Posts - MPN Voice | HealthUnlocked

MPN Voice

10,784 members • 14,980 posts

All posts for November 2017

Depression

My husband has never acknowledged hisPRV. Hes very lucky is on hydroxy and suffers virtually no symptoms or side effects and counts are very stable. When first...

My husband has never acknowledged hisPRV. Hes very lucky is on hydroxy and suffe...

•7 years ago

What a great way to end the week!!

Today was my 3 monthly ET check up and blood test - and I was astounded to hear that my platelet count has dropped to 448 from 632 in August (almost 30%...

Today was my 3 monthly ET check up and blood test - and I was astounded to hear ...

•7 years ago

Kidney Problems

Hello, Has anyone had a serious kidney problem while taking Hydroxy? I have been taking it for 3 weeks and after an initial reaction been very well, but my...

Hello, Has anyone had a serious kidney problem while taking Hydroxy? I have been...

•7 years ago

Want to take advantage of all our features? Just log in!

or

Prescription exemption certificate

Just wondered how long they take to get signed off and sent out? Also, if you need to renew your prescription whilst waiting for the certificate is there...

Just wondered how long they take to get signed off and sent out? Also, if you ne...

•7 years ago

PV Jak 2

Was diagnosed in April & have been having regular Venesections since then (around 1 every 3 weeks) My levels are reasonably acceptable at the moment but...

Was diagnosed in April & have been having regular Venesections since then (aroun...

•7 years ago

Be the first to reply

Newbie here

I was diagnosed with PV 2 weeks ago. I started HU and so far the only side effects have been tired, and for the first hour or so after taking the 500mg...

I was diagnosed with PV 2 weeks ago. I started HU and so far the only side effe...

•7 years ago

Pegylated Interferon...starting soon

Hi fellow MPN-ers, I’ve just been told that I don’t have ET, but actually have PV. I’m supposed to start Pegasys this week. Can you share your experience with...

Hi fellow MPN-ers, I’ve just been told that I don’t have ET, but actually have P...

•7 years ago

MPN Voice Charity Christmas Cards are now on sale

Support MPN Voice this Christmas by sending our charity Christmas cards, there are 4 designs available: (pictures are available on our website of all the...

Support MPN Voice this Christmas by sending our charity Christmas cards, there a...

Partner•7 years ago

Myelofibrosis and gastro-intestinal bleed and liver pain

Has anyone who has MF also had any gastro-intestinal bleed and/or liver troubles? Last week I quite suddenly became very breathless, light headed and weak. I...

Has anyone who has MF also had any gastro-intestinal bleed and/or liver troubles...

•7 years ago

1
...
3
4