Respite in South Bucks

[MSACarer1000]

HiI am new to this site. My lovely mum who is 78 lives with me after my healthy father passed away with covid in 2020.

She was diagnosed with Parkinsons after a hip op severely damaged a nerve causing a drop foot. The neurologist just suggested she had it. So in 2019 I think she started these meds. After covid she just got worse and worse.

Not having any idea of what to look out for my mum got aspirational pneumonia this year (on a 12 month wait lost fir someone to help clear her chest!).

Anyhow she then came out with a feeding tube called a RIG.

I need to go away in November for 3 nights. Wondering if anyone has any recommendations or experience for respite in bucks? We have carers already. Its just the overnight and common sense element.

I would use the carers who come 4 times a day but they don't suction or monitor my mum. And they don't use their common sense, they've left our front door open twice!

I guess I just need someone responsible and able to use a suction machine to clean her teeth and get excess phlegm out of her mouth.

Jude

[chester2107]

have you contacted the msatrust. org as they can give lots of advice and probably recommendations

elaine xx

[MSACarer1000 in reply to chester2107]

Yes I have but not lots of joy yet.

[chester2107 in reply to MSACarer1000]

ah ok x

[Hightidelowtide]

Hello - just wondering if you’ve had a carer’s assessment from your local council? In our area, as part of the carer’s assessment, you can request to put together a respite/emergency plan for care. In my our area there may be a charge for some of the care, but it does feel reassuring to have a basic plan in place, particularly if you are the main/only carer xx

[MSACarer1000 in reply to Hightidelowtide]

Thanks, yes my mum had an assessment but I'll contact them about emmergency care too.

[Honghua]

Hi , We live in South Bucks, Princes Risborough.

I suggest you contact Rennie Grove hospice at home.

They are excellent and can give support and advice.

Phone number is 01442 890444

They work in liason with Florence Nightingale hospice who also offer respite stays. Again they are excellent.

We now have carers coming in twice a day.

It has been arranged and funded via CHC so I don't n

Know what they charge but all of the carers are good and it appears to be a well f

run company.

They have staff trained to do suction rig and PEG feeding and offer overnight care etc.

Innovative Care phone number is 01494 23318.

I hope that is of help

Michele

[MSACarer1000 in reply to Honghua]

Yes thats great. We are linked to Florence nightingale hospice physio and they have no space for my particular week. I'll contact the other hospice and your agency too. Thanks this is very useful.Jude

[Honghua in reply to MSACarer1000]

Really hope it works out🤞🤞