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Fibromyalgia Action UK

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A place for acceptance

Hi all, I'm just writing as a way of accepting. I am slowly accepting who I am and what I can and can't do. I am slowly accepting that my days are...

Hi all, I'm just writing as a way of accepting. I am slowly accepting who ...

Rwby_Rose

•4 months ago

16 Replies

Lymphatic drainage ,pain and swelling

Good morning I hope you all feel well or better than usual where I have been in so much pain again lots of places u know what I mean but particularly down my...

Good morning I hope you all feel well or better than usual where I have been in ...

Jugglinglife

•8 months ago

2 Replies

Lonliness

How do you deal with night time lonliness? I have many distractions but still, I've not seen anyone in over a week well just today. Makes my anxiety worse. 🦋

How do you deal with night time lonliness? I have many distractions but still, I...

Sleepyhead_

•9 months ago

9 Replies

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Help me to understand

My son has fibromyalgia and it seems to have changed his personality. Having a conversation with him is like handling gelignite as at the slightest thing he...

My son has fibromyalgia and it seems to have changed his personality. Having a ...

Aldeburgh20

•2 years ago

13 Replies

Struggling and a bit of a rant

I was diagnosed with fibromyalgia over two years ago, it seems since May 2021 I have had no reprieve, the pain continues day in and day out, I know a flare up...

I was diagnosed with fibromyalgia over two years ago, it seems since May 2021 I ...

MS_2019

•2 years ago

43 Replies

Just need to talk

Hey everyone,I hope you're all as well as can be, it hurts to think that everyone here is in constant pain, but I hope you've all had a good day and if not...

Hey everyone,I hope you're all as well as can be, it hurts to think that everyon...

Turquoisesummer

•2 years ago

37 Replies

How did you accept the diagnosis?

Hi all, may be a bit of a controversial one… I have had back pain and undiagnosed pelvic pain since I was in my teens (now 32). But about 5/6 years ago I woke...

Hi all, may be a bit of a controversial one… I have had back pain and undiagnos...

Hidden

•2 years ago

12 Replies

Different diagnosis

I have had FMS for over 20 years without any treatment except physio and scepticism. I was diagnosed with RA 9 years ago after sepsis and have been treated...

I have had FMS for over 20 years without any treatment except physio and sceptic...

Diamondpainting

•2 years ago

14 Replies

Pain - where my pain comes from!

My initial visit to the GP was as a result of Pain, this was the first thing I noticed. From the moment I got out of bed in my mid 40's I could not stand on...

My initial visit to the GP was as a result of Pain, this was the first thing I n...

does-the-NHS-work

•2 years ago

49 Replies

grounding techniques

I would like to share my understanding of grounding techniques that help my mental health, It was pointed out to me that I ruminate. Rumination is a deep...

I would like to share my understanding of grounding techniques that help my ment...

does-the-NHS-work

•2 years ago

5 Replies

anger, fear, mind study - fibromyalgia

https://youtu.be/1nP5oedmzkM Brain imaging - how our brain responds to things, relationships, pain, stress etc, are I feel fundamental to understanding the...

https://youtu.be/1nP5oedmzkM Brain imaging - how our brain responds to things, r...

does-the-NHS-work

•3 years ago

4 Replies

Your FEAR matrix

As part of my recovery - It took me for ever to see the association between my FEAR and my symptoms primarily THE PAIN. Conceptualising was my most difficult...

As part of my recovery - It took me for ever to see the association between my F...

does-the-NHS-work

•3 years ago

23 Replies

A bleak outlook

I have read that Fybromyalgea is supposed to ease with age. For me at least, this is not the case. I have found that the opposite is the case. My pain level...

I have read that Fybromyalgea is supposed to ease with age. For me at least, th...

BreezyGeezer

•3 years ago

13 Replies

New Diagnosis

Not much of a purpose, just an update really. I recently got diagnosed by a GP and a rheumatologist with Fibromyalgia. Honestly, there's a mixture of feelings...

Not much of a purpose, just an update really. I recently got diagnosed by a GP a...

Cassi0

•3 years ago

4 Replies

This always seems like a strange thing to say....

THANK YOU ALL. They say that it is hard to say sorry and similar to say thank you, when you REALLY mean it. I wish nobody suffered from this horrible...

THANK YOU ALL. They say that it is hard to say sorry and similar to say thank yo...

ChristCornHell

•3 years ago

9 Replies

I want to be normal,I hate my depression,this stupid fibro,before all this I was active at gym. Working

I don't know where to start I'm 36 married kids are my world and I feel useless .

I don't know where to start I'm 36 married kids are my world and I feel useless ...

Jerrymu

•3 years ago

10 Replies

Fibromyalgia

I've had fibromyalgia for 4 years now but recently only getting worse. Now I struggle to walk Im alot more clumsier how can I help get myself better I would...

I've had fibromyalgia for 4 years now but recently only getting worse. Now I str...

