My wife has had PV for four years now with an elevated HB level and platelets always hovering around the 750 mark. Her doctor prescribed her pegylated interferon and her blood levels rapidly dropped in the space of a six months to what is classed as 'normal'.
Once she reached this stage her doctor stopped her medication and her blood levels have not really changed since coming off the medication. This was in December 2015 so for the past 15 months her blood levels have remained completely normal and never have they been outside of the normal 'average' banding categories.
She is still Jak2 negative so naturally is not cured but i just wondered if anyone else has experienced anything similar whilst on the medication?