Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

59,982 members•67,144 posts

Sort posts by:

Strange post

its vanished now. But did anyone see that odd post by someone who was indicating they had self diagnosed themselves with Fibro and were convinced they had...

its vanished now. But did anyone see that odd post by someone who was indicating...

Scooterz2

•13 minutes ago

1 Reply

I am still scooterz just with a 2 on the end

hey all I was on here as scooterz but for some odd reason my account didn’t recognise my email and I was locked out then couldn’t regain my access! dumb tech...

hey all I was on here as scooterz but for some odd reason my account didn’t re...

Scooterz2

•6 hours ago

2 Replies

Pulsating in jaw???

What's this all about ? Jaw pulsating ? I'm suffering with extreme fatigue & body vibrations ? Has this triggered the jaw ? Help im so frustrated 😠

What's this all about ? Jaw pulsating ? I'm suffering with extreme fatigue & bod...

KBACS

•1 day ago

Be the first to reply

Want to take advantage of all our features? Just log in!

Cramp ?

I have only been diagnoised with fibro for about 2 years, quite frankly I am pretty much been "left" to get on with it ! I have a question . Do you have cramp...

I have only been diagnoised with fibro for about 2 years, quite frankly I am pre...

Piggy69

•1 day ago

12 Replies

Groin ache from walking funny...

Hi i know ive posted before, ive been walking a bit funny because the back of my leg has felt as if i have cramp in it and the muscles are tense and its made...

Hi i know ive posted before, ive been walking a bit funny because the back of my...

fibrogirl41

•1 day ago

6 Replies

Muscle spasms

I have found my legs are starting to jurk more now and not restless leg as I have that. But more like a spasm. Is this part of fibromyalgia please

I have found my legs are starting to jurk more now and not restless leg as I hav...

Africanmonkey

•2 days ago

9 Replies

Jaw pain and slightly swollen cheek

Hi does anyone get jaw pain I also get earache and a slight swelling to my face, I’ve had my teeth checked and it’s not that, I’ve had bloods taken and a scan...

Hi does anyone get jaw pain I also get earache and a slight swelling to my face,...

Mires

•2 days ago

11 Replies

anything positive?

we all know 99.9% of the time Fibro can be sh***y for us, but is there anything positive Fibro has taught you? for me, it’s been that if I was to be diagnosed...

we all know 99.9% of the time Fibro can be sh***y for us, but is there anything ...

Scooterz

•2 days ago

29 Replies

High ferritin and muscle pain question

I need some advise please. I was diagnosed with fibromyalgia 20 years ago. I had my iron checked and ferritin keeps on increasing while the rest are normal or...

I need some advise please. I was diagnosed with fibromyalgia 20 years ago. I had...

raaf

•3 days ago

6 Replies

coping with reduced mobility

hello everyone I hope all have had a manageable day. I just wanted to see how many suffered are using mobility scooters. I was diagnosed with fibromyalgia 4...

hello everyone I hope all have had a manageable day. I just wanted to see how ...

OrangeFlame

•4 days ago

11 Replies

Home at last!

So here it is On Friday I had my dental surgery, My gums were cut open and any roots I had left were removed as well as the last 2 teeth, I was meant to go...

So here it is On Friday I had my dental surgery, My gums were cut open and any...

Debsdelight72

•4 days ago

21 Replies

terrible acid relux

has anyone got any advice on acid reflux , had it constantly for about 4 months , Doctors advice go back on antidepressants which after 10 years managed to...

has anyone got any advice on acid reflux , had it constantly for about 4 months ...

Thornthorpe

•5 days ago

28 Replies

Claim review

Has anyone had a claim review for their universal credit? I'm really worried as from what I have heard from news reports is that they question every little...

Has anyone had a claim review for their universal credit? I'm really worried as ...

Lilbear89

•5 days ago

6 Replies

No One Will Help Me

I have been trying to get help for almost a year now, and I feel like I'm just a parcel in a game of NHS pass the parcel. I'm being passed from person...

I have been trying to get help for almost a year now, and I feel like I'm just a...

Kat791

•5 days ago

11 Replies

Stem Cells for OA Expereince

*permission granted from FMA UK head office* Hi all, Tomos Morgan here, I work for the BBC as a news correspondent and am currently researching stem cells...

*permission granted from FMA UK head office* Hi all, Tomos Morgan here, I wo...

TMNeBbc

•5 days ago

9 Replies

WCA Assessment

Hi all, just anxiously waiting for my phone assessment in next 2 hours , so stressed and worried, don’t know what to do? Any suggestions and advice please 🙏...

Hi all, just anxiously waiting for my phone assessment in next 2 hours , so stre...

Fshak

•5 days ago

5 Replies

Thanks

A big thank you to you all for being concerned about me. I seem to feel a bit better now after 2 drips in my arms. But I still had to go to work.

A big thank you to you all for being concerned about me. I seem to feel a bit be...

