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LSN

5,706 members • 2,635 posts

All posts for October 2013

Spironolactone

Used for lymphoedema?? My aunty is prescribed this drug for heart failure!! She wondered if it would help with my lympho?? I think not!!! Seeing as lymph...

Used for lymphoedema?? My aunty is prescribed this drug for heart failure!! Sh...

sue32

•11 years ago

4 Replies

I have lymphoedema in both legs and need a knee replacement. Has anyone had this done and tell me the problems they have encountered.

So far I have seen two surgeons and both have not operated on someone with my problem. Both have told me any infection and I could have the leg amputated....

So far I have seen two surgeons and both have not operated on someone with my pr...

Compass

•11 years ago

18 Replies

Compression Working

I was newly diagnosed some 7-8 months ago and through pushing hard got to see a macmillan nurse specialist who recommended class three below knee made to...

I was newly diagnosed some 7-8 months ago and through pushing hard got to see a ...

gavinlwright

•11 years ago

6 Replies

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LSN Patient Conference yesterday

It was lovely to be at the Conference with so many lovely people and I'm sorry I didn't manage to meet more of you from this site in person. All the sessions...

It was lovely to be at the Conference with so many lovely people and I'm sorry I...

lovesradio

•11 years ago

6 Replies

49, female, Just diagnosed P.L. legs/arms/face. Just started manual massaging. Now have sudden upper-body sweats 5-10 x day. Is this normal?

Since 14yrs, I've complained to doctors re my ankle swelling condition. Only ever been told it's edema and nothing can be done. I even had liposuction...

Since 14yrs, I've complained to doctors re my ankle swelling condition. Only eve...

Ferguson1

•11 years ago

6 Replies

I am going to have 2 weeks intensive leg bandaging in hospital but they want me to have restricted fluids and take diuretics.

Everything I have read about taking water tablets to reduce fluid retention in lymphoedema patients says it doesn't work and it could even make things worse....

Everything I have read about taking water tablets to reduce fluid retention in l...

Aliphant1964

•11 years ago

23 Replies

Is anyone aware of liposuction being done in the United States? I have primary lymphedema of my left leg.

Hidden

•11 years ago

7 Replies

Chest pain

I have lymphoedema in my left arm and I think it's spreading under the armpit and across the chest. Reconstructed breast is feeling tender like mild pins and...

I have lymphoedema in my left arm and I think it's spreading under the armpit an...

Neverenoughsparkle

•11 years ago

5 Replies

Top of the morning to you all

I havent been on this site for a while so just thought I would drop by. This morning I am waiting to take a shower so I have not wrapped my legs and in the...

I havent been on this site for a while so just thought I would drop by. This ...

Ginsing

•11 years ago

15 Replies

Top Tips for self management of lymphoedema

Hi all this guide has been produced by the Macmillan Lymphoedema Project for Scotland with the help of people living with lymphoedema alongside health...

Hi all this guide has been produced by the Macmillan Lymphoedema Project for Sco...

lovesradio

•11 years ago

6 Replies

Just over a week till LSN conference

I'm really excited about going to this and really pleased that I have the time. I'm really looking forward to meeting others wearing sleeves, gloves,...

I'm really excited about going to this and really pleased that I have the time. ...

lovesradio

•11 years ago

16 Replies

I have a painful ganglion on the inside wrist of my lymphedema hand. (I have lymphedema on both arms following a double mastectomy)

Should I still be doing massage? How is a ganglion treated? Should I be wearing my sleeves? My GP is extremely unhelpful - said I am making a fuss of...

Should I still be doing massage? How is a ganglion treated? Should I be wearing ...

clown

•11 years ago

12 Replies

Any one with lympoedema in and

around the Carlisle area love to meet up for a coffee and a chat! Gins

Ginsing

•11 years ago

3 Replies

does anyone know if lymphoedema can cause poor circulation in affected limb?

I have been fitted with a sleeve for my left arm. Tried it on yesterday but I had to give up after an hour, as my fingers and thumb were turning blue and...

I have been fitted with a sleeve for my left arm. Tried it on yesterday but I h...

butiinside

•11 years ago

10 Replies

Are there any support groups in the RG postcode area. finding dealing with lymphoedema in my left arm more difficult than cancer 9 yrs ago

Neverenoughsparkle

•11 years ago

7 Replies

Is there anyone having treatment with low level laser therapy (LLLT)? Are there practitioners in or near Hampshire?

Concertina16

•11 years ago

12 Replies

Still moving with Lymphoedema.

Well I am still coping with Lymphoedema of both legs and wearing the full leg garments, which are not cheap having to pay for two prescriptions because I need...

Well I am still coping with Lymphoedema of both legs and wearing the full leg ga...

VeronicaBell

•11 years ago

14 Replies

Coping with Lymphoedema

I regularly read the posts on the site and am frustrated that so many people are left in the dark to manage their condition. I have primary bilateral...

I regularly read the posts on the site and am frustrated that so many people are...

naominorthenellis

•11 years ago

9 Replies

hi,can,t seem to find a good lyphoedema m.l d,massage in my area,on n.h.s.north london barnet? can anyone help,as I know it really helps.

pettitt61

•11 years ago

15 Replies

Just diagnosed :(

Hello all I have just been diagnosed with Lymphedema in my left arm. I found myself a good therapist an she suggested reaching out to find other patients like...

Hello all I have just been diagnosed with Lymphedema in my left arm. I found mys...

Tishfin

•11 years ago

14 Replies

Living with primary lymphoedema (left leg)

Hi All, I have been a member of the LSN for few years now but this is the first time I have been on this forum. I guess I have now finally accepted my...

Hi All, I have been a member of the LSN for few years now but this is the first ...

EN30

•11 years ago

8 Replies

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Posts - LSN | HealthUnlocked

LSN

All posts for October 2013

Spironolactone

I have lymphoedema in both legs and need a knee replacement. Has anyone had this done and tell me the problems they have encountered.

Compression Working

LSN Patient Conference yesterday

49, female, Just diagnosed P.L. legs/arms/face. Just started manual massaging. Now have sudden upper-body sweats 5-10 x day. Is this normal?

I am going to have 2 weeks intensive leg bandaging in hospital but they want me to have restricted fluids and take diuretics.

Is anyone aware of liposuction being done in the United States? I have primary lymphedema of my left leg.

Chest pain

Top of the morning to you all

Top Tips for self management of lymphoedema

Just over a week till LSN conference

I have a painful ganglion on the inside wrist of my lymphedema hand. (I have lymphedema on both arms following a double mastectomy)

Any one with lympoedema in and

does anyone know if lymphoedema can cause poor circulation in affected limb?

Are there any support groups in the RG postcode area. finding dealing with lymphoedema in my left arm more difficult than cancer 9 yrs ago

Is there anyone having treatment with low level laser therapy (LLLT)? Are there practitioners in or near Hampshire?

Still moving with Lymphoedema.

Coping with Lymphoedema

hi,can,t seem to find a good lyphoedema m.l d,massage in my area,on n.h.s.north london barnet? can anyone help,as I know it really helps.

Just diagnosed :(

Living with primary lymphoedema (left leg)

Search posts

Latest poll

Do you believe that your Lymphoedema was triggered by having a blood pressure reading or blood test/injection

Topics

Archive