Posts - MPN Voice | HealthUnlocked

MPN Voice

10,445 members • 14,398 posts

All posts for January 2014

Site dedicated to E.T. & P.V.. Successful alternative that worked for for E.T. patient.

You can go to youtube.com-type in mejthrobocythemia video , it is promotional to their forum, or you can google mejthrombocythaemia, (spelled differently) and...

You can go to youtube.com-type in mejthrobocythemia video , it is promotional t...

•10 years ago

Ednama

Has anyone had a successful stem cell transplant for myleodisplasia. Husband going for his initial consultation tomorrow and all we can read is negatives....

Has anyone had a successful stem cell transplant for myleodisplasia. Husband goi...

•10 years ago

Have had one DVT in my calf. On Warfarin.Was expecting to take for 3 months now been told need to take longer. Any thoughts

•10 years ago

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I have very red cheeks which I think is fairly common with PV but they are also quite spotty. No itchiness. Does anyone have any ideas.

•10 years ago

Presentations from The Living with MPDs Day and The MPN Advances Day 2013

The Living with MPDs Day on 16th November 2013 held in The School for Oriental and African Studies, London, was a great success, a very busy day full of...

The Living with MPDs Day on 16th November 2013 held in The School for Oriental a...

Partner•10 years ago

Myleofibrosis

My husband has myleofibrosis has had this since 2009 he requires three units of blood every two weeks and is on exjade for iron overload. His white count is...

My husband has myleofibrosis has had this since 2009 he requires three units of ...

•10 years ago

Alternative treatments

I have been diagnosed with PV in August at age 52 with no previous health problems. A bit of a shock. I'm use to alternative treatments for all kinds of...

I have been diagnosed with PV in August at age 52 with no previous health proble...

•10 years ago

Who has been diagnosed with a MPN without having had a bone marrow biopsy?

I was always led to believe that a bone marrow biopsy was the only way to truly diagnose a MPN. This is another example of Myeloproliferative neoplasms being...

I was always led to believe that a bone marrow biopsy was the only way to truly ...

•10 years ago

Info on my Myelofibrosis.

Hi everybody, Thank you all for your great response, I went to see my haemo yesterday, she was pleased with blood count, and said she was pleased with the size...

Hi everybody, Thank you all for your great response, I went to see my haemo yest...

•10 years ago

Is there any Support for Spouses / Partners?

Hi A good friend pointed out to me that quite often the spouse or partner also suffer without any support or treatment. We have been diagnosed with our...

Hi A good friend pointed out to me that quite often the spouse or partner also s...

•10 years ago

Thank goodness I found this site.

Had a visit to my Haemo today, the 10th visit in a year, despite this she asks me on every visit ' now did we do a bone marrow biopsy?' Which of course I had...

Had a visit to my Haemo today, the 10th visit in a year, despite this she asks m...

•10 years ago

Hi to everyone, I have had mf, almost 2 years. and I have never spoken to anyone with mf, I hope to hear others in this position, thanks bye

•10 years ago

I would like to take part in the new drug trials - how do I apply. Have been off Hydra for over two years now due to two ankle ulcers.

I was given Phosphorus 32 injections twice since, but do not want them again-side effects are bad. Can anyone help? Dorotea

I was given Phosphorus 32 injections twice since, but do not want them again-sid...

•10 years ago

Has anyone else had problems swallowing the Hydroxycarbamide tablets? Been on them for 8 years and only just experienced this.

After checking with the Haem dept on News Years Eve, I have been cutting the tablets in half and emptying the contents into a large glass of water. Although I...

After checking with the Haem dept on News Years Eve, I have been cutting the tab...

•10 years ago

HAPPY NEW YEAR TO YOU ALL! !!!!

I just wanted to drop a line a give my all and say Happy New Year, & God Bless Every One Of You!!!!!

I just wanted to drop a line a give my all and say Happy New Year, & God Bless E...

Geoff_mpnfamily

•10 years ago

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