Africanmonkey

•6 days ago

1 Reply

Feeling like a child

Folks today I have broken down as the pain is to much for me but I have noticed I seem to be getting more and more like a young boy. I crave comfort and hugs...

Folks today I have broken down as the pain is to much for me but I have noticed ...

Africanmonkey

•7 days ago

42 Replies

Finally!!!

I have, after almost 15 months got a tribunal date for my universal credit.I was just wondering if anyone has any tips that may benefit me. Thanks in advance!

I have, after almost 15 months got a tribunal date for my universal credit.I was...

Littlefighter82

•7 days ago

7 Replies

Trigeminal Neuralgia

Hello, I hope it is ok to post on this hub. I was diagnosed with Trigeminal Neuralgia today and put on 100mg of carbamazepine (Tegretol) which the GP wants to...

Hello, I hope it is ok to post on this hub. I was diagnosed with Trigeminal Neu...

Mimine

•7 days ago

11 Replies

hey hey!

I’m new here & have Fibro. I was reading up on Savella as an up and coming medication for Fibro. Has anybody been on this and found it beneficial? Was...

I’m new here & have Fibro. I was reading up on Savella as an up and coming medi...

Scooterz

•8 days ago

26 Replies

blue Badge

once again been refused a blue badge ! Do these occupational therapists not look into factor of fibromyalgia, heart disease and osteoarthritis when making...

once again been refused a blue badge ! Do these occupational therapists not look...

Lorilal

•8 days ago

13 Replies

nearly 5 years now, still none the wiser..

So its been nearly 5 years since i had pain start on my right side below ribs, since then pain has increased and expanded ( now includes whole pelvis, low...

So its been nearly 5 years since i had pain start on my right side below ribs, s...

rubine7521

•9 days ago

10 Replies

Toothache

Hiya 😊 I hope you are all doing okay. I have a question about toothache. I was up most of last night with toothache which feels like an infection for which I...

Hiya 😊 I hope you are all doing okay. I have a question about toothache. I was...

Pony240852

•10 days ago

19 Replies

Does anyone else really struggle with fatigue?

Hi, I'm new to all this. I was diagnosed with Fibro and CFS about six months ago, and one of the biggest things I've been struggling recently is this...

Hi, I'm new to all this. I was diagnosed with Fibro and CFS about six months ago...

PennyInPain

•11 days ago

7 Replies

Walk the KiltWalk for FMA UK!

It's time to don the tartan and get ready for Kiltwalk 2025! 👉 Kiltwalk returns to Glasgow, Aberdeen, Dundee, and Edinburgh in 2025. Sign up and walk the...

It's time to don the tartan and get ready for Kiltwalk 2025! 👉 Kiltwalk return...

Lynda_FMA_UK

Moderator•11 days ago

Be the first to reply

osteoarthritis

I’ve been diagnosed with osteoarthritis and ?fibromyalgia. My pain is down my right side but I’ve recently developed a pain in my left groin which is also very...

I’ve been diagnosed with osteoarthritis and ?fibromyalgia. My pain is down my ri...

Lindah123

•11 days ago

4 Replies

Blue Badge

Hi has anyone been turned down for a blue badge & successfully challenged it? I have fibromyalgia osteoarthritis & stenosis of the spine. I’m having physio...

Hi has anyone been turned down for a blue badge & successfully challenged it? I ...

Booksgranny

•11 days ago

4 Replies

pacing app

Moderators I hope this is allowed - I’m in no way affiliated with this app, but wanted to share it so people know it’s there. It helps with tracking and...

Moderators I hope this is allowed - I’m in no way affiliated with this app, but ...

LauLau212

•12 days ago

37 Replies

B12 and tiredness

Hi all, been feeling more tired of late, had a blood test recently. Went from ca. 550 to 230 in 6 months (the ok levels are 200 - 900).Gp never said that...

Hi all, been feeling more tired of late, had a blood test recently. Went from ca...

Health8472

•12 days ago

1 Reply

Write a post or ask a question

Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

Strange post

I am still scooterz just with a 2 on the end

Pulsating in jaw???

Cramp ?

Groin ache from walking funny...

Muscle spasms

Jaw pain and slightly swollen cheek

anything positive?

High ferritin and muscle pain question

coping with reduced mobility

Home at last!

terrible acid relux

Claim review

No One Will Help Me

Stem Cells for OA Expereince

WCA Assessment

Thanks

Feeling like a child

Finally!!!

Trigeminal Neuralgia

hey hey!

blue Badge

nearly 5 years now, still none the wiser..

Toothache

Does anyone else really struggle with fatigue?

Walk the KiltWalk for FMA UK!

osteoarthritis

Blue Badge

pacing app

B12 and tiredness

Search posts

Pinned Posts

Latest poll

What changes would you like to make in 2020 to improve your health and quality of life?

Topics

Archive