Fall alarms: Does anyone else... - Multiple System A...

Multiple System Atrophy Trust

1,732 members1,378 posts

Fall alarms

Honghua profile image
5 Replies

Does anyone else experience problems with fall alarms?

We are having continual problems with the alarm not activating when my husband falls which he unfortunately does on a regular basis.

These are not slumping to the ground but a real crash.

He has had 5 since the beginning of August and the alarm simply doesn't activate.

This has been an on going problem the box connecting to the phone line has been changed and the current one is a possum.

The wrist band has bee n relaced umpteen times and we've been told this is the best available.

We are considering trying a Samsung Galaxy watch.

Written by
Honghua profile image
Honghua
To view profiles and participate in discussions please or .
5 Replies

sorry, ours always worked. Our local council maintained it. Is the one you have the type that is triggered by the velocity of falling? Kx

Honghua profile image
Honghua in reply to

Hi, yes it is and it's linked to the council or NRS response centre.

It just doesn't go off no matter how many times they change the device or his wrist band alarm.

I was told yesterday that there is nothing rlde they csn do.

All a bit hopeless

in reply to Honghua

It sounds really frustrating for you. I would hope they would be able to provide some alternative such as a telephone number for the emergency call centre. (Via complaints procedure?) I guess it's only critical if he is alone in the house. By the time my dad was in the falling stage there was always someone else around to call for help. He had about 60 falls with 2 minor injuries. We were lucky! The authorities should be looking at ways to prevent injury - via walking aids etc. Sadly the falling stage can change fairly swiftly to wheelchair use - maybe worth preparing for this. All the best! K🌈

Honghua profile image
Honghua in reply to

Hi,

Thanks for your reply.

He has been usinga wheelchair for quite a while now but still tries to move on his own.

I try to never leave him home alone but it can happen if i am in the garden or upstairs cleaning the shower.

I think it's sheer luck he hasn't broken any bones yet.

I seem to spends my days eithrr hovering around him or listening for the sounds of a crash.

He has had 6 since the beginning of august when i wasnt in the room to catch him.

So hate this bloody disease!

It really sounds like they ought to be giving you a bit more support - even an official falls assessment would be a start. Or a carers assessment.

Catching someone is always risky in case you injure yourself - (but we've all done it ;))

Maybe a chat with one of the MSA trust nurses might help.

Kx

Not what you're looking for?

You may also like...

help please

hi there, I would be very grateful for any help on what to do next. My partner had been having...

2 way communication

Has anyone here used a 2 way radio sort of thing for communicating in the house . If my partner is...

School MSA Survey

Hi Everyone, we have been very busy navigating the changes to my husbands MSA and also raising our...

MSA progression

Hi All, I hope that you are managing to enjoy the sunshine as much as possible. I haven't been...

Appalling Treatment by medical professionals

Does anyone else have problems with so called medical professionals? I’m just at the end of my...