Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

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New friends

I know not everyone would have the courage for this, but I put a small advert in the local free newspaper, if any people in the area with Fibro would like to...

I know not everyone would have the courage for this, but I put a small advert in...

veggiefan70

•3 hours ago

1 Reply

Gp text

Hi all my wife wrote a letter to the Gp got I text if I want to discuss pain management she will call me I want her to call me just nervous as that's not all...

Hi all my wife wrote a letter to the Gp got I text if I want to discuss pain man...

Pastafox

•9 hours ago

1 Reply

How to cope with CFS Fibromyalgia with Singles

Have had severe cfs for 30 years, fibro for 7 now have shingles due to stress. Just not much hope, have been in care homes for several years. Any comments...

Have had severe cfs for 30 years, fibro for 7 now have shingles due to stress. ...

Boardercolly

•21 hours ago

4 Replies

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how do you explain

Hi all, how do you explain Fibro to someone who simply doesn’t ever seem to understand how this condition affects you? How it makes you feel. I know it’s...

Hi all, how do you explain Fibro to someone who simply doesn’t ever seem to unde...

Legsandmore

•22 hours ago

16 Replies

Hi, I’m new here

Hi I just thought I’d introduce myself. I am new to this forum and to Health Unlocked. I have had ME/CFS for approx 25 years and I was diagnosed with...

Hi I just thought I’d introduce myself. I am new to this forum and to Health Un...

SleepyBabySloth

•23 hours ago

5 Replies

Random call

Hi all, I have received a called this afternoon randomly from no caller id, I thought its my doctor but it was someone saying will you be ok for pip phone...

Hi all, I have received a called this afternoon randomly from no caller id, I th...

Fshak

•3 days ago

12 Replies

Medication Help!

Hi again! This morning I posted regarding a medication I found on google which isn’t prescribed in UK! Good old Google 🤣 So I’m currently taking 2700mg of...

Hi again! This morning I posted regarding a medication I found on google which i...

JoLouise88

•3 days ago

9 Replies

Milnacipran in UK

Hi everyone, hoping everyone’s feeling well, although this weather is driving my body into the dumps 🤣! Not fun. So I need a little advice, I’m currently...

Hi everyone, hoping everyone’s feeling well, although this weather is driving my...

JoLouise88

•3 days ago

6 Replies

Change of circumstances

Hi can anyone advise me please? Living in Scotland was on HR mobility and HR care... but the benefits for pip/dla have now migrated over to ADP jan25. In...

Hi can anyone advise me please? Living in Scotland was on HR mobility and HR car...

pinot

•5 days ago

13 Replies

amitriptyline side effects after stopping them

I was on 10mg of amitriptyline for 6 weeks for sciatica. As it’s a low dose I didn’t really ween myself off them for long enough I don’t think. Just over a...

I was on 10mg of amitriptyline for 6 weeks for sciatica. As it’s a low dose I di...

Black16

•6 days ago

11 Replies

Pip telephone assessment cancelled

Hi I ve had a pip assessment today on the phone but the assessor had to cancelled after 10 minutes claiming I'm not fit for an interview on my own due to my...

Hi I ve had a pip assessment today on the phone but the assessor had to cancelle...

zaklove40

•6 days ago

7 Replies

Love!!

Happy valentine days guys!! I hope you managed to show yourself nothing but Love and compassion for YOU today 🥰🥰🥰

Happy valentine days guys!! I hope you managed to show yourself nothing but Love...

Prettywings

•6 days ago

3 Replies

Headaches

Today was hit with pain from the waist down & thumping headache & fatigue... Is this fibromyalgia? Or a virus help please 🙏

Today was hit with pain from the waist down & thumping headache & fatigue... Is ...

KBACS

•7 days ago

5 Replies

Missing test results?

Hi, Hope everyone is doing ok. I have had a test result go missing at a hospital, same with my referral. As far as I'm aware the gp has emailed the hospital...

Hi, Hope everyone is doing ok. I have had a test result go missing at a hospi...

CookieMunch22

•7 days ago

13 Replies

Sending love hugs and support...

Hi psstafox...1st thing... If you can manage to ride the storm through winter, it does get easier during the other months 💙 2nd.. Noticed your name... If you...

Hi psstafox...1st thing... If you can manage to ride the storm through winter, i...

Sunseaslim123

•7 days ago

1 Reply

knickers for comfort because fibromyalgia makes us vulnerable and we have to use the bathroom frequently

https://healthunlocked.com/fibromyalgia-action-uk/posts/151212546/toilet-needs?responses=151722515 I wrote a reply but then saw it was posted 6 months ago so...

https://healthunlocked.com/fibromyalgia-action-uk/posts/151212546/toilet-needs?r...

