Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

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PIP review

Sent back my pip review form Tuesday. Since my initial claim I have been diagnosed with Fibromyalgia and rheumatoid arthritis. Let’s hope it all goes well,...

Sent back my pip review form Tuesday. Since my initial claim I have been diagno...

•19 hours ago

Hello

Hello Thought I’d post since it’s been a while. Just wanted to say all your comments and kindness does not go without notice, just sometimes I really can’t be...

Hello Thought I’d post since it’s been a while. Just wanted to say all your com...

•2 days ago

PinkMarshmallow

Hi. I've just rejoined after a few years & would love to be part of the group again. I am struggling as we all are with this terrible Fibro. Yesterday,...

Hi. I've just rejoined after a few years & would love to be part of the group ag...

PinkMarshmallow

•2 days ago

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Fibromyalgia

Hi I’m 25 I got diagnosed with fibromyalgia a couple of years ago and I feel as though I have just been left without no help I’m in agony everyday find it...

Hi I’m 25 I got diagnosed with fibromyalgia a couple of years ago and I feel as ...

•2 days ago

Eye pain

I was diagnosed with ME in 1993, but have since been diagnosed with fibromyalgia, so it might have been that all along. Recently I have been suffering with...

I was diagnosed with ME in 1993, but have since been diagnosed with fibromyalgia...

•2 days ago

Has anyone been allowed to complete PIP application electronically?

Hi all, I'm having a second go at applying for PIP. I asked for the electronic version of the application form to be sent to me and the agent I spoke to gave a...

Hi all, I'm having a second go at applying for PIP. I asked for the electronic v...

•3 days ago

Pain Clinic

Hi all. Just an update. Been to the pain clinic and was offered an I.V. lidocaine infusion. Had it done last Friday, and was hoping, praying that something...

Hi all. Just an update. Been to the pain clinic and was offered an I.V. lidocain...

•4 days ago

Persistence

After weekly visits to my GP’s for months with one symptom after another and lots of test and scan’s completed, without any firm diagnosis, success! They...

After weekly visits to my GP’s for months with one symptom after another and lot...

•4 days ago

hot flushes

I work in a hospital for a few hours which is great for my fatigue and pain levels. Here’s the kicker I need help I get terrible hot flushes where I can be...

I work in a hospital for a few hours which is great for my fatigue and pain leve...

•5 days ago

any tips on walking on uneven surfaces

hi everyone hope your day is going well. Does anyone have issues with pain in shins and foot dropping when walking outside on uneven ground, but on flat...

hi everyone hope your day is going well. Does anyone have issues with pain in sh...

•5 days ago

Covid & Fibro

Both is tough going - any advice - I've just been resting best I can - finally got my temp to normal today 🦋

Both is tough going - any advice - I've just been resting best I can - finally g...

•5 days ago

are we allowed to use wheelchairs?

hi, are people with chronic pain and chronic fatigue allowed to use wheelchairs? I feel weird about using them because I can walk a short distance, but if my...

hi, are people with chronic pain and chronic fatigue allowed to use wheelchairs?...

•5 days ago

My birthday

I will be 65 on 14th and unfortunately my fybro has gone worse but hay ho we have had a couple of lovely holidays this year and a few more to come as its also...

I will be 65 on 14th and unfortunately my fybro has gone worse but hay ho we ha...

•6 days ago

No ill health retirement given!

hi, I am a teacher by profession but had to retire from teaching 3 years ago due to my fibromyalgia, osteoarthritis and hyper mobility symptoms. There are 2...

hi, I am a teacher by profession but had to retire from teaching 3 years ago due...

•7 days ago

Volunteer Week (Day 2) - Trustees

Celebrating our Board of Trustees, who provide an example and inspiration to us all. Des, Janet, Helen, Glen, Duncan and our newly appointed trustee, Tracy...

Celebrating our Board of Trustees, who provide an example and inspiration to us ...

