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LSN

5,779 members•2,669 posts

All posts for February 2018

Abnormal feeling of Liquid running down my legs. Kinda long post

Around the beginning of 2016 I started having this feeling on my inner thighs as if I just had an accident but when I felt my thighs they were completely...

Around the beginning of 2016 I started having this feeling on my inner thighs as...

Alyss

•7 years ago

20 Replies

Lymphodena / MLD / Factor V Leiden

Wondered if anyone knows if MLD is ok with Factor V, I recently had four sessions five months after mastectomy - I have arm and trunk swellings but ankle and...

Wondered if anyone knows if MLD is ok with Factor V, I recently had four session...

Ingrid3

•7 years ago

8 Replies

Advice for Summer?

I was diagnosed with lymphodema a few months ago, and have gradually gotten used to wearing thigh high compression stockings on my right leg. But I have to say...

I was diagnosed with lymphodema a few months ago, and have gradually gotten used...

Kallenubble

•7 years ago

16 Replies

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Should we try lobbying our MP, Tweet / send Facebook messages - All treatment for Lymphedema should be delivered free & available on NHS..🍀

I think it's a shame treatment is a lottery in UK, especially when you suffer pain and discomfort. This government should be ashamed that only people who can...

I think it's a shame treatment is a lottery in UK, especially when you suffer pa...

eleanorshutie

•7 years ago

9 Replies

Pain from lymphodema

Hi folks have just returned from my apointment at lymphodema clinic. My results are quite pleasing - I have lost two and half litres from each leg. Pleased?...

Hi folks have just returned from my apointment at lymphodema clinic. My results...

rosequartzdreamer

•7 years ago

11 Replies

Wearing compression wraps when I am not well

Hi I was just wondering what others do when they are not well about wearing their compression wraps. I have had a flu bug for the last week and I was in bed...

Hi I was just wondering what others do when they are not well about wearing thei...

Loramay

•7 years ago

3 Replies

Compressions

I have got my new compressions to start to wear in April 2 full leg & 1 tights, the full leg have the knobbles round the top & I usually get the full silicone...

I have got my new compressions to start to wear in April 2 full leg & 1 tights, ...

Bev-1966

•7 years ago

25 Replies

Living with lymphedema in the USA

Is there not any drugs or surgery offered in the USA for lymphedema. The compression method does not work for me. It is hard to wear some shirts. I have had...

Is there not any drugs or surgery offered in the USA for lymphedema. The compres...

debles1

•7 years ago

23 Replies

Pain with Lymphadema?

first time posting, I hope I am doing this right! Can anyone tell me if Lymphedema can cause pain in the arm following breast cancer surgery?

first time posting, I hope I am doing this right! Can anyone tell me if Lymphede...

Breeches

•7 years ago

12 Replies

Sock it to lymphoedema

Our trustees have gone over and above in thier efforts to sock it to lymphoedema. Watch them here and then video yourself/ your friends/ your work colleagues...

Our trustees have gone over and above in thier efforts to sock it to lymphoedema...

LymphSuppNetwork

Partner•7 years ago

Be the first to reply

Areas of UK that have excellent support and treatment services?

Hi My husband is due to retire in the next year and we plan to move to a bungalow. I would like to move to an area that has good support for patients who have...

Hi My husband is due to retire in the next year and we plan to move to a bungalo...

eleanorshutie

•7 years ago

13 Replies

Update on Footwear for Primary Lymphoedema in legs and ankles

Hi Just thought I should add the advice of my wonderful Lymphoedema nurse re footwear. Every summer, prior to diagnosis, I would stop wearing tights, start to...

Hi Just thought I should add the advice of my wonderful Lymphoedema nurse re foo...

SetFreeAtLast

•7 years ago

19 Replies

New knee

I have lymphoedema in both legs. I am soon going into hospital to have a replacement knee operation and wondering if anyone has had a similar op and if there...

I have lymphoedema in both legs. I am soon going into hospital to have a replace...

adeleb

•7 years ago

1 Reply

Living with lymphedema

Hi I am lizzy I have had lymphedema in both my lower legs for 20 yr now it don’t get easier it get hard as ur all will know but trying to manage it can be...

Hi I am lizzy I have had lymphedema in both my lower legs for 20 yr now it don’...

Lizzy145

•7 years ago

11 Replies

Sock it to lymphoedema 2018

Sock it to lymphoedema is a great way to increase awareness of lymphoedema, have fun and raise vital funds to support the LSN. Go to our website to see how you...

Sock it to lymphoedema is a great way to increase awareness of lymphoedema, have...

LymphSuppNetwork

Partner•7 years ago

Be the first to reply

Cancer

Can there be primary cancer emanating from lymph nodes or is it a chicken & the egg situation so only those with it as a secondary can access help? Deep in my...

Can there be primary cancer emanating from lymph nodes or is it a chicken & the ...

skybluepink

•7 years ago

5 Replies

Question for cyclists with Lymphoedema in the leg(s)

I'm wondering if there are any LE specific cycling tights/pants or shorts available anywhere? I have looked everywhere and have not been able to find......

I'm wondering if there are any LE specific cycling tights/pants or shorts availa...

River83

•7 years ago

15 Replies

Icy Cold Feet

I have lymphoedema in legs,arms, abdomen etc. Problem is, when the rest of my body us uncomfortably toasty warm my feet feel like locks of ice. I’ve done the...

I have lymphoedema in legs,arms, abdomen etc. Problem is, when the rest of my bo...

SpinningGwenny

•7 years ago

11 Replies

How long a diagnosis took!!

Hi Just thought I would share my experience. I first suffered from swollen ankles and legs when at university, aged 19. I was referred to a top teaching...

Hi Just thought I would share my experience. I first suffered from swollen ankle...

SetFreeAtLast

•7 years ago

5 Replies

LVA in the Baltimore area?

I am having a consultation for LVA in late March; have any of you had this done in the Baltimore area at Johns Hopkins, or if you are in the US, would you be...

I am having a consultation for LVA in late March; have any of you had this done ...

corellc

•7 years ago

3 Replies

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Posts - LSN | HealthUnlocked

LSN

All posts for February 2018

Abnormal feeling of Liquid running down my legs. Kinda long post

Lymphodena / MLD / Factor V Leiden

Advice for Summer?

Should we try lobbying our MP, Tweet / send Facebook messages - All treatment for Lymphedema should be delivered free & available on NHS..🍀

Pain from lymphodema

Wearing compression wraps when I am not well

Compressions

Living with lymphedema in the USA

Pain with Lymphadema?

Sock it to lymphoedema

Areas of UK that have excellent support and treatment services?

Update on Footwear for Primary Lymphoedema in legs and ankles

New knee

Living with lymphedema

Sock it to lymphoedema 2018

Cancer

Question for cyclists with Lymphoedema in the leg(s)

Icy Cold Feet

How long a diagnosis took!!

LVA in the Baltimore area?

Search posts

Latest poll

Do you believe that your Lymphoedema was triggered by having a blood pressure reading or blood test/injection

Topics

Archive