Suffering24

•7 days ago

3 Replies

teeth & fibromyalgia

hi has anyone had problems with their teeth . I have awful toothache and my dentist can’t see even on XRay which tooth or why I have toothache. It’s a dull...

hi has anyone had problems with their teeth . I have awful toothache and my dent...

Suffering24

•8 days ago

15 Replies

no walk today!! Boooo

well I've not managed to get out walking today as I have a cold 🤒, I'm bit gutted but I guess its best I rest! This cold has made me feel extremely tired, I'm...

well I've not managed to get out walking today as I have a cold 🤒, I'm bit gutt...

Prettywings

•8 days ago

4 Replies

Managed my flare up

I posted in November regarding my massive flare up which made me feel miserable. I felt as if my life all be it with Fibro was over. I blamed myself which it...

I posted in November regarding my massive flare up which made me feel miserable....

Fibroenemy

•8 days ago

3 Replies

hitting targets !!

yayyy I’m hitting my walking targets , had another good walk yesterday even though it was raining and bloody freezing 🥶 lol , pushed through it , got a slight...

yayyy I’m hitting my walking targets , had another good walk yesterday even thou...

Prettywings

•9 days ago

12 Replies

pip assessment

Hi everyone , hope everyone is doing well, I know the first time I posted I was doing great working (nurse) . By doing well I meant go to work running late...

Hi everyone , hope everyone is doing well, I know the first time I posted I ...

Noura1985

•10 days ago

16 Replies

Worried about my cousin's winter wedding

My cousin is getting married in just over a week's time. And, I am dreading it. She is getting married in an old church that is very cold. And, my mother told...

My cousin is getting married in just over a week's time. And, I am dreading it. ...

Twin4Life

•10 days ago

12 Replies

Google pain points

Google pain points😀

Bantamdyno

•11 days ago

1 Reply

Radio Frequency Lesioning Lower spine

Hi all hope your having the best day you can, 💜🦋I'm due to have a procedure on lower spine mid FEB. (facett joint Rhizolysis/Radio Frequency Lesioning...

Hi all hope your having the best day you can, 💜🦋I'm due to have a procedure on...

hightree

•11 days ago

9 Replies

Fentanyl Patches

hi I have been suffering with Fibromyalgia for over 15 years and currently taking Zomorph and Oramorph. Does anyone know if a GP can prescribe Fentanyl...

hi I have been suffering with Fibromyalgia for over 15 years and currently taki...

Marky

•11 days ago

21 Replies

9Fibromyalgia and racing a motocross bike

Good morning everyone, I have a rather odd question. So, before my accident I used to race motocross bikes at a semi-professional level and then since then...

Good morning everyone, I have a rather odd question. So, before my accident I us...

Girl154

•12 days ago

7 Replies

FIBRO!!!!

hi I was diagnosed with fibromyalgia in 2023 along with adult ADHD, life has been rough since then as I feel I can’t work at the moment due I get really...

hi I was diagnosed with fibromyalgia in 2023 along with adult ADHD, life has b...

Prettywings

•12 days ago

4 Replies

reynauds

for a few months i have had problems with my hands. I am a online shopper in a supermarket. I only shop the 2 coldest parts of the store frozen and chilled. My...

for a few months i have had problems with my hands. I am a online shopper in a s...

Paige1999

•13 days ago

11 Replies

Fibro and endometriosis

Thank you all who replied to me about the connection between the two conditions...All these years with both and I never connected the two. Thank you again and...

Thank you all who replied to me about the connection between the two conditions....

Trikki

•13 days ago

Fibro and Endometriosis

I am asking for a young friend of mine who has been diagnosed with endometriosis and has been told that she also has fibromyalgia as they often go hand in...

I am asking for a young friend of mine who has been diagnosed with endometriosis...

Trikki

•14 days ago

13 Replies

Write a post or ask a question

Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

New friends

Gp text

How to cope with CFS Fibromyalgia with Singles

how do you explain

Hi, I’m new here

Random call

Medication Help!

Milnacipran in UK

Change of circumstances

amitriptyline side effects after stopping them

Pip telephone assessment cancelled

Love!!

Headaches

Missing test results?

Sending love hugs and support...

knickers for comfort because fibromyalgia makes us vulnerable and we have to use the bathroom frequently

teeth & fibromyalgia

no walk today!! Boooo

Managed my flare up

hitting targets !!

pip assessment

Worried about my cousin's winter wedding

Google pain points

Radio Frequency Lesioning Lower spine

Fentanyl Patches

9Fibromyalgia and racing a motocross bike

FIBRO!!!!

reynauds

Fibro and endometriosis

Fibro and Endometriosis

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