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LSN

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should I be concerned?

Hi all, I have had lymphoedema for a while now, both limbs, doctors always unhelpful so try to avoid them where I can. Anyway woke up a week ago and middle...

Hi all, I have had lymphoedema for a while now, both limbs, doctors always unhe...

Praying4AMiracle

•7 hours ago

Be the first to reply

Urgent call to action if you live in the UK

CALL TO ACTION please follow the link below to share your experiences of lymphoedema care in the UK and suggestions for improvement, direct to government...

CALL TO ACTION please follow the link below to share your experiences of lympho...

LymphSuppNetwork

Partner•2 months ago

15 Replies

Coban bandaging

hi I’m just wondering what everyone else is using seeing Coban bandages are on a manufacturing dispute… don’t nobthe ins and outs but I’m proper fed up because...

hi I’m just wondering what everyone else is using seeing Coban bandages are on a...

Poozle

•2 months ago

11 Replies

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Inquiry

iI just found this site and it is quite informative. I have a consult with Dr. Druh Singhal at Beth Israel hospital in Boston for possible SAPL. Has anyone...

iI just found this site and it is quite informative. I have a consult with Dr. D...

Creimer

•2 months ago

1 Reply

Showering with bandages

I've been offered a course of bandaging (for my arm) and wondered whether anyone had advice about showering. I've seen some cast protectors on Amazon, which...

I've been offered a course of bandaging (for my arm) and wondered whether anyone...

sleeviejeebies

•3 months ago

9 Replies

Flossie

I have primary lymphodema in both legs. No investigation or diagnosis in other areas. Is it possible/likely to have the same in arms and abdomen? My fingers...

I have primary lymphodema in both legs. No investigation or diagnosis in other a...

Roloshebamartha

•4 months ago

10 Replies

Struggling

I got diagnosed after surgery earlier this year and the lymphoedema got much worse after radiotherapy. I have found the local lymphoedema service to be quite...

I got diagnosed after surgery earlier this year and the lymphoedema got much wor...

Hopeful100

•4 months ago

15 Replies

Sudden knee onset of pain

Hi, I have secondary lymphedema in both lower legs which I've had since 2006.I've also a ruptured miniscus and arthritis in the left leg for several years....

Hi, I have secondary lymphedema in both lower legs which I've had since 2006.I'v...

BedfordBoy

•4 months ago

4 Replies

Newly diagnosed

Hi all, Hope you’re doing ok. I’m in the UK and have recently been diagnosed with breast lymphoedema after treatment for breast cancer. My operation or...

Hi all, Hope you’re doing ok. I’m in the UK and have recently been diagnosed ...

Celie1

•4 months ago

5 Replies

FlexTouch Plus leg pump

How do I assure that I have cleared my central drainage pathways prior to using my FlexiTouch Plus on my legs?

How do I assure that I have cleared my central drainage pathways prior to using...

srdexter

•5 months ago

5 Replies

Lymphoedema and sweat during exercise

Does anyone sweat more from their lymphoedema limb while exercising? I run and exercise at the gym and have noticed my lymphie leg gets really sweaty compared...

Does anyone sweat more from their lymphoedema limb while exercising? I run and e...

SamLymphie

•5 months ago

3 Replies

Exercise and leg lymphoedema

Hi, I am a relatively fit 55 year old with unilateral primary lower limb lymphoedema. Since diagnosis two years ago I have been advised to continue with the...

Hi, I am a relatively fit 55 year old with unilateral primary lower limb lymph...

Ola22

•5 months ago

8 Replies

Are cats, lymphoedema and fleas a good mix?

I've always wanted to have a cat and now my situation has changed it's become realistic for me. But I'm nervous about being bitten by fleas. My lymphoedema...

I've always wanted to have a cat and now my situation has changed it's become re...

caroline111

•5 months ago

13 Replies

burning sensation

anyone else suffer with burning sensation that feels like you’ve been out in the sun for hours! Worst it’s ever been and wondered what other people do/use?

anyone else suffer with burning sensation that feels like you’ve been out in the...

Dash01

•5 months ago

5 Replies

Compression stocking entitlement

Hi Just wanted some advice on how many pairs of stockings I am entitled to every 6 months. I have Lymphedema in one leg and have always been seen in clinic...

Hi Just wanted some advice on how many pairs of stockings I am entitled to ever...

Shelston

•5 months ago

15 Replies

vibration plates

any comments on the use of these please. Many thanks

Dymps1

•5 months ago

21 Replies

OLP -LVA

Hi Lymph broad church, I have just had a consultation and scan at Oxford and now considering LVA microsurgery. Has anyone had success from this procedure? I...

Hi Lymph broad church, I have just had a consultation and scan at Oxford and no...

Ola22

•6 months ago

13 Replies

Can anyone recommend an electric shaver?

Having used my husband’s hair clippers on my lymphoedema leg for the last 3yrs I decided to treat myself to an electric razor! Just about to click “buy” when I...

