Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

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leg pain

hi I’ve been suffering with really bad calf cramp and spasms for around a year now doctors put me on pramapexole for restless legs. I used to feel it on and...

hi I’ve been suffering with really bad calf cramp and spasms for around a year n...

Paula1jj

•6 hours ago

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Who else struggles to stay awake during the day?

When I'm active and moving around, I don't feel tired at all. However, the moment I sit down, it's like my body takes it as a signal to shut down. Sometimes, I...

When I'm active and moving around, I don't feel tired at all. However, the momen...

LucyW75

•10 hours ago

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There's Hope.

Thankyou to everyone who as replied to me. Nothing is easy to do. So I appreciate all the advice . Hopefully after Thursday getting help from citizens advice....

Thankyou to everyone who as replied to me. Nothing is easy to do. So I appreciat...

Taylor68

•15 hours ago

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Telephone PIP assessment tomorrow

Hey Fibro family 👋🏼 Hope everyone is doing as well as can be 😊 and for those who are having a bad day, I'm sending lots of hugs to you all 🤗🤗🤗🤗 So I...

Hey Fibro family 👋🏼 Hope everyone is doing as well as can be 😊 and for those...

misspicky82

•15 hours ago

6 Replies

Can't cope with fighting the care system

I have autism, mental health,seizures and fibro.I have been having carers coming to my flat for several years. I had a crisis early this year resulting in...

I have autism, mental health,seizures and fibro.I have been having carers comin...

kettlejug

•2 days ago

1 Reply

FND and scared of future.

Hi, haven't posted for a very very long time. I have CFS/Fibromyalgia and now FND. I'm so scared of my future as I know I will not be able to continue working....

Hi, haven't posted for a very very long time. I have CFS/Fibromyalgia and now FN...

Arlo31

•2 days ago

3 Replies

P I P decision

Hi, any advice please , to help my decision for PIP. Its just been turned down. I have osteoarthritis and fibromyalgia now for over 20 years, I applied as a...

Hi, any advice please , to help my decision for PIP. Its just been turned down....

Taylor68

•2 days ago

19 Replies

PIp and other help?

Hello everyone. Does anyone know if you are entitled to other benefits whilst receiving pip? Thankyou

Hello everyone. Does anyone know if you are entitled to other benefits whilst re...

Bertjolly

•3 days ago

22 Replies

creative corner

Hello my fellow Fibro Warriors We have a creative corner!! Lets use it ???? Not just pics, Any craft we'd like to share with others It has been here all...

Hello my fellow Fibro Warriors We have a creative corner!! Lets use it ???? ...

Debsdelight72

•3 days ago

4 Replies

Sending birthday wishes too Mo Mo

Sending lots of warm wishes too our lovely MoMo who puts in so much of her time giving advice and support here on the forum, lots of warm hugs Yassytina xx

Sending lots of warm wishes too our lovely MoMo who puts in so much of her time ...

Yassytina

FMA UK Volunteer•4 days ago

36 Replies

Happy Birthday Mo/Dizzytwo🎂🎉🎈

Hope you’re well enough to enjoy some birthday cake Mo & enjoy your day, as much as your health allows. Best wishes for today😊

Hope you’re well enough to enjoy some birthday cake Mo & enjoy your day, as much...

DoubleMalibu

•4 days ago

3 Replies

I’ll health retirement

Hi All I posted on here a couple of months back about I’ll health retirement with the NHS pension I got a letter back today saying I don’t qualify for...

Hi All I posted on here a couple of months back about I’ll health retirement ...

10x10

•5 days ago

15 Replies

Referral speed tip

Just got off the phone with a nice NHS phone handler, been waiting to get an appointment for non fibro issue for nearly 1 year. (oesophagus) They said "It's a...

Just got off the phone with a nice NHS phone handler, been waiting to get an app...

Health8472

•5 days ago

5 Replies

Coming off Duloxetine, trialling Venlafaxine

Hey Fibro family 👋🏼😊 I hope everybody is doing well, and if you're not, I send my love to you and wishing you to have a better day very soon! 😘 I've been...

Hey Fibro family 👋🏼😊 I hope everybody is doing well, and if you're not, I sen...

misspicky82

•5 days ago

26 Replies

Longtec

Hi everyone my doctor has just swapped me from oromorph to longtec has anyone else been on these tablets please and if so what are your thoughts thanks 😊

Hi everyone my doctor has just swapped me from oromorph to longtec has anyone el...

Mille21

•5 days ago

2 Replies

sacroiliac Joint Disorder

Hi everyone, after several visits to the doctors and not getting anywhere i found on my doctors notes ( that I’ve recently aquired) that the pain ive been...

Hi everyone, after several visits to the doctors and not getting anywhere i foun...

