Physio

[DeeMilo25]

Well Les had physio round today and she seems to think he should be able to get his strength back with exercise, She didn’t seem to know much about MSA so I’m concerned that as she doesn’t know about the disease she is just assuming that les just needs rehabilitation, has anyone else come across this with physio? Or is there a chance he might get a bit of strength back with exercise?

[Morganthreewheeler]

It’s a pity you cannot get a Neuro physio as that’s what we have in our area. Physiotherapy is very good for maintaining mobility and they should give you a chart with exercises to carry out daily in addition to their weekly visits

Lack of mobility can make the effects of MSA a lot worse so you should persist with it if you can

[Photo1250 in reply to Morganthreewheeler]

Adrienne just been referred to neuro physio and we'd have to travel to York (1 hour away or 40 minutes by train). However we'll have plenty of time to plan. Their doctors have reviewed Adrienne's referral and the wait time for new patient appointments is approximately 70 weeks from GP referral into the service. They understand her condition may be distressing or uncomfortable and the Trust (now there's a word) is working hard to reduce wait times. I'm assuming they haven't the foggiest notion about her condition, if they've heard of it, at all. Looking forward to 2025, then .......

[Photo1250 in reply to Photo1250]

They blamed it on COVID, by the way

[Cat-gal]

My husband is still in hospital but I know he's had physio. This will help with keeping the blood flow going and also to stop muscle atrophy.

[Janeyl]

Make sure she reads this:

msatrust.org.uk/wp-content/...

[mandg in reply to Janeyl]

Interesting read.

[Gill-C]

Neurophysio helped me no end. Defo worth putting in the time and effort. Good luck!

[Helenhooter]

I have been told to do chair yoga as it will help my balance and coordination. A joke really as I have cerebellar atrophy 😂😂😂