Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

59,448 members • 66,494 posts

All posts for April 2021

Coping with work

Since getting Fibro I have really struggled with work and now I have my diagnosis I’m not sure what my rights are? I also feel my full time job and everything...

Since getting Fibro I have really struggled with work and now I have my diagnosi...

Mimilondon

•3 years ago

9 Replies

Fibromyalgia and thyroid and adrenals

I have been reading this forum for a couple of months now and note that there is virtually nothing posted re Fibro and Thyroid and Adrenals, is there some...

I have been reading this forum for a couple of months now and note that there is...

ainslie

•3 years ago

3 Replies

Let us know what our upcoming FMA UK Facebook group should do for people

As part of preparing for international awareness day on May 12th, we are looking for feedback about a new Facebook group that we will launch. If you could...

As part of preparing for international awareness day on May 12th, we are looking...

desquinn

Partner•3 years ago

22 Replies

Want to take advantage of all our features? Just log in!

Does anyone else have trouble with the cold and damp

I come to hate cold damp days they my joints and muscles stiff.. pain is always worse on those days I was wondering if anyone else had found that too . I have...

I come to hate cold damp days they my joints and muscles stiff.. pain is always ...

SEknit

•3 years ago

17 Replies

Can anyone relate?

Hi there Does anyone get a very tight jaw and pressure. Also does anyone it blurred vision? Many thanks

Hi there Does anyone get a very tight jaw and pressure. Also does anyone it blu...

Mimilondon

•3 years ago

13 Replies

Diagnosis

Hi everyone. I have been suffering with symptoms for years now but my doctor insists that they are all menopausal. Has anyone else experienced this?

Hi everyone. I have been suffering with symptoms for years now but my doctor ins...

LadyRosie

•3 years ago

6 Replies

Fibromyalgia help

Hi , can anyone recommend the best type of mattress for a Fibromyalgia sufferer. I am finding it very painful to get comfortable at all on the topper I have...

Hi , can anyone recommend the best type of mattress for a Fibromyalgia sufferer....

Greyt

•3 years ago

9 Replies

Advise on treating Fibro without medication

Hi there, I have just been diagnosed with fibromyalgia and I am finding the medication difficult. Does anyone cope with out meditation?

Hi there, I have just been diagnosed with fibromyalgia and I am finding the med...

Mimilondon

•3 years ago

21 Replies

New to the group.

Hi everyone, I have been diagnosed with a couple of ailments the hardest one to deal with is the fibro. I am to have found this website and chat with people...

Hi everyone, I have been diagnosed with a couple of ailments the hardest one t...

tulipsmiles

•3 years ago

3 Replies

Coming off of Pregablin - side effects

Hi I’ve been on pregablin for about 5/6 months and am currently on a dose of 300mg twice a day for the last 2 1/2 months. After speaking to the doctor and...

Hi I’ve been on pregablin for about 5/6 months and am currently on a dose of 300...

Lh27

•3 years ago

8 Replies

Questions left unanswered...

Hiya all! I'm Purple and Im new here! Nice to meet you! I was wondering if anyone could help... So after years of suffering i finally have my diagnosis of...

Hiya all! I'm Purple and Im new here! Nice to meet you! I was wondering if anyo...

PurpleZomBry

•3 years ago

6 Replies

Fibro clinic at St Thomas's

Hi all, I was referred to St Thomas's fibro clinic last June by my GP when he gave me a diagnosis. I have tried chasing them a number of times, with them at...

Hi all, I was referred to St Thomas's fibro clinic last June by my GP when he ga...

lucy_s

•3 years ago

7 Replies

Joint Pain Course

Thought some of you might be interested in this. Nuffield Health gyms are offering 12 week courses for management of joint pain, aimed at people with...

Thought some of you might be interested in this. Nuffield Health gyms are offeri...

Spider395

•3 years ago

8 Replies

Information.

Hi all. I have joined to speak to people who have or may have Fibro as this is now what my doctor thinks I may have. I am not really sure where to begin or...

Hi all. I have joined to speak to people who have or may have Fibro as this is n...

Harps28

•3 years ago

4 Replies

Suggestions for fibro drugs and treatments please. Will consider private alternative suggestions.

Hi everyone ! I have not been on here for a while as struggling to taper from pregablin so in constant withdrawal pain. Have got tramadol for servere pain but...

Hi everyone ! I have not been on here for a while as struggling to taper from pr...

Fificat50

•3 years ago

10 Replies

Pain Toolkit and Pain Concern's Navigator tool

Hello everyone, a curiosity. I read this: We would hope that NICE references the excellent resources and work that the pain community has created to help...

Hello everyone, a curiosity. I read this: We would hope that NICE references t...

TabataRossa

•3 years ago

2 Replies

Nerve Pain?

Hi, my 2nd birthday in lockdown this week, feeling a bit sad. Has anyone had an intense "needles" pain on upper back between the shoulders, its a bit sore...