StarA12

•4 years ago

14 Replies

I'm 25 and I cant take living with this anymore how do I get signed off from work?

So this is my first post on here, I'm 25 years of age and I'm in full time work. I have fibromyalgia, hypermobility, depression, anxiety and asthma. I am...

So this is my first post on here, I'm 25 years of age and I'm in full time work....

Deajmk11

•4 years ago

14 Replies

I've been in hospital and assisted living since last August

Had pneumonia (4th time in a year) and several seizures Just got home from a week in hospital due to low magnesium, caused by not eating enough. As a...

Had pneumonia (4th time in a year) and several seizures Just got home from a we...

Cape_Cod_Sharon

•4 years ago

8 Replies

Vibrating in body

Hi I am just wondering if anyone wakes up with there body feeling like its vibrating,also ive had some crazy palpatations in my throat,does anyone else get...

Hi I am just wondering if anyone wakes up with there body feeling like its vibra...

JMGWORTH

•4 years ago

11 Replies

What's the worst thing about Fibro...

Looking out the window, to see what you could have been! This really play's on your mind as an old single man!

Looking out the window, to see what you could have been! This really play's on...

Hidden

•4 years ago

10 Replies

Metaphor: Every year of Fibro is the same as a round with Mike Tyson (Everyday).

Metaphor: If you've had Fibro for a year, you have fought with Mike the same round every day for 365. When you have done your second, it's the same round every...

Metaphor: If you've had Fibro for a year, you have fought with Mike the same rou...

Hidden

•4 years ago

7 Replies

Positives of the condition?

Someone at work asked me about the condition, and I tried my best to light heartily explain. He then asked me a question which put things in a new perspective...

Someone at work asked me about the condition, and I tried my best to light heart...

Hidden

•5 years ago

17 Replies

A poem I stumbled upon. So apt.

Chemotherapy by Julia Darling I did not imagine being bald at forty four. I didn’t have a plan. Perhaps a scar or two from growing old, hot flushes. I’d sit...

Chemotherapy by Julia Darling I did not imagine being bald at forty four. I d...

TheDrivenSnow

•5 years ago

16 Replies

Which Drugs Work Best?

I’ll keen to know what drugs you guys are taking and are they helping? I’ve only been diagnosed two days ago (but reckon I’ve had it for years) when I went...

I’ll keen to know what drugs you guys are taking and are they helping? I’ve on...

Hidden

•5 years ago

12 Replies

Another day !

Another day we fight the good fight we ignore the lies and negative thoughts and replace them with facts and truths were here we survived we can do all things...

Another day we fight the good fight we ignore the lies and negative thoughts and...

Hidden

•5 years ago

13 Replies

FIBROMYALGIA AND SERTRALINE

Fibromyalgia - and now GERD symptoms ??? Hi anyone been put on Sertraline for anxiety I was as doctor suggested this could help as anxiety is part of the...

Fibromyalgia - and now GERD symptoms ??? Hi anyone been put on Sertraline for an...

marknico

•5 years ago

22 Replies

it,s christmas

I would like to wish everyone a merry christmas as there is only a few hours to go and i hope you enjoy your day whatever your battles .... :- ]

I would like to wish everyone a merry christmas as there is only a few hours to ...

antbeech1963

•5 years ago

8 Replies

Do the fibromyalgia pain management physical therapy groups actually help?

So I have my first session tomorrow and I'm petrified as I may have to go alone and I suffer severe anxiety and depression. I don't know how I'm going to cope...

So I have my first session tomorrow and I'm petrified as I may have to go alone ...

IkkleBecca

•5 years ago

3 Replies

Is this it?.....

I feel as though I’m in a bad dream and when I wake up I’ll be pain free & walking strong. Sadly that has not been the case. I was diagnosed with fibromyalgia...

I feel as though I’m in a bad dream and when I wake up I’ll be pain free & walki...

Empress365

•5 years ago

3 Replies

Write a post or ask a question

Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

Thoughts & Feelings posts

A place for acceptance

Lymphatic drainage ,pain and swelling

Lonliness

Help me to understand

Struggling and a bit of a rant

Just need to talk

How did you accept the diagnosis?

Different diagnosis

Pain - where my pain comes from!

grounding techniques

anger, fear, mind study - fibromyalgia

Your FEAR matrix

A bleak outlook

New Diagnosis

This always seems like a strange thing to say....

I want to be normal,I hate my depression,this stupid fibro,before all this I was active at gym. Working

Fibromyalgia

I'm 25 and I cant take living with this anymore how do I get signed off from work?

I've been in hospital and assisted living since last August

Vibrating in body

What's the worst thing about Fibro...

Metaphor: Every year of Fibro is the same as a round with Mike Tyson (Everyday).

Positives of the condition?

A poem I stumbled upon. So apt.

Which Drugs Work Best?

Another day !

FIBROMYALGIA AND SERTRALINE

it,s christmas

Do the fibromyalgia pain management physical therapy groups actually help?

Is this it?.....

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