Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

59,448 members • 66,494 posts

All posts for June 2023

Occupational health

Hi everyone, I have recently got a new position and because of my Fibromyalgia and Rheumatoid Arthritis, I have to have an Occupational health assessment....

Hi everyone, I have recently got a new position and because of my Fibromyalgia...

Smiler69

•10 months ago

2 Replies

Tremor in right hand and arm

Hi all, just wondering if anyone has problem with tremors in right hand and arm started of a few weeks back with tingling in arm now I'm getting tremors in my...

Hi all, just wondering if anyone has problem with tremors in right hand and arm ...

Rob172

•10 months ago

15 Replies

struggling to sleep

it’s 2:21 am after taking 2 tablets to help me sleep I’m still awake.. the bell in my ears it doesn’t stop day and night on the top of that the pain the...

it’s 2:21 am after taking 2 tablets to help me sleep I’m still awake.. the bell...

Emacosta

•10 months ago

27 Replies

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head shakes

Hi 👋 please can anyone tell me if they get head shakes Like brain tremors? I’m in Dluxtine Thank you 😊

Hi 👋 please can anyone tell me if they get head shakes Like brain tremors?...

Scoo1961

•10 months ago

11 Replies

Motorhome

Hi all new to the ground.I'm struggling with money and I'm going to lose my house. I've been given a very old motorhome and was wondering if I could still...

Hi all new to the ground.I'm struggling with money and I'm going to lose my hous...

Howe78

•10 months ago

12 Replies

feel let down by pip

I had a letter from pip which stated I have a telephone assessment on the Monday 26.06.2023 ( yesterday) at 2pm. No one called me at 2pm or all day. I’ve...

I had a letter from pip which stated I have a telephone assessment on the Monday...

Kazzza1976

•10 months ago

6 Replies

Pain Killers - Fibromyalgia

Good Morning, I am newly diagnosed after suffering with widespread pain and brainfrog since 1997. I have been given Duloxetine to take, started at 60mg,...

Good Morning, I am newly diagnosed after suffering with widespread pain and br...

Lizflynn80

•10 months ago

12 Replies

EESA!

EESA is very much like ESA but without any of the benefits you get with ESA.Its something you claim if you can't work because of a disability and you have not...

EESA is very much like ESA but without any of the benefits you get with ESA.Its...

Fibalady

•10 months ago

1 Reply

insomnia is getting too much

i havent had a full nights sleep in weeks now. Its 0840 and ive been awake since 4am. Its not even so much painsomnia - the pain never gets better, but it...

i havent had a full nights sleep in weeks now. Its 0840 and ive been awake since...

BlueZero08

•10 months ago

19 Replies

Been in so much Pain.

Hi haven't posted for a while .been in so much pain past few weeksHeat is not helping went to doctors yesterday to talk about my medication and pain im in...

Hi haven't posted for a while .been in so much pain past few weeksHeat is not he...

Shartaylor0264

•10 months ago

7 Replies

Constant head pain blocked ears pain in eyes

I have had fibro for twenty eight years.I have severe head pain twenty four seven back and shoulder pain constantly. I don't take the usual prescribed drugs...

I have had fibro for twenty eight years.I have severe head pain twenty four seve...

Spirit15

•10 months ago

3 Replies

Research Opportunity - Important encounters on the road to fibromyalgia wellbeing

Research Opportunity - Important encounters on the road to fibromyalgia wellbeing. Get in touch with Richardwebber@nhs.net about taking part or if you...

Research Opportunity - Important encounters on the road to fibromyalgia wellbe...

desquinn

Partner•10 months ago

4 Replies

Fibro - flashes of nerve pain throughout the body or not?

I was diagnosed by a rheumatologist about 8 years ago. The GP I saw about a year later put me on to Nortriptyline and I've been taking 50mg every evening to...

I was diagnosed by a rheumatologist about 8 years ago. The GP I saw about a yea...

Genevieve

•10 months ago

20 Replies

EESA.

Dose anyone else claim this EESA.

Fibalady

•10 months ago

15 Replies

Fibro and FND (Functional Neurological Disorder)

I was diagnosed with fibromyalgia last year and referred to a neurologist this year after experience increasing episodes of involuntary facial movements,...

I was diagnosed with fibromyalgia last year and referred to a neurologist this y...

mollyxsue

•10 months ago

30 Replies

Report to the mods any issues with posts

As with all groups and forums we get some friction from time to time. People in pain lashing out, being quick in words and not considering the impact. Or just...

As with all groups and forums we get some friction from time to time. People in ...

desquinn

Partner•10 months ago

1 Reply

ESA support group

Hi all , this heat doesn't help does it. I'm currently getting ESA and was put in the support group for people with limited capabilities for work . They said...

Hi all , this heat doesn't help does it. I'm currently getting ESA and was put i...

Mrdiagnosis

•10 months ago

29 Replies

Vitamin D

I take 4000iu a day with Vitamin K not sure if this dosage is high enough any one know ?

I take 4000iu a day with Vitamin K not sure if this dosage is high enough any on...

Anna65maria

•10 months ago

27 Replies

Gooddaysagain

I keep reading of tests people have/had, e.g. for Vit B12, Vit D, etc., and specialists they have seen.After over 3 years of being unable to see a GP, I...

I keep reading of tests people have/had, e.g. for Vit B12, Vit D, etc., and spec...

Gooddaysagain

•10 months ago

8 Replies

Vit D tips please

I have been taking 20 mcg Vit D in 1 dose for some time now Latest D results are 92 (50-160) As it’s a water soluble vitamin, which clears out of the body...

I have been taking 20 mcg Vit D in 1 dose for some time now Latest D results ar...

Persevere99

•10 months ago

31 Replies

Is fybro coins as Disability?

hi is anyone know if can I get a pensión with FYBROMIALGIA ? or where can I get any advice as I’m not working, and I think this is a permanent pain!

hi is anyone know if can I get a pensión with FYBROMIALGIA ? or where can I get ...

Kokacola

•10 months ago

1 Reply

Rage at GP

Sorry all I need to rant. Just back from GP appointment and I am outraged. Explained to him about my extreme levels of pain and his response was that people...

Sorry all I need to rant. Just back from GP appointment and I am outraged. Exp...

Macdoual

•10 months ago

58 Replies

Gabapentin or Duloxetine

Hi all, has anyone had any luck with duloxetine? currently taking gabapentin bug heard good experience with duloxetine! Any advise would be fab!

Hi all, has anyone had any luck with duloxetine? currently taking gabapentin bu...

JoLouise88

•10 months ago

16 Replies

with Fibro do you have sensitive reflex or no reflex?

hi , I am just asking those with a diagnoses of Fibro Do you have sensitive reflex ? or have some got no reflexes at all ? How was your diagnosis made?...

hi , I am just asking those with a diagnoses of Fibro Do you have sensitive re...

Pascha1

•10 months ago

3 Replies

Brain fog's funny side

I was talking to my doctor about how to deal with fibromyalgia. I was brain fogged at the time. Just as well the other half was with me to remember what she'd...

I was talking to my doctor about how to deal