Sue Peg update and a Question - Multiple System A...

Multiple System Atrophy Trust

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Sue Peg update and a Question

Paul_and_Sue_Wood profile image

Hi All

I posted that Sue had an issue with her PEG and after som wise words from Ian along with Jill from MSA Trust and our great GP we worked out it was a Thrush Infection.

We have been treating with Fluconazole successfully and the infection is diminishing.

However, we have noticed that the PEG site now for "Burps" wind occasionally

Any ideas or worries I should consider?

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Paul_and_Sue_Wood profile image
Paul_and_Sue_Wood
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3 Replies
Monkeyfeet1 profile image
Monkeyfeet1

I don’t have any words of wisdom but have a peaceful Christmas xxx

Yanno profile image
Yanno

Welcome to the burping club Paul & Sue!! I think it’s just one of those things that happens from time to time with a PEG or button. Thankfully it doesn’t happen frequently with Jax but it’s just something we accept is a downside of the upsides one gets with a PEG.

I know with a PEG, changing it is a bit more complicated than with a button, however getting the width of the tube is apparently important. Have you spoken to Nutricia?

Have a great Christmas, I’ll give you a call over the festive season sometime.

Take care, Ian

Paul_and_Sue_Wood profile image
Paul_and_Sue_Wood in reply to Yanno

Ian

Cheers.

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