Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

59,703 members • 66,768 posts

All posts for July 2018

Hayley's baby picture

Hello hello, This is Hayley95 's baby picture. Isn't he the most beautiful child? Edit by admin: sorry as per forum rules pics of children are not allowed....

Hello hello, This is Hayley95 's baby picture. Isn't he the most beautiful chil...

Feather

•6 years ago

5 Replies

Holiday worries

Hi lovely people, I am newly diagnosed with fibro. This is a amazing group and everybody seems very helpful. In just looking for some advice. In a few weeks...

Hi lovely people, I am newly diagnosed with fibro. This is a amazing group and e...

Paige1999

•6 years ago

4 Replies

Hi I am Sarah I have been suffering from fib

Hi I am Sarah I been suffering from fibromyalgia for over 20 year now .after seeing doctor after doctor then 4 years ago a doctor disanosn me with fibromyalgia...

Hi I am Sarah I been suffering from fibromyalgia for over 20 year now .after see...

Sallyspot123

•6 years ago

7 Replies

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Immune system...

Is it normal for people with fibromyalgia to have a low immune system please? Where my little girl can come home with the common cold it can annihilate me, I...

Is it normal for people with fibromyalgia to have a low immune system please? Wh...

Lorna_X

•6 years ago

6 Replies

Fibromyalgia

Hi I was diagnosed with fibromyalgia in 2017 , I work part time as a cleaner, am I entitled to claim for my condition even though I work.

Hi I was diagnosed with fibromyalgia in 2017 , I work part time as a cleaner, am...

Clare65

•6 years ago

3 Replies

Hayley95

Hi. All Hayley has delivered her baby 9.16.am.not sure of weight yet as let midwife and Hayley sort afta delivery out. I've no doubt she will message when she...

Hi. All Hayley has delivered her baby 9.16.am.not sure of weight yet as let midw...

Mumbev60

•6 years ago

12 Replies

Recent diagnosis

Hi. I was diagnosed 4 days ago with fibromyalgia. I also have reflux, hypothyroidism and until recently, i was hypo adrenal but i was cleared with this at the...

Hi. I was diagnosed 4 days ago with fibromyalgia. I also have reflux, hypothyroi...

Peder

•6 years ago

3 Replies

Newly diagnosed

Morning. I was diagnosed 4 days ago with soft tissue fibromyalgia. Ive just joined this site for advice and help. thanks

Morning. I was diagnosed 4 days ago with soft tissue fibromyalgia. Ive just join...

Peder

•6 years ago

7 Replies

EUPD

Hi, because of my pain and life changes I am feeling down. Got sent for an assessment? Who's diagnosis with in an hour, was I have emotional borderline...

Hi, because of my pain and life changes I am feeling down. Got sent for an asses...

Tra70

•6 years ago

5 Replies

New diagnoses

Hi fibromites I have been diagnosed with stage 2 COPD. Was wondering if any body in this group also has COPD too and how are they managing living with it. I'm...

Hi fibromites I have been diagnosed with stage 2 COPD. Was wondering if any body...

topsy4758

•6 years ago

4 Replies

Do you worry that pain that could have physical cause is ignored due to the fibro diagnosis?

I have been struggling with neck pain today with full on ear, head, jaw, and shoulder pains along side really loud tinnitus. I am concerned that it is due to...

I have been struggling with neck pain today with full on ear, head, jaw, and sho...

lyndsaylulu

•6 years ago

16 Replies

Pip

Pip assessment ....is the job of the assessor to make you feel like you are making it up. They ask questions then try answer for you? Then when say owe so you...

Pip assessment ....is the job of the assessor to make you feel like you are maki...

Klfhl

•6 years ago

5 Replies

DWP Medical assessment waiting times

Hi All Just wondering if there comes a time where waiting for a DWP medical becomes a cause for an official complaint? As far as I can see the wait is being...

Hi All Just wondering if there comes a time where waiting for a DWP medical beco...

KevDF

•6 years ago

15 Replies

Can I speak to female admins

Hey all. Can I speak to a female admin pelasss xx

Hayley95

•6 years ago

2 Replies

Glandular Fever

Anyone heard if Glandular Fever could 'develop' fibromyalgia? I caught this when I first started teaching over 40 years ago and heard this could have caused...

Anyone heard if Glandular Fever could 'develop' fibromyalgia? I caught this when...

Collie-Dog

•6 years ago

22 Replies

Change to pips.

Here's a strange one. I went for ESA review & was put into support group as I have fibromyalgia, severe Gout & osteoarthritis. Then went for pips assessment....

Here's a strange one. I went for ESA review & was put into support group as I ha...

Jubellie1

•6 years ago

7 Replies

Clear up The Backlog First?

Why do the DWP and 'powers that be' not clear up the backlog of all these ill people claiming PIP, waiting for Mandatory Reconsiderations, Appeals, tribunals...