Hi, my 2nd birthday in lockdown this week, feeling a bit sad. Has anyone had a...

bluejay29

•3 years ago

5 Replies

Electric shock pain

Can fibromyalgia cause electric shock pain to scalp

Mjolby

•3 years ago

9 Replies

Returning to work worries

Good morning all 🙂 I'm just after a bit of advice after 14 months off work because of my illnesses being uncontrolled I belive I have got to a point where my...

Good morning all 🙂 I'm just after a bit of advice after 14 months off work bec...

slugjackson89

•3 years ago

10 Replies

Mandatory reconsideration.

Hey everyone. I hope you are all enjoying the lovely weather. So I've sent off for my MR. I just want to know because I've been awarded standard mobility rate...

Hey everyone. I hope you are all enjoying the lovely weather. So I've sent off f...

angiecxx

•3 years ago

9 Replies

Hello

Hello everyone I have just joined today I was Diagnosed with fibromyalgia in 2017 , but believe I have had it for a while before then I have also got...

Hello everyone I have just joined today I was Diagnosed with fibromyalgia in 20...

Hidden

•3 years ago

6 Replies

Burning 🔥 Tongue Syndrome

I am in despair with burning 🔥 tongue Syndrome. I have had if for the last 3 years & can’t eat spicy food, minty things, wine.....& the list goes on. I was...

I am in despair with burning 🔥 tongue Syndrome. I have had if for the last 3 ye...

Persianprincess69

•3 years ago

9 Replies

Very painful forearm

Hi all, I have hurt my forearm somehow, probably just lifting a pan or something else heavy. It's been about 4 weeks now, and it's pretty constant achy,...

Hi all, I have hurt my forearm somehow, probably just lifting a pan or something...

Janpan7

•3 years ago

8 Replies

PiP/decision

Hi everyone. I just wondering if someone having experience for pip decision, since 22 of March this year I had my pip phone assessment but I still not yet have...

Hi everyone. I just wondering if someone having experience for pip decision, sin...

Nzonziirene

•3 years ago

28 Replies

So upset! GP doesn’t listen or understand me I’m a Fibro and migraine sufferer

GP’s just don’t listen or care and keep trying to fob me off with more tablets that I have to pay prescription charge for, for a few tablets that don’t work or...

GP’s just don’t listen or care and keep trying to fob me off with more tablets t...

Kathy63

•3 years ago

7 Replies

Help! Do any of my conditions get recognised for PIP.

Hi everyone, firstly thank you for the add. I have started a claim for PIP due to nervous debility, anxiety, depression, joint pain, fibromyligia as well as...

Hi everyone, firstly thank you for the add. I have started a claim for PIP due t...

LShip09

•3 years ago

6 Replies

PIP reinstated

A bit of good news for once. After being awarded 0 points on my PIP reassessment, and losing my existing PIP, my mandatory reassessment has just come through...

A bit of good news for once. After being awarded 0 points on my PIP reassessment...

OldProgie

•3 years ago

3 Replies

Newbie to fibromyalgia

Hi guys I'm new to all this I have been in constant pain for the last 2 years now and only just going down this road of fibromyalgia. The pain is in my...

Hi guys I'm new to all this I have been in constant pain for the last 2 years no...

weegy101

•3 years ago

21 Replies

SI joint pain relief?

Hi, I have horrible pain at the SI joint. I’m a student so I have to sit a lot for studying and it’s awful. Any tips on relieving that specifically?

Hi, I have horrible pain at the SI joint. I’m a student so I have to sit a lot ...

ktg17

•3 years ago

5 Replies

medication ??

my doctor has me on amitriptaline and meloxicam for my fibro,, anyone else have this combination,? and how are you finding it ?? xxx

my doctor has me on amitriptaline and meloxicam for my fibro,, anyone else have ...

cargirl

•3 years ago

5 Replies

Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

All posts for April 2021

Coping with work

Fibromyalgia and thyroid and adrenals

Let us know what our upcoming FMA UK Facebook group should do for people

Does anyone else have trouble with the cold and damp

Can anyone relate?

Diagnosis

Fibromyalgia help

Advise on treating Fibro without medication

New to the group.

Coming off of Pregablin - side effects

Questions left unanswered...

Fibro clinic at St Thomas's

Joint Pain Course

Information.

Suggestions for fibro drugs and treatments please. Will consider private alternative suggestions.

Pain Toolkit and Pain Concern's Navigator tool

Nerve Pain?

Electric shock pain

Returning to work worries

Mandatory reconsideration.

Hello

Burning 🔥 Tongue Syndrome

Very painful forearm

PiP/decision

So upset! GP doesn’t listen or understand me I’m a Fibro and migraine sufferer

Help! Do any of my conditions get recognised for PIP.

PIP reinstated

Newbie to fibromyalgia

SI joint pain relief?

medication ??

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