Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

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March Newsletter highlights

Don't forget to sign up to our news letter: https://newsletter.fmauk.org/signup •App Review: Explore the pros and cons of the Visible App vs. the wearable...

Don't forget to sign up to our news letter: https://newsletter.fmauk.org/signup ...

desquinn

Partner•23 hours ago

1 Reply

Travelling Pain 🤔

Hey Fibro ChumsMany many years ago Fibro started in my arms , legs feet and hands. This was for so many years, then it travelled to my Neck, Shoulders and head...

Hey Fibro ChumsMany many years ago Fibro started in my arms , legs feet and hand...

Frenchi88

•1 day ago

9 Replies

Welfare Cuts Scope Campaign

I do not post often but like most people in this community I am concerned by the welfare cuts. I wanted to make everyone aware that Scope has a campaign with...

I do not post often but like most people in this community I am concerned by the...

Eclipsemidnight

•1 day ago

8 Replies

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Walk In The Woods.

Hey fybro family, I hope everyone is keeping as well as they can. I went for a lovely walk in the woods yesterday with my dog Ziggy, the spring flowers were...

Hey fybro family, I hope everyone is keeping as well as they can. I went for a ...

Dreamgreen

•2 days ago

5 Replies

FIBROMYALGIA

IT MAKES ME SO AWFUL AND SCARED AND STIFF AND SICK IN TUMMY. GLARE SENSITIVITY, LIGHT NOISE SMELL SENSITIVITY. ACHING ALL OVER CAN FEEL LIKE LIFTING AND MOVING...

IT MAKES ME SO AWFUL AND SCARED AND STIFF AND SICK IN TUMMY. GLARE SENSITIVITY, ...

Praise56

•4 days ago

12 Replies

Welfare Reforms

Good morning to all. How is everyone feeling about these welfare reforms? Its unfair that they are targeting us and playing with our lives trying to send...

Good morning to all. How is everyone feeling about these welfare reforms? Its un...

Nahr79

•4 days ago

35 Replies

pain points

I notice 4 years ago people posted about pain points, has anyone done anything about them since then🤔

I notice 4 years ago people posted about pain points, has anyone done anything a...

Bantamdyno

•5 days ago

4 Replies

Emotions

Hi Brothers and Sisters is anyone else on emotional rollacoaster 1 minI feel like am going to cry then I feel angry sometimes I feel high Constantly feeling...

Hi Brothers and Sisters is anyone else on emotional rollacoaster 1 minI feel li...

Pastafox

•5 days ago

10 Replies

What to expect from Pain Clinic?

Hi, I finally got an appointment through for next week for the Pain Clinic here in London (at Homerton Hospital). I want to make sure I get the most out of...

Hi, I finally got an appointment through for next week for the Pain Clinic here ...

NaturalDyer

•6 days ago

14 Replies

Is this fibromyalgia or something else?

I have been diagnosed with fibromyalgia but the last year or so my symptoms have been getting worse and I'm told fibromyalgia isn't a progressive condition and...

I have been diagnosed with fibromyalgia but the last year or so my symptoms have...

Pinkgalinthelakes

•6 days ago

20 Replies

Normal blood pressure in morning high at night

My blood pressure is usually normal in the morning but always high at night over 140-150/6.3 I take Candesartan am. and pm. Amlodipine at noon it has...

My blood pressure is usually normal in the morning but always high at night over...

Demeb4dat

•7 days ago

Be the first to reply

Loosing weight journey

Hi everyone I started my journey to loose weight and is damn hard, In order to loose weight I had to reduce my dosage of treatment because apparently the...

Hi everyone I started my journey to loose weight and is damn hard, In order to...

Alice2004

•7 days ago

12 Replies

Oh Chuff

I knew it was too good to be true! Sunday - No sleep at all until Mon, Hubby brought some lunch up and had a chat (about cats again😍) Encouraged me to have...

I knew it was too good to be true! Sunday - No sleep at all until Mon, Hubby br...

Debsdelight3108

•8 days ago

2 Replies

Need advice

I would be grateful for some advice please. I work in healthcare and this requires 12 hour shifts. I have found nights are better for me due to insomnia. I...

I would be grateful for some advice please. I work in healthcare and this requir...

Lbudding27

•8 days ago

11 Replies

Sleep (joke)

Hi Brothers and Sisters anyone else find just as getting settled down to sleep I need to pee am going anything upto 10 x a night During the day is worse...

Hi Brothers and Sisters anyone else find just as getting settled down to sleep ...

Pastafox

•9 days ago

25 Replies

HMPRRRRR

Good Morning you Lovely lot,xxxxxxxx I have had to change all my stuff because I'm crud at computer stuff, Found it easier to just start again, I WAS...

