Posts - MPN Voice | HealthUnlocked

MPN Voice

10,445 members • 14,398 posts

All posts for March 2017

I need an MPN hug

Having a really hard time at the moment. Last Tuesday my hubby suddenly collapsed in excruciating pain after having tummy aches for days. I had gone over the...

Having a really hard time at the moment. Last Tuesday my hubby suddenly collaps...

•7 years ago

HYDREA DOSAGE.

I am on four capsules each day, twenty eight a week. I was wondering if anyone was on a higher dose than this. My platelets are hovering around 695, if they...

I am on four capsules each day, twenty eight a week. I was wondering if anyone w...

•7 years ago

Myelofibrosis and platelets

Hi my husband has has MF for nearly seven years now, on transfusions 3 units every 2 weeks. His platelet level has slowly gone down and is now at 12 does...

Hi my husband has has MF for nearly seven years now, on transfusions 3 units eve...

•7 years ago

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Pain in the....

Palms of my hands 😁 anyone else experiencing this? When I put pressure on my hands, like leaning down somewhere or something I'm having pains in the center of...

Palms of my hands 😁 anyone else experiencing this? When I put pressure on my ha...

•7 years ago

Bloods in Portugal

Well, here I am in sunny Portugal sitting in a clinic waiting to have my bloods done. I do this every so often and scan the results over to my specialist...

Well, here I am in sunny Portugal sitting in a clinic waiting to have my bloods ...

•7 years ago

Agonizing pain in finger tips.

For the past 2 months, I have been suffering badly with painful fingertips. Sometimes, they have little splits/cracks in them, that catch on everything. They...

For the past 2 months, I have been suffering badly with painful fingertips. Some...

•7 years ago

Critical illnesses cover

Trying to get critical illness cover for a remortgage have been refused once does anyone know of any companies that will insure us for our condition?

Trying to get critical illness cover for a remortgage have been refused once doe...

•7 years ago

Why did you start medication for pv

Hi all I'm doing lots of research and I think I've got my head around most of this. But what I can't grasp is why some people are only on aspirin and...

Hi all I'm doing lots of research and I think I've got my head around most of th...

•7 years ago

Tinnitus & ET / medication

For the last couple of months I've been increasingly aware of a whistling noise in both ears, especially in the absence of other background noise. Online...

For the last couple of months I've been increasingly aware of a whistling noise ...

•7 years ago

Interesting news!

http://www.leukaemia.org.au/news/one-woman-s-remarkable-resolve-to-help-give-better-treatment-options-for-people-with-rare-blood-cancers

http://www.leukaemia.org.au/news/one-woman-s-remarkable-resolve-to-help-give-bet...

•7 years ago

Anyone heard of PV patients going into remission on Pegylated Interferon?

Hi, My wife has had PV for four years now with an elevated HB level and platelets always hovering around the 750 mark. Her doctor prescribed her pegylated...

Hi, My wife has had PV for four years now with an elevated HB level and platelet...

•7 years ago

Herbal supplement - Melissa Dream

Hello everyone, Does anyone have any information on the above supplement. Since my diagnosis a year ago, I sleep very badly. Not more than four hours a night....

Hello everyone, Does anyone have any information on the above supplement. Since ...

•7 years ago

Hydroxyurea vs aspirin question

This is my first post: I was diagnosed with ET two days ago. (Am male, age 62, in fairly good health and am active, despite a neuro-muscular disease - see...

This is my first post: I was diagnosed with ET two days ago. (Am male, age 62, i...

•7 years ago

Breathlessness

Could it be that the breathlessness (and associated fatigue) many of us are complaining about has its origins in an immune response? It is strange...it comes,...

Could it be that the breathlessness (and associated fatigue) many of us are comp...

•7 years ago

New member needing support

Hi I'm a new member. My husband was diagnosed with PV recently and we are getting used to the whole thing. Finding it a bit scary - fear of the Unknown. Going...

Hi I'm a new member. My husband was diagnosed with PV recently and we are getti...

•7 years ago

ANOTHER BmB

So I spoke to one of my Heam's yesterday and they have said that they would like another BmB to check how far along my scarring is, my bloods are looking...

So I spoke to one of my Heam's yesterday and they have said that they would like...

•7 years ago

Platelets clumping but down in number??

I've been to the hospital today and they were pleased with the results, my platelets were down to 400 (hurray!) However I always take a picture of the results...

I've been to the hospital today and they were pleased with the results, my plate...

•7 years ago

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