Voicebox?

[GP1988]

Our lass in floods of tears with her mam being so ill with MSA, still no diagnosis for lewy body either as was recommended, but my in-laws have FINALLY switched to a decent doctor's surgery.

We were wondering about voice boxes? When would she need one? Where do we go for one? Are they suitable? Has anyone any experience regarding them?

Many thanks and incase I don't get back....

I hope you all have as good a Christmas as you can. Thank you for being supportive and honest to those of us trying to help but not suffering. Thank you

[Gill-C]

Do you maybe mean Voice Bank? Build one the sooner the better - harder (though possible) to do voice repair than to get a realistic synthetic sound when still able to speak fairly clearly. You will need a speech and language therapist’s referral (ask the new GP if not already with SALT) and the fantastic MSA Trust help with the cost. I used Speak Unique. Very straightforward though tiring to initially set up. Hope that helps and apologies if it wasn’t what you were after. Good luck!

[GP1988 in reply to Gill-C]

Hi Gill-C. Yes she was born with a voice box, she don't need two of em! I'll get father in law onto it. Many thanks

[ReverendBadger]

I was diagnosed MSA 26/5/22. My voice was a bit quiet sometimes but otherwise fairly normal. I already had SALT referral for the previous diagnosis of Parkinson's (2021) so as soon as MSA was mentioned the subject of Voice Banking arose. It took about 2 months to organise and my voice had deteriorated in that time such that I needed the "Repair" option with Speak Unique.

It was easy to do and is now available saved on their server for future download. I recommend everyone with MSA diagnosis to get voice bankinng done as soon as they can.