Snaomi2 days ago
Hi all. It's been awhile since I updated on my SURGERY (SAPL) on my left leg for lymphedema. It been 4 months now and I did have a bit of a...
Hello all fellow sufferers.
Hopalong3 days agoPOPULAR
I found this site and read some of the comments. I never realised how many of us there are, and we all seem to go through the same problems...
23 Replies1 Like
Lymphoedema leading to arthritis?
AlanK4 days ago
I have had lymphoedema in my lower left leg for about twenty years, in the last few years my right leg has swollen a small amount. Recent ch...
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Living with Farrow Wraps.
Paw19554 days ago
Hi I thought that I would do an update on how things are going as its awhile since I posted and I have now been Living with farrow wraps for...
3 Replies5 Likes
Bev-19665 days ago
This is where they come to and they normally go to my toes, the clinic measure my legs and then order by the measurements from the sigvaris ...
Hi everyone, who wears sigvaris stockings, I have just got my new stockings and normally they go to the start of my toes but my new ones onl...
Why not become a member of the Lymphoedema Support Network
LymphSuppNetwork6 days ago
Joining the LSN will give you access to a huge amount of expert information as well as regular newsletters and free factsheets. Your memberh...
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Excellent new book for those living with or interested in lymphoedema
LymphSuppNetwork7 days ago
Professor Mortimer and world renowned photographer Gemma Levince have teams up to produce a new book 'Lets talk lymphoedema'. We have been l...
7 Replies2 Likes
Microsurgery for LE in Italy
Discoverlife8 days ago
I am considering MLVA and FLLA-LVSP with Dr. Campisi and company in Italy. The results of published studies seem very good. However I ...
Newly diagnosed with lymphadema
Hashi-too9 days agoPOPULAR
After a year of chasing a diagnosis for my swollen calf/ foot I have finally been diagnosed with lympphadema. Devastated. I am 50 neve...
Liposuction for arm lymphoedema
NESKA759 days ago
Hi I've recently seen a surgeon in regards to my lymphoedema and he was going to profits LVA but says mine is too advanced so has suggested ...
Bev-196610 days ago
Hi gang, I'm just wondering how many of you carry some form of medical emergency ID and if it is important for us to do so ?
17 Replies1 Like
Bev-196614 days ago
Hi gang, went for check up at clinic and my legs are all different sizes top and bottom right and left and are bigger than my last app could...
4 Replies1 Like
MathilaM17 days ago
Hello just wondering if anyone has tried cryotherapy and if so, did it have any effect on your lymphedema? I am not looking at the cryothera...
Liposuction in Kent
billiechillie21 days ago
I have had primary Lymphoedema in my left leg for the best part of 30 years. I have heard about lliposuction and would really like to in...
amordemae201224 days ago
Is anyone had lymphoedema surgery in Belgian? I suffer with lymphoedema more than a decade. NHS refuses to treat me in South Wales because, ...
Bev-196625 days ago
Morning gang, I'm just wondering if anyone could do me a favour, I only have an iPad and I want a copy of the consensus document and was won...
7 Replies1 Like
Do biphosphonates make lymphodema worse?
MsDELa month ago
Hi, I have secondary le in my leg. I also have osteoporosis and need biphosphonate treatment and my consultant has recommended this by infus...
Kazdohenya month agoPOPULAR
I have just got my first pair of tights I have been told to wear them everyday .I'm going on my holiday in a couple of weeks how do pe...
20 Replies1 Like
Lymph Node Transfer for Primary Lymphadema Legs (both of them) - Anyone traveled this path before?
skinproa month ago
Hello, Wondering if anyone has had LNT surgery for Primary Lymphadema in their legs. I've flown from the US to Paris recently to consult wi...
8 Replies1 Like
HazieCa month ago
Hi I have just been talking to someone who has lymphedema in their legs and they have been using a vibropower plate to help reduce the swell...
8 Replies2 Likes
Lymphoedema and carpal tunnel
Sophariesa month ago
I have a question. I have lymphoedema to my left arm following breast cancer. I have also been suffering from carpal tunnel syndrome...
Bev-1966a month ago
Hi everyone, has anybody got brown toes like me lol 😉 just took stockings of cos to hot but had them on since 8am.
13 Replies2 Likes
Hiddena month ago
Hi all, can someone please tell me how to keep cool in this heat with these daft bloody stockings on. 😅
Flying with bandages
Stephoba month ago
Has anyone ever had any trouble at airport security with bandying on.
I have a 10 hours flight to do and was hoping I could travel bandaged ...
Morning gang, for the last month or so when I get out the shower I can feel warm fluid coming from my neather region and it last for about 1...
Anyone with cellulitis? how did you get diagnosed?
loadsofissuesa month ago
wondering if a blood test would show but not sure which test to ask for - thinking of paying for it as NHS Gp's have failed to test for bac...
6 Replies1 Like
Anyone with cellulitis does your cellulitis and/or lymphoedema and/or Vasculitis symptoms change throughout day/night and from day-to-day?
hi anyone with cellulitis - I have burning hot thighs, knees, hips, under the breasts/lower back mainly when I lye/sit down in the eve. When...
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blackcatoljaa month ago
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belleberta month ago
Hi I had a Lymphosintigram and it is confirmed that I have primary lymphodema in my right leg. I knew it was definitely Lymphodema but didn...
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