How does PIP work: Hi there. In 2005 I... - Fibromyalgia Acti...

Fibromyalgia Action UK

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How does PIP work

Juneeyre1968 profile image
12 Replies

Hi there. In 2005 I was told that I had Fibromyalgia after a bad case of bacterial tonsillitis. It caused several joints to inflame and pretty much incapacitated me for several weeks. Flare up and issues surrounding this over the following years never payed too much attention too it just worked had minimal time off work etc. Going forward to date with DDD, bulging disc and a bladder condition thrown in for good luck I’ve finall decided too apply for PIP. Filled my form in and another appointment at GP mentioned Back up paperwork about conditions including Fibro. Oh it was only ever suspected she says. Then why tell me I’ve got it if it may/may not be. Had another appointment a few days later and she did a few tests/movements and said yes I’m going to write this up as Fibromyalgia. Dr’s replied your bladder condition will cover pip for goodness sake I need too know what’s going on not which 1 will score more points.

So I had my assessment a few days ago in Sheffield really nice lady. So my question is really. How likely is it too be awarded pip if your still going through the refer process to consultants etc. I am waiting for a referral too continence clinic but she stated that fibromyalgia can be diagnosed by her there’s no sure way to diagnose even if she refers me

Thanks I’ve a feeling I’m going too be made too look stupid now as I had put on my form 2005 diagnosis for fibromyalgia not 5 days before.

Thanks

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Juneeyre1968 profile image
Juneeyre1968
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12 Replies
Maccs profile image
Maccs

Just keep your faith , it's horrible I know it's the worse feeling that they make you feel like your lieing. I feel that doctors within our region need educating about fibro ,your not far away from me I live Rotherham and had my assessment in Sheffield still awaiting to see if I've been awarded said it takes up to 4 weeks and am waiting patiently for the brown envelope. Hope you have some luck on your side, keep me updated.Fyi there is a support group called foggy friends check it out we meet monthly for a chat and support. Keep me updated 💝💐

Juneeyre1968 profile image
Juneeyre1968 in reply to Maccs

Cool thanks

Juneeyre1968 profile image
Juneeyre1968 in reply to Maccs

Hi how do I find the foggy friend group don’t wanna join a random 1 haha

Maccs profile image
Maccs in reply to Juneeyre1968

It is run by a lady called Sharon Eccles and if you search for foggy friends it should come up with Sharon name and you ring her if she not in leave a message with her husband and she gets back to you.If you leave your name and mobile number she text me.Sheis lovely and is very clued up on things. That is what iapt got me to do . If you can't find it let me know xc

Juneeyre1968 profile image
Juneeyre1968 in reply to Maccs

Found it thank you

Juneeyre1968 profile image
Juneeyre1968

Thanks

Rose54 profile image
Rose54

Hi

It does not matter what you have as long as you have had the problems for 3 months its not awared on your illnesses but on Criteria mentioned in PIP.

Good Luck

Juneeyre1968 profile image
Juneeyre1968 in reply to Rose54

Thanks

M0AL61 profile image
M0AL61ModeratorVolunteer

It is not a diagnosis that qualifies you for PIP, it's how what you have wrong affects you on a daily basis, as set out by the PIP criteria. x

Juneeyre1968 profile image
Juneeyre1968 in reply to M0AL61

Thanks it’s very confusing

releasethemagic profile image
releasethemagic

They don't really care what's wrong with you. You are assessed against a list of Daily Living and Mobility Activities and it's about what you can and can't do. The list can be found here:

pipinfo.net/#activities

Juneeyre1968 profile image
Juneeyre1968

Thanks

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