Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

59,986 members•67,154 posts

All posts for June 2024

PIp and other help?

Hello everyone. Does anyone know if you are entitled to other benefits whilst receiving pip? Thankyou

Hello everyone. Does anyone know if you are entitled to other benefits whilst re...

Bertjolly

•5 months ago

23 Replies

creative corner

Hello my fellow Fibro Warriors We have a creative corner!! Lets use it ???? Not just pics, Any craft we'd like to share with others It has been here all...

Hello my fellow Fibro Warriors We have a creative corner!! Lets use it ???? ...

Debsdelight72

•5 months ago

4 Replies

Sending birthday wishes too Mo Mo

Sending lots of warm wishes too our lovely MoMo who puts in so much of her time giving advice and support here on the forum, lots of warm hugs Yassytina xx

Sending lots of warm wishes too our lovely MoMo who puts in so much of her time ...

Yassytina

FMA UK Volunteer•5 months ago

36 Replies

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Happy Birthday Mo/Dizzytwo🎂🎉🎈

Hope you’re well enough to enjoy some birthday cake Mo & enjoy your day, as much as your health allows. Best wishes for today😊

Hope you’re well enough to enjoy some birthday cake Mo & enjoy your day, as much...

DoubleMalibu

•5 months ago

3 Replies

I’ll health retirement

Hi All I posted on here a couple of months back about I’ll health retirement with the NHS pension I got a letter back today saying I don’t qualify for...

Hi All I posted on here a couple of months back about I’ll health retirement ...

10x10

•5 months ago

15 Replies

Referral speed tip

Just got off the phone with a nice NHS phone handler, been waiting to get an appointment for non fibro issue for nearly 1 year. (oesophagus) They said "It's a...

Just got off the phone with a nice NHS phone handler, been waiting to get an app...

Health8472

•5 months ago

5 Replies

Coming off Duloxetine, trialling Venlafaxine

Hey Fibro family 👋🏼😊 I hope everybody is doing well, and if you're not, I send my love to you and wishing you to have a better day very soon! 😘 I've been...

Hey Fibro family 👋🏼😊 I hope everybody is doing well, and if you're not, I sen...

misspicky82

•5 months ago

25 Replies

Longtec

Hi everyone my doctor has just swapped me from oromorph to longtec has anyone else been on these tablets please and if so what are your thoughts thanks 😊

Hi everyone my doctor has just swapped me from oromorph to longtec has anyone el...

Mille21

•5 months ago

2 Replies

sacroiliac Joint Disorder

Hi everyone, after several visits to the doctors and not getting anywhere i found on my doctors notes ( that I’ve recently aquired) that the pain ive been...

Hi everyone, after several visits to the doctors and not getting anywhere i foun...

Bailey13

•5 months ago

18 Replies

Fybromialgia and hip replacement experience

Hi everyone ☺️ I went to see my orthopaedic surgeon the other day regarding my arthritis in my hips. As the years went by ,my arthritis got worse and more...

Hi everyone ☺️ I went to see my orthopaedic surgeon the other day regarding my...

Bakery40

•5 months ago

6 Replies

Medications

What kind of medicine is prescribed to other for your fibromylia, my medicine doesn't help me at all😥😥

What kind of medicine is prescribed to other for your fibromylia, my medicine do...

Salad_

•5 months ago

16 Replies

Any one else?

I've started drawing again, A bit rusty still, Helps with the depression, This is what I think my life in Giraffe looks like 🦒🦒🦒🦒

I've started drawing again, A bit rusty still, Helps with the depression, Th...

Debsdelight72

•5 months ago

23 Replies

PIP reward

My PIP was due to be assessed last October, I sent all the firms back before the deadline in August. I have been getting regular messages to say they will get...

My PIP was due to be assessed last October, I sent all the firms back before the...

redkite55

•5 months ago

15 Replies

pip assessor

while at my swimming session I got talking to someone who is training to be a PIP assessor so I said I have PIP mainly for my fibromyalgia to which she replied...

while at my swimming session I got talking to someone who is training to be a PI...

PAULINE15

•5 months ago

75 Replies

gluten free

hi , Have been thinking I might try gluten free diet ,been reading how it can help with Fibromyalgia symptoms . Does anyone follow a gluten free diet and has...

hi , Have been thinking I might try gluten free diet ,been reading how it can he...

Thornthorpe

•5 months ago

12 Replies

buprenorphine Patches For Fibromyalgia Head Hair Loss

Been on buprenorphine patches & have noticed head hair loss.Now changing from 5mg to 15 mg shortly as 5 mg doesn't work on me nor does 10mg. Not clumps of...

Been on buprenorphine patches & have noticed head hair loss.Now changing from 5m...

