[DeeMilo25 in reply to JJAJJ]

Hi JJ

Les coughs all the time , or tries to, he’s had antibiotics for chest infection but still phlegmy , he cannot hold himself up anymore he needs help to sit up as he can’t pull himself up , his hands have started to get very dry palms and he says they smell funny , is this something you have seen before or heard of!

[JJAJJ in reply to DeeMilo25]

Hi Dee, Our husband’s seem to be at the same stage. Not noticed anything different about his hands but his skin is very dry. We are having a gantry hoist installed next week so I can give my poor old body a rest from manually moving him ! Does Les suffer from Orthostatic hypotension ? x.

[DeeMilo25 in reply to JJAJJ]

Hi JJ

I have enquired about a gantry hoist as well as I’m using a Sara steady at the moment and it’s quite difficult, but it’s quite hard at the moment as les hasn’t been told that MSA is terminal and I don’t feel it should be me that tells him I feel his medical team should tell him, so he still thinks that physio will get him better 😩 and yes his Orthostatic hypotension has been extremely bad then he started having seizures and was put on epilepsy meds and so far that’s been working , but it’s hard to say as he doesn’t really stand and more it’s literally bed to chair or commode by Sara steady .