Ok, so not quite just today , I've kept it under observation for 4 days, but it looks like MSA has thrown me another curved ball.
Both hands feel to me to be cold and the wife says they feel cold to her.
Anyone else got this ? Medically known as CHS.
Hi Ken, Jackie is always cold. Even when the weather was scorching, Jax felt chilly at times. We’ve not bothered to look up the medical term, just accepted it’s another manifestation of the beast.
Take care, Ian
We're the same Ian, not looking for labels and explanations for everything anymore.
Hi Ian, to save you the bother of looking up medical terms (my new hobby!) just rearange these words to personal taste;
Autonomic failure vasomotor reflex thermoregulation dysfunction distal digital capilliary
It's like an advanced version of "Countdown" but without Carol and not as rude as "9 Out 0f 10 Cats". I used to enjoy playing this when I worked in Birmingham and did stuff like electrical testing/certification of student let houses for many landlords near Birmingham University. The medical students would chat to me while I was working and I'd drop into the conversation " My girlfriend saw a consultant recently who told her she had a mulberry terbinate. what's that about ?"
Medical students were great, they invariably knew how to reset a trip on the consumer unit,change a plug,check a plug fuse,etc. Unlike non STEM undergrads who have on several occassions called the landlord to change a freakin' light bulb. Still at least we know what the first words the latter group will be saying as they clutch their cherished certificate (Desmond) at their first real job - "Do you want fries with that ?"
yes I think it must be Peter suffers with cold hands and feet and now it’s getting a little colder have started to need 2 quilts and not exceptionally cold yet here in south east.
Hi Ken.
Sue gets cold hands and warm arms.
I put it down to the sensory nerves causing issues because if you body feels cold it shuts down blood flow to extremities and in reverse if hot.
But with MSA the body is being tricked by the beast.
Paul
Certainly some trickery going on with Sonia's senses. At night she will often choose to leave her legs and feet uncovered because she feels that they are hot. But when I touch them they are actually quite cold!
Sometimes she doesn't have any feeling in her feet.
This may be totally unhelpful but may be useful in the collection of experiences.
yes, my husband has cold white fingers with loss of feeling. He has cold feet too, but these white fingers are a tegular feature now!!
cold hands and feet but to me they feel warm 🤷🏼♀️
Yes Phil is exactly the same, his hands are always freezing. He always felt hot until recently and would often open the back door because it was too hot in the kitchen. He’s now the opposite and feels cold a lot of the time. I must say it’s a bit of a relief for me not having to freeze in the house.
hiya
My hands and feet are often like blocks of ice. I use an electric foot warmer for my feet and I have a rechargeable hand warmer, both from amazon. Invaluable. I hope the information helps?
Best wishes
Helen
☺️
bet you've got a warm heart though 😀
Sue
Thanks Sue, but 'tis not for I to comment on the veracity of such a speculation except to venture that the residents of the West Wing and the staff here are far more likely to expound the contarian view. As to the Lady of the Manor, to whom which the question might properly be addressed in the appropriate setting, she has simply coughed twice . into her small lacey hankerchief and sends her best wishes.
PS Do you fancy, if I might be so bold, advising me how to turn off the bold setting when typing this ?
PASS!!
Peter's hands and feet are the same. He often keeps his feet out from under the duvet as he says it helps when his feet a tingling. When I feel them they're like blocks of ice. Not sure if you can do any thing. X
How do I get either a firm diagnosis or rule out MSA?
Feeling isolated & not being listened to. 
Hi I am new and have a question on LDN
MSA-C with ataxia rebound