Why do the DWP and 'powers that be' not clear up the backlog of all these ill p...

Collie-Dog

•6 years ago

6 Replies

Getting diagnosed

How many off you found it hard to get diagnosed. I've suffered for about 3 years now and have all the symptoms of fibro but Dr's keep ignoring me and say my...

How many off you found it hard to get diagnosed. I've suffered for about 3 years...

Cavaliermum

•6 years ago

8 Replies

New

HELLO EVERYONE Thought i would join a group to chat with people whom share this nightmare/torment or this challenging affliction. Is this any good on here....

HELLO EVERYONE Thought i would join a group to chat with people whom share this ...

SHAZ333

•6 years ago

8 Replies

In labour and exhausted

Hi all, I’m currently in labour at 30 week I’m exhausted and shattered just want to sleep. Right now I could do with some support and friends round me. I’m...

Hi all, I’m currently in labour at 30 week I’m exhausted and shattered just want...

Hayley95

•6 years ago

32 Replies

Help for fibro mum of two toddlers

Hello everyone, Im new here. I am a mum of two toddlers and I have Pernicious Anaemia, CFS, Fibro & ME. Im in so much pain and not getting the support I need....

Hello everyone, Im new here. I am a mum of two toddlers and I have Pernicious An...

Fibromumpain

•6 years ago

6 Replies

Best way to deal with a bad flare?

Hi . Was just wondering if anyone has tips on how to deal with a bad flare up of pain and fatigued. I know it’s my own fault. I’ve had 3 good weeks ( best in a...

Hi . Was just wondering if anyone has tips on how to deal with a bad flare up of...

mcglada0

•6 years ago

30 Replies

I made my first FibroSelfie (It's a thing I made up)

After I was diagnosed with fibromyalgia I was asked to put a dot and a cross on where I felt pain. The picture came out black. There is nowhere in my body...

After I was diagnosed with fibromyalgia I was asked to put a dot and a cross on ...

Feather

•6 years ago

16 Replies

capita doing home visit for PIP

I suffer from fibro myalgia, and low grade lymphoma. recovering from cancer treatment both chemo and radiotherapy in 2015. i am having a official from capitia...

I suffer from fibro myalgia, and low grade lymphoma. recovering from cancer tre...

123456asd

•6 years ago

9 Replies

visit from capitia to assess for PIP

i am recovering from cancer treatment in 2015 both chemo and radiotherapy and suffer from fibro myaglia and low grade lymphoma . i am having an assessor from...

i am recovering from cancer treatment in 2015 both chemo and radiotherapy and s...

123456asd

•6 years ago

2 Replies

Summer holiday worries

I have finally just recently got my official diagnosis of fibromyalgia, and adapting , or trying to to my new way of life and all it’s new restrictions, my...

I have finally just recently got my official diagnosis of fibromyalgia, and adap...

KimSawyer

•6 years ago

11 Replies

Rheumatologist

Hi everyone, I was diagnosed this year with Fibro, have it for many years. I’m curious if seeing a rheumatologist is really worth it? I kinda figure since much...

Hi everyone, I was diagnosed this year with Fibro, have it for many years. I’m c...

christyggh

•6 years ago

5 Replies

Need a chat feeling low and exhausted

Hi. Been a long time since I have been on here. I need a friendly chat

Hayley95

•6 years ago

24 Replies

Vitamin d deficiency

Years ago when I was told i had fibro they said i had vitamin d dificiency, I take a supplement for this but has never been mentioned again, after speaking to...

Years ago when I was told i had fibro they said i had vitamin d dificiency, I ta...

0118sara

•6 years ago

9 Replies

How does PIP work

Hi there. In 2005 I was told that I had Fibromyalgia after a bad case of bacterial tonsillitis. It caused several joints to inflame and pretty much...

Hi there. In 2005 I was told that I had Fibromyalgia after a bad case of bacteri...

Juneeyre1968

•6 years ago

12 Replies

Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

All posts for July 2018

Hayley's baby picture

Holiday worries

Hi I am Sarah I have been suffering from fib

Immune system...

Fibromyalgia

Hayley95

Recent diagnosis

Newly diagnosed

EUPD

New diagnoses

Do you worry that pain that could have physical cause is ignored due to the fibro diagnosis?

Pip

DWP Medical assessment waiting times

Can I speak to female admins

Glandular Fever

Change to pips.

Clear up The Backlog First?

Getting diagnosed

New

In labour and exhausted

Help for fibro mum of two toddlers

Best way to deal with a bad flare?

I made my first FibroSelfie (It's a thing I made up)

capita doing home visit for PIP

visit from capitia to assess for PIP

Summer holiday worries

Rheumatologist

Need a chat feeling low and exhausted

Vitamin d deficiency

How does PIP work

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