Bailey13

•5 days ago

18 Replies

Fybromialgia and hip replacement experience

Hi everyone ☺️ I went to see my orthopaedic surgeon the other day regarding my arthritis in my hips. As the years went by ,my arthritis got worse and more...

Hi everyone ☺️ I went to see my orthopaedic surgeon the other day regarding my...

Bakery40

•5 days ago

6 Replies

Medications

What kind of medicine is prescribed to other for your fibromylia, my medicine doesn't help me at all😥😥

What kind of medicine is prescribed to other for your fibromylia, my medicine do...

Salad_

•6 days ago

16 Replies

Any one else?

I've started drawing again, A bit rusty still, Helps with the depression, This is what I think my life in Giraffe looks like 🦒🦒🦒🦒

I've started drawing again, A bit rusty still, Helps with the depression, Th...

Debsdelight72

•7 days ago

23 Replies

PIP reward

My PIP was due to be assessed last October, I sent all the firms back before the deadline in August. I have been getting regular messages to say they will get...

My PIP was due to be assessed last October, I sent all the firms back before the...

redkite55

•8 days ago

14 Replies

pip assessor

while at my swimming session I got talking to someone who is training to be a PIP assessor so I said I have PIP mainly for my fibromyalgia to which she replied...

while at my swimming session I got talking to someone who is training to be a PI...

PAULINE15

•8 days ago

70 Replies

gluten free

hi , Have been thinking I might try gluten free diet ,been reading how it can help with Fibromyalgia symptoms . Does anyone follow a gluten free diet and has...

hi , Have been thinking I might try gluten free diet ,been reading how it can he...

Thornthorpe

•9 days ago

11 Replies

buprenorphine Patches For Fibromyalgia Head Hair Loss

Been on buprenorphine patches & have noticed head hair loss.Now changing from 5mg to 15 mg shortly as 5 mg doesn't work on me nor does 10mg. Not clumps of...

Been on buprenorphine patches & have noticed head hair loss.Now changing from 5m...

Fibroguy66

•9 days ago

6 Replies

Rheumatology Appt

Hello all, I finally have my first rheumatology appointment tomorrow morning - it’s been 6/7 long years getting to this point. Just wondering if anyone can...

Hello all, I finally have my first rheumatology appointment tomorrow morning - i...

Cazlou27

•10 days ago

7 Replies

tribunal for pip

so I have requested a tribunal for PIP case and just received a letter to say it has been adjourned because they couldn’t come to a decision and would like me...

so I have requested a tribunal for PIP case and just received a letter to say it...

Juciy123

•10 days ago

5 Replies

sleeping tablets

whats your opinion on sleeping tablets?? getting so fed up of not sleeping wondering if they might help in anyway always been against them but had enough...

whats your opinion on sleeping tablets?? getting so fed up of not sleeping wond...

dolphin21

•11 days ago

25 Replies

GP no help. /sigh.

Saw my GP today, after the 4 week appointment wait! I was armed with a list of physical ailments and internet research. He did at least apologise for not being...

Saw my GP today, after the 4 week appointment wait! I was armed with a list of p...

Health8472

•11 days ago

18 Replies

Gerry giraffe and Fibro

Not sure this will stay up, This is one of the ways I manage some of the other problems that go hand in hand with my Fibro,☺️

Not sure this will stay up, This is one of the ways I manage some of the other...

Debsdelight72

•12 days ago

7 Replies

Hot or cold cold painful feet ankles legs

Hi all, Ive not posted in this community before. It’s been suggested to me by a doc that I have fibromyalgia based purely on it not being anything else I...

Hi all, Ive not posted in this community before. It’s been suggested to me by a...

BlueOkapi

•12 days ago

19 Replies

Pip worries

Dear everyone after years of constant fighting through all changes from incapacity benefit to esa and indefinite dla to pip constantly having review...

Dear everyone after years of constant fighting through all changes from incapaci...

22pagets22

•12 days ago

5 Replies

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Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

leg pain

Who else struggles to stay awake during the day?

There's Hope.

Telephone PIP assessment tomorrow

Can't cope with fighting the care system

FND and scared of future.

P I P decision

PIp and other help?

creative corner

Sending birthday wishes too Mo Mo

Happy Birthday Mo/Dizzytwo🎂🎉🎈

I’ll health retirement

Referral speed tip

Coming off Duloxetine, trialling Venlafaxine

Longtec

sacroiliac Joint Disorder

Fybromialgia and hip replacement experience

Medications

Any one else?

PIP reward

pip assessor

gluten free

buprenorphine Patches For Fibromyalgia Head Hair Loss

Rheumatology Appt

tribunal for pip

sleeping tablets

GP no help. /sigh.

Gerry giraffe and Fibro

Hot or cold cold painful feet ankles legs

Pip worries

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