Having used my husband’s hair clippers on my lymphoedema leg for the last 3yrs I...

SRML

•6 months ago

9 Replies

Lymphatic massage by myself

I have a leg lymphedema and I've been doing manual lymphatic massages. I do them once a month to keep my leg in a good shape, because my therapist recommended...

I have a leg lymphedema and I've been doing manual lymphatic massages. I do them...

sad_watermelon

•6 months ago

6 Replies

Sigvaris Compression Stockings

Hello,I have had Lymphoedema in my Right Foot/Leg for roughly the last 14 years. I was in my 20's when diagnosed and felt embarrassed to wear compression...

Hello,I have had Lymphoedema in my Right Foot/Leg for roughly the last 14 years....

Bravesoulx

•6 months ago

44 Replies

Anyone have experience with Anthem BCBS denying LVA surgery? If your insurance approved it, which insurance do you have?

Recently had my upcoming LVA/LVNA surgery denied by Anthem BCBS and was curious if anyone has had this happen to them with eventual approval. Not sure if I...

Recently had my upcoming LVA/LVNA surgery denied by Anthem BCBS and was curious ...

kbmc

•6 months ago

4 Replies

Surgery?

Hi! I am 19. I got my lymphedema in 2018. At the age of 5 I had a cancer on my left leg and my tight muscle was removed. At the age of 7 the cancer came back,...

Hi! I am 19. I got my lymphedema in 2018. At the age of 5 I had a cancer on my l...

sad_watermelon

•6 months ago

4 Replies

Is this normal? So many questions

At the age of 8 I got cancer surgery on my leg, on the soft tissues. The operation caused the interruption of 3 lymph nodes. At the time, me and my parents...

At the age of 8 I got cancer surgery on my leg, on the soft tissues. The operati...

sad_watermelon

•6 months ago

10 Replies

Clothes fitting around lymphoedema

I have had left arm lympoedema for 16 years. Does anyone else have trouble finding bras and tops to fit. Tried new bra this arming. It seemed to push the fluid...

I have had left arm lympoedema for 16 years. Does anyone else have trouble findi...

butiinside

•6 months ago

2 Replies

Nerve pain in foot

Does anyone else get what is more than likely nerve pain in the feet? It comes and goes like a shooting pain but has been a lot more frequent recently and it's...

Does anyone else get what is more than likely nerve pain in the feet? It comes a...

On_porter

•6 months ago

5 Replies

Compression stockings

I have lymphoedema in my left leg. Originally I was prescribed mediven thigh length compression garment. For many years I dropped out of the system. Last year...

I have lymphoedema in my left leg. Originally I was prescribed mediven thigh len...

anniegregs

•7 months ago

4 Replies

swollen feet

both legs are swollen now. The skin on both of feet gets very very dry and during the night it gets so itchy. What is wrong with my feet?

both legs are swollen now. The skin on both of feet gets very very dry and durin...

Mama_mia

•7 months ago

2 Replies

Compressions

HelloI am 9 weeks post TKR in right knee and I think I might have a problem with my Compressions. I have lower leg Lymphoedema and my left leg was always...

HelloI am 9 weeks post TKR in right knee and I think I might have a problem wit...

AuntyJean15

•8 months ago

5 Replies

Huntleigh LymphAssist pump

Has anyone purchased one of these and found it helpful? I've trialled the Haddenham Lymph Flow Advance and it was very effective for me but much more...

Has anyone purchased one of these and found it helpful? I've trialled the Hadden...

sleeviejeebies

•8 months ago

6 Replies

Pain with Lymphoedema

Does anyone else’s medical professional tell you that lymphoedema isn’t painful? I have had 3 lymphoedema nurses now tell me it isn’t. For a start how would...

Does anyone else’s medical professional tell you that lymphoedema isn’t painful?...

Ernie2608

•8 months ago

24 Replies

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Posts - LSN | HealthUnlocked

LSN

should I be concerned?

Urgent call to action if you live in the UK

Coban bandaging

Inquiry

Showering with bandages

Flossie

Struggling

Sudden knee onset of pain

Newly diagnosed

FlexTouch Plus leg pump

Lymphoedema and sweat during exercise

Exercise and leg lymphoedema

Are cats, lymphoedema and fleas a good mix?

burning sensation

Compression stocking entitlement

vibration plates

OLP -LVA

Can anyone recommend an electric shaver?

Lymphatic massage by myself

Sigvaris Compression Stockings

Anyone have experience with Anthem BCBS denying LVA surgery? If your insurance approved it, which insurance do you have?

Surgery?

Is this normal? So many questions

Clothes fitting around lymphoedema

Nerve pain in foot

Compression stockings

swollen feet

Compressions

Huntleigh LymphAssist pump

Pain with Lymphoedema

Search posts

Latest poll

Do you believe that your Lymphoedema was triggered by having a blood pressure reading or blood test/injection

Topics

Archive