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LSN

5,706 members • 2,635 posts

All posts for February 2017

I got lost

I have been missing for a few days if anyone has missed me as I got logged out somehow and it kept saying my ID and password was being used by another user 😳

I have been missing for a few days if anyone has missed me as I got logged out s...

•7 years ago

SAPL surgery done.

Hello to all. My surgery was done 2 days ago on my legs. Ubelievable how small it is. While it hurts, it's not so bad. Doctor sat he got 9 litters out of my...

Hello to all. My surgery was done 2 days ago on my legs. Ubelievable how small i...

•7 years ago

hjp surgery

have bilateral leg lymphoedema, severe hip osteoarthritis and need a hip replacement, however the surgeon i have is very reluctant to do the surgery due to...

have bilateral leg lymphoedema, severe hip osteoarthritis and need a hip replace...

•7 years ago

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Does lymphoedema always get worse?

Hi Folks! My heart goes out to all of you who really struggle with bad lymphoedema. Some of you are having such a rubbish time and it seems so unfair. I am...

Hi Folks! My heart goes out to all of you who really struggle with bad lymphoede...

•7 years ago

Compression therapy system

I'm still yet to have my Lymphography, which is on March 8th, and apart from manual massage and compression tights etc., I don't know what else they do/offer....

I'm still yet to have my Lymphography, which is on March 8th, and apart from man...

•7 years ago

Aching legs

lately the back of my legs from my ankle to mid calf are aching in the morning on both legs. It just feels really tight like cramp but it isn't, does anybody...

lately the back of my legs from my ankle to mid calf are aching in the morning o...

•7 years ago

working with Lymphoedema

Do other people find it a strain trying to find part time work that is not too strenuous for their condition. I can do customer service work if there is not a...

Do other people find it a strain trying to find part time work that is not too s...

•7 years ago

My wife got the LYMPHEDEMA operation abroad WITH SUCCESS

I decided to write to help some others that may be caught in the same frame of mind my common law spouse was trapped in. First off, we are Canadian living in...

I decided to write to help some others that may be caught in the same frame of m...

•7 years ago

Protecting clothing and bedding from emollients

Has anyone been supplied with garments to protect their clothing and bedding from grease stains? Support hosiery does the job for me during the day. I don't...

Has anyone been supplied with garments to protect their clothing and bedding fro...

•7 years ago

Dry itchy skin

Hi to you all hopefully quick question but not guaranteed lol! Why does your skin get so dry & itchy when it swells & what's best to use? My feet actually burn...

Hi to you all hopefully quick question but not guaranteed lol! Why does your ski...

•7 years ago

Arm

question how would you know if you have lymphodema in your arm I have the most awful pain in my right arm and hand but only from the elbow up no pain in my...

question how would you know if you have lymphodema in your arm I have the most a...

•7 years ago

Hi folks,i'm new here

I'm waiting for an appointment re cause of swollen ankles and swelling above and in front of knees. No pain tho nor itching or redness,and no pitting when i...

I'm waiting for an appointment re cause of swollen ankles and swelling above and...

•7 years ago

Canc

Phone call this morning my appointment with lymphadema nurse is cancelled.Had all my question that I was going to ask about in my head I don't know if it is in...

Phone call this morning my appointment with lymphadema nurse is cancelled.Had al...

•7 years ago

Had it gone into my hand????

18 months ago I was diagnosed with Lymphodema in both breasts. Following breast cancer surgery I have no Lymph nodes in my right arm, I've noticed over the...

18 months ago I was diagnosed with Lymphodema in both breasts. Following breast...

•7 years ago

Confused

Hello, wonder if I could get some advice please. Does cellulitis come under lymphoedema? I am confused as I can't seem to find any community that covers...

Hello, wonder if I could get some advice please. Does cellulitis come under lym...

•7 years ago

Lymphoedema surgery ...2nd post

Tonight ITV Wales briefly covered the surgery I posted about last week ...hopefully here's the link...

Tonight ITV Wales briefly covered the surgery I posted about last week ...hopefu...

•7 years ago

Lymphoscintigram appt

Yeah........Got my appointment through...........:) :) Its March 8th. Can't wait. I'll finally have a definitive answer as to whether or not I have...

Yeah........Got my appointment through...........:) :) Its March 8th. Can't wai...

•7 years ago

First post

Hi everyone I have just signed up after reading some of your posts. I have primary in both my legs and although my gp was aware of my condition I only got a...

Hi everyone I have just signed up after reading some of your posts. I have prim...

•7 years ago

Compression tights

Finally had my compression tights that the lymphoedema nurse measured me for. Says that I'm not to wear them till I see her next. But decided to try on a...

Finally had my compression tights that the lymphoedema nurse measured me for. S...

•7 years ago

Preoperative for surgery

Today I had my pe op with therapist and doctor who will preform the SAPL surgery on my leg later this month. Everything looks good for a green light to...

Today I had my pe op with therapist and doctor who will preform the SAPL surgery...

•7 years ago

COPD

I have been diagnosed with COPD have always had mild asthma, I've had two exaberations (not sure of spelling) so given Prednisolone and Spiriva inhalers and...

I have been diagnosed with COPD have always had mild asthma, I've had two exaber...

•7 years ago

Body brushing for Lymphodema

A beauty therapist I know gave me a body brush. She said she used it for lymphodema massage. Gentle upwards circular movements. It makes sense as the lymph...

A beauty therapist I know gave me a body brush. She said she used it for lymphod...

•7 years ago

Blis

Hi all has anyone had blisters on their legs I have them on one leg and they are driving me nuts Thanks for reading x

Hi all has anyone had blisters on their legs I have them on one leg and they are...

•7 years ago

Lymphatic reflexology

Hello everyone. I went for a lymphatic reflexology appointment last week the therapist was great and had medical knowlegde (nursing ). However having been...

Hello everyone. I went for a lymphatic reflexology appointment last week the the...

•7 years ago

Pain and itching

Does anyone know a. Why we get such dreadful pains in our legs and b why we get dreadful itching.. on the body.

Does anyone know a. Why we get such dreadful pains in our legs and b why we get ...

•7 years ago

Lymphoedema/ fellow sufferer!

Hello. Joining the group today. Having good days and bad days Having fluroscopy mapping with Jane Wigg soon. Excited and nrevous! x

Hello. Joining the group today. Having good days and bad days Having fluroscopy...

•7 years ago

Lymphoedema surgery

This was in my local paper (The South Wales Evening Post) yesterday (1 Feb '17) so I thought I would share it with you given that many of you may not be aware...

This was in my local paper (The South Wales Evening Post) yesterday (1 Feb '17) ...

•7 years ago

A brain illness?

My dad has been suffering with some 'episodes', which take place as follows: gets a funny smell under his nose and a bile-like taste in his mouth ~ starts to...

My dad has been suffering with some 'episodes', which take place as follows: get...

elliejoy-warwick

•7 years ago

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