Good Morning you Lovely lot,xxxxxxxx I have had to change all my stuff because ...

Debsdelight3108

•9 days ago

8 Replies

Universal Credit and LCW

Well guys, at last. After nearly 3 years of fighting. I have finally got it! LCWRA! This news couldn't have come at a better moment, have just come out of a...

Well guys, at last. After nearly 3 years of fighting. I have finally got it! LCW...

Littlefighter82

•10 days ago

14 Replies

My bag

Hi Brothers and Sisters Was looking to delete text messages when i reread the 1 from Dr's re phone call I got my date wrong it's this month not last Happy to...

Hi Brothers and Sisters Was looking to delete text messages when i reread the 1 ...

Pastafox

•12 days ago

1 Reply

Itching Skin

Hello fybro family, I hope everyone is keeping as well as they can. I need a bit of advice please...I have a new symptom which is itching all over my body, its...

Hello fybro family, I hope everyone is keeping as well as they can. I need a bit...

Dreamgreen

•13 days ago

26 Replies

Pain.

Pain and discomfort all of the time and the only thing I have found is that everyone's different who suffer with fybromialgia.

Pain and discomfort all of the time and the only thing I have found is that ever...

Bigfella76

•13 days ago

5 Replies

dry nose

hi , I started with a really dry nose about 5 weeks ago very sore with large scabs inside , had appointment with practitioner nurse at surgery after asking at...

hi , I started with a really dry nose about 5 weeks ago very sore with large sca...

Thornthorpe

•13 days ago

14 Replies

Tingling Head, Face and Legs.

Hi, I hope you are all hanging on in there! I am a newbie here and wanted to chat with like minded people. I am feeling so poorly. I am having constant...

Hi, I hope you are all hanging on in there! I am a newbie here and wanted to ...

bubbatetley

•14 days ago

11 Replies

Moving abroad

Hi guys I have just come back from 12 weeks in Lanzarote my pain was much better my question can I still Claim Pip if I went for residential. I don't want to...

Hi guys I have just come back from 12 weeks in Lanzarote my pain was much better...

Tipton11a

•14 days ago

14 Replies

No rheumatology appointment

My GP referred me to rheumatology in December for an 'official' fibromyalgia diagnosis and POTS investigation. I was on Patient Access yesterday to check the...

My GP referred me to rheumatology in December for an 'official' fibromyalgia dia...

NaturalDyer

•15 days ago

33 Replies

Pip report

Hi I have received an text message about my pip assessment from dwp they have received my report from Heather professional and it will take them 6 weeks to...

Hi I have received an text message about my pip assessment from dwp they have r...

zaklove40

•15 days ago

3 Replies

hearing tribunal

this hearing was postponed. However when I go for updates it still says the hearing date which was postponed. When it was adjourned this first time it gave the...

this hearing was postponed. However when I go for updates it still says the hear...

Juciy123

•17 days ago

1 Reply

excellent article on using HPE for CFS. I’m currently trialling it!

https://www.jstage.jst.go.jp/article/bpb/39/5/39_b15-00623/_html/-char/en

Mammaelf

•18 days ago

1 Reply

London Resilience Clinic

I’m really struggling at the moment and have come across Dr Danni Gordon’s clinic for fibromyalgia on line. Has anyone used this clinic and what was the...

I’m really struggling at the moment and have come across Dr Danni Gordon’s clini...

glochessum

•18 days ago

1 Reply

High AST/ALT levels.

Hi. This is my first time here. 🤗My GP send me for an annual blood test. My liver function test results are worrying me. My ALT level is 83. And my AST is...

Hi. This is my first time here. 🤗My GP send me for an annual blood test. My li...

xSunnysuex

•19 days ago

12 Replies

PIP and lack of NHS for fibro

Hello there, This is a bit of a rant, and a question combined, so please accept my apologies in advance. I feel really down in the dumps and I would love to...

Hello there, This is a bit of a rant, and a question combined, so please acce...

Alecinthesun

•20 days ago

25 Replies

Write a post or ask a question

Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

March Newsletter highlights

Travelling Pain 🤔

Welfare Cuts Scope Campaign

Walk In The Woods.

FIBROMYALGIA

Welfare Reforms

pain points

Emotions

What to expect from Pain Clinic?

Is this fibromyalgia or something else?

Normal blood pressure in morning high at night

Loosing weight journey

Oh Chuff

Need advice

Sleep (joke)

HMPRRRRR

Universal Credit and LCW

My bag

Itching Skin

Pain.

dry nose

Tingling Head, Face and Legs.

Moving abroad

No rheumatology appointment

Pip report

hearing tribunal

excellent article on using HPE for CFS. I’m currently trialling it!

London Resilience Clinic

High AST/ALT levels.

PIP and lack of NHS for fibro

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