Change to pips.: Here's a strange one... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Change to pips.

Jubellie1 profile image
7 Replies

Here's a strange one.

I went for ESA review & was put into support group as I have fibromyalgia, severe Gout & osteoarthritis. Then went for pips assessment. Got my letter to say they have stopped my daily living allowance totally which then meant my wife lost her carers allowance for me. I put it to mandatory reconsideration. Got a letter back this week to say that I am not entitled to daily living component but have given me 10 points for mobility????? Which entitles me to £22.65 per week. My wife does everything for me in the home, from washing me, cooking for me. I have now had to take it to full appeal now. I am under so .ugh stress about all of this. Because I stood up (twice) & told the assessor that I can Hoover a room, I am told I don't need daily living component. What are Capita doing & where is peoples sense & what a waste of taxpayers money, yet again!!!!! Any clues people???? Xx xx

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Jubellie1 profile image
Jubellie1
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7 Replies
Collie-Dog profile image
Collie-Dog

So sorry for your unnecessary stress. Don't think there is any logic in this system, it seems intent on picking on vulnerable people and 'woe-betied' anyone who dares to contest them. They keep you waiting for ages but you can't generally get any answers from them, "Stick to our procedure". So frustrating when everyone knows how ill you are, why can't these assessors see this? I think we all know why!!!!!!! Good luck with your full appeal, don't know why we have to wait so long?

releasethemagic profile image
releasethemagic

Definitely go to Appeal. If you read my other posts about PIP, I describe how I set about it and how I got Enhanced Daily Living and Mobility after a long fight for it. If you are unsure why you were put in the Support Group, you need to find out as there is overlap between ESA rules and PIP. For example if you cannot walk 50 metres you qualify for Support Group and the same criterion is used for PIP Standard Rate mobility. Ask for a copy of the ESA report that the assessor wrote.

I received my reply from pip,had been on high rate DLA for both care and mobility yet the pip said I wasn’t entitled to anything. I was ready to overdose as can’t do anything for myself and also in a wheelchair,without the car I couldn’t go out. Looked through again and added my points up and I had got enough points so my son rang pip and told the woman that answered and she said a mistake may have been made and would get back to him,I can’t talk clearly because of brain damage, took a week til got back to my son and I was entitled to enhance rate on both. To think I had already planned my overdose I was fuming.

My daughter who is autistic and was receiving DLA had her claim turned down,not like that gets better and goes away!

skit profile image
skit

Very sorry for your problems with Capita. I would suggest appeal but get CAB to aid you. Most CAB have special disabilities trained people . Another tip is to join Benefits and Work website. They do brilliant guides for appeals and PIP application too. I would say they helped me get my PIP mobility points and standard care.

Best wishes

klr31 profile image
klr31

It's probably because you told them that you can hoover a room that you lost PIP. Anything you can do they use against you.

Karen

Jubellie1 profile image
Jubellie1 in reply to klr31

I agree. But I can't just sit around. I only do a room at a time & each one can take me an hour to complete task.

klr31 profile image
klr31

I know that and you know that but anything you tell them you can do they will use to say you are okay. It's best to not say anything about things you can do as their understanding is so limited around chronic illness.

Karen

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