Fibroguy66

•5 months ago

9 Replies

Rheumatology Appt

Hello all, I finally have my first rheumatology appointment tomorrow morning - it’s been 6/7 long years getting to this point. Just wondering if anyone can...

Hello all, I finally have my first rheumatology appointment tomorrow morning - i...

Cazlou27

•5 months ago

7 Replies

tribunal for pip

so I have requested a tribunal for PIP case and just received a letter to say it has been adjourned because they couldn’t come to a decision and would like me...

so I have requested a tribunal for PIP case and just received a letter to say it...

Juciy123

•5 months ago

5 Replies

sleeping tablets

whats your opinion on sleeping tablets?? getting so fed up of not sleeping wondering if they might help in anyway always been against them but had enough...

whats your opinion on sleeping tablets?? getting so fed up of not sleeping wond...

dolphin21

•5 months ago

25 Replies

GP no help. /sigh.

Saw my GP today, after the 4 week appointment wait! I was armed with a list of physical ailments and internet research. He did at least apologise for not being...

Saw my GP today, after the 4 week appointment wait! I was armed with a list of p...

Health8472

•5 months ago

18 Replies

Gerry giraffe and Fibro

Not sure this will stay up, This is one of the ways I manage some of the other problems that go hand in hand with my Fibro,☺️

Not sure this will stay up, This is one of the ways I manage some of the other...

Debsdelight72

•5 months ago

7 Replies

Hot or cold cold painful feet ankles legs

Hi all, Ive not posted in this community before. It’s been suggested to me by a doc that I have fibromyalgia based purely on it not being anything else I...

Hi all, Ive not posted in this community before. It’s been suggested to me by a...

BlueOkapi

•5 months ago

19 Replies

Pip worries

Dear everyone after years of constant fighting through all changes from incapacity benefit to esa and indefinite dla to pip constantly having review...

Dear everyone after years of constant fighting through all changes from incapaci...

22pagets22

•5 months ago

5 Replies

Just found it!

🤗🤗 Sis for you, Would you like me to do another?One of the ways to cope with the Fibro

🤗🤗 Sis for you, Would you like me to do another?One of the ways to cope with t...

Debsdelight72

•5 months ago

1 Reply

Fed up and not sure what to do...

Hi no need to reply just venting, feeling a bit down dont know what to do at the moment trying to sort college things out cant afford courses i want to do, fed...

Hi no need to reply just venting, feeling a bit down dont know what to do at the...

fibrogirl41

•5 months ago

5 Replies

pip updates

Hi All, Looking to see if anyone has done this before I got rewarded the high rate of pip on both components I’m in the stages of requesting my ill...

Hi All, Looking to see if anyone has done this before I got rewarded the hig...

10x10

•5 months ago

24 Replies

A very long flare or mental stress and grief?

Hello all, I really would appreciate some advice from the wise people who understand what it is like to be living with this condition. I am not fishing for...

Hello all, I really would appreciate some advice from the wise people who under...

Alecinthesun

•5 months ago

3 Replies

Pip telephone renewal

Afyer two extentions of my pip meaning it has been nearly 5 years since my orginal award which I had to get through a appeal tribunal. I have received a text...

Afyer two extentions of my pip meaning it has been nearly 5 years since my orgin...

Oscarpops

•5 months ago

15 Replies

Exercise? Diet? Therapy? Has this helped you?

Hey there! I am on a mission to research and implement different techniques to help me lose some weight, increase my core strength and endurance. A little...

Hey there! I am on a mission to research and implement different techniques to...

UndercoverHippie

•5 months ago

5 Replies

Had cortisone injection

Went to St Luke's yesterday was in and out. First attempt missed. Second didn't really hurt just more intense pressure.The Dr was very nice and friendly. It...

Went to St Luke's yesterday was in and out. First attempt missed. Second didn't ...

Smilesalot

•5 months ago

28 Replies

Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

All posts for June 2024

PIp and other help?

creative corner

Sending birthday wishes too Mo Mo

Happy Birthday Mo/Dizzytwo🎂🎉🎈

I’ll health retirement

Referral speed tip

Coming off Duloxetine, trialling Venlafaxine

Longtec

sacroiliac Joint Disorder

Fybromialgia and hip replacement experience

Medications

Any one else?

PIP reward

pip assessor

gluten free

buprenorphine Patches For Fibromyalgia Head Hair Loss

Rheumatology Appt

tribunal for pip

sleeping tablets

GP no help. /sigh.

Gerry giraffe and Fibro

Hot or cold cold painful feet ankles legs

Pip worries

Just found it!

Fed up and not sure what to do...

pip updates

A very long flare or mental stress and grief?

Pip telephone renewal

Exercise? Diet? Therapy? Has this helped you?

Had cortisone injection

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