Hazel_Angelstar

Administrator•8 days ago

Volunteers Week (day one)

A big THANK YOU to all FMA UK volunteers. FMA UK is run mainly by a team of amazing volunteers – our Board of Trustees, Regional Coordinators, Helplines,...

A big THANK YOU to all FMA UK volunteers. FMA UK is run mainly by a team of am...

Hazel_Angelstar

Administrator•9 days ago

Heel burning

hi Does anyone else get a burning in their foot ? Thx

hi Does anyone else get a burning in their foot ? Thx

•9 days ago

Cognitive Behavioural Theraphy

Hi It has been suggested today that CBT may help my chronic pain conditions.I have Fibromalgia and Lipo-Lymperhoedema has anyone sourced this theraphy? If so...

Hi It has been suggested today that CBT may help my chronic pain conditions.I ha...

•10 days ago

Blood pressure hike - Duloxetine?

Hi - after the standard chequered experimentation with meds I have settled into a good place with just 30mg of Duloxetine. For the first time in my life I...

Hi - after the standard chequered experimentation with meds I have settled into ...

•10 days ago

mobility scooter help

hello, I’ve recently bought a Jaint plus mobility scooter and it’s been great…apart from one thing. We are really struggling with removing the seat. Sometimes...

hello, I’ve recently bought a Jaint plus mobility scooter and it’s been great…ap...

•10 days ago

Help me to understand

My son has fibromyalgia and it seems to have changed his personality. Having a conversation with him is like handling gelignite as at the slightest thing he...

My son has fibromyalgia and it seems to have changed his personality. Having a ...

•11 days ago

Charliebear

I have severe case of fibromyalgia, I'm having injections in my spine soon has anyone else had this ?

I have severe case of fibromyalgia, I'm having injections in my spine soon has a...

Charliebear1234

•11 days ago

Silly me

Hey all ... thought I could go out and socialise no I feel even worse now - not in a good place mentally or physically the pain is ridiculous im going to try...

Hey all ... thought I could go out and socialise no I feel even worse now - not ...

•11 days ago

fibromyalgia right dosage?

hi i’ve recently been diagnosed with fibromyalgia i’ve been put on duloxetine which i found worked great i was sleeping better ibs cleared up and no more night...

hi i’ve recently been diagnosed with fibromyalgia i’ve been put on duloxetine wh...

•11 days ago

Tips for eating pain

I have found using a weighted blanket, eases fibomyralgia pain, highly recommend it, and meditation music

I have found using a weighted blanket, eases fibomyralgia pain, highly recommend...

Meditationlover

•11 days ago

Optical nerve deterioration

Hi, my question is about about my recent opthalmic appointment, has anyone had symptoms of double vision, eye pain and rapid determination of sight? I have...

Hi, my question is about about my recent opthalmic appointment, has anyone had s...

•11 days ago

Trouble breathing

Afternoon all my breathing trouble is getting worse feels like I'm not getting enough air its scarey - also hurts my chest and back when I breathe in but it...

Afternoon all my breathing trouble is getting worse feels like I'm not getting e...

•12 days ago

no need to see a rheumatologist

my son’s been waiting for rheumatology appointment. When we made enquiries a different GP told us there is no need for a rheumatologist to confirm fibromyalgia...

my son’s been waiting for rheumatology appointment. When we made enquiries a dif...

•12 days ago

Hey to all ...

Hey all Fairly new to fibro but after research I think I've had this since being a child. I get frustrated daily with my pain and not being able to get things...

Hey all Fairly new to fibro but after research I think I've had this since being...

•12 days ago

Please... Help is it possible i have fibromyalgia as well as hypermobility?

Suffering with mental and physical pain for years... my whole body hurts always ... I have hypermobility, ive never had this much pain from being flexible,...

Suffering with mental and physical pain for years... my whole body hurts always ...

•12 days ago

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