Posts - MPN Voice | HealthUnlocked

MPN Voice

10,445 members • 14,398 posts

All posts for September 2022

How do you communicate your condition?

Hello All, I am 54M, recently diagnosed with ET in Ontario, Canada. High platelets (900), negative mutations. I do not have any visible symptoms. I do not...

Hello All, I am 54M, recently diagnosed with ET in Ontario, Canada. High pla...

•2 years ago

Midge Bites etc

Has anyone with ET had problems with mozzie bites midges etc. Mine come up enormous & area around it stays swollen & red & itchy for days after. Antihistamine...

Has anyone with ET had problems with mozzie bites midges etc. Mine come up enor...

•2 years ago

Clinic appoitment

is it just myself but only time I have been seen at the hospital was when I was diagnosed back in January

is it just myself but only time I have been seen at the hospital was when I was...

•2 years ago

Want to take advantage of all our features? Just log in!

or

Choice of treatment

hi everyone, I would be grateful for some advice Following my PV diagnosis in May with haematocrit over 70% and haemoglobin over 200 my treatment with...

hi everyone, I would be grateful for some advice Following my PV diagnosis in...

•2 years ago

Inflammatory response

J'AK2 mutation leads to increased platelet count and is linked to inflammatory response.' I would like to know more on the symptoms related to inflammatory...

J'AK2 mutation leads to increased platelet count and is linked to inflammatory r...

•2 years ago

Peg and anaemia update

hi folks just another update on my Peg journey End of July I went from every 11 days to 14 days for Peg. Haemoglobin 105 A few days ago I had more bloods...

hi folks just another update on my Peg journey End of July I went from every 11...

•2 years ago

MPN Mutant Cell Fitness vs VAF

A study from I think the Cornell MPN group has a new risk measuring method they found to be a good indication of prognostics for event free survival and...

A study from I think the Cornell MPN group has a new risk measuring method they ...

•2 years ago

ET calr and inflammation

Hello friends! I was reading a couple of posts in the forum regarding the effect ET jak+ has on cytokines in the body. Since I have the calr-mutation I was...

Hello friends! I was reading a couple of posts in the forum regarding the effect...

•2 years ago

MPL mutation

Hi, My question is similar to another recent post. Apparently I have an MPL mutation 30.2% and NSH2B3 27.7%. Do any of you know what this means? I have ET,...

Hi, My question is similar to another recent post. Apparently I have an MPL mu...

•2 years ago

Dr Verstovsek on Besremi and Outcomes

https://www.targetedonc.com/view/first-fda-approved-interferon-improves-outcomes-in-polycythemia-vera

https://www.targetedonc.com/view/first-fda-approved-interferon-improves-outcomes...

•2 years ago

Red wine, what kind?

I am 77 female have PV taking hydroxy 10 pills a week. My hemotologist and MPN specialist agree I can have red wine. Hunter, what kind do you drink? I am...

I am 77 female have PV taking hydroxy 10 pills a week. My hemotologist and MPN ...

BrookTownsend375

•2 years ago

Jak2 percentage is 17%

What does 17% Jak2 mean exactly. I was told that % meant that my ET was not progressing. I know that’s a good thing but I feel lousy and don’t know what is...

What does 17% Jak2 mean exactly. I was told that % meant that my ET was not prog...

•2 years ago

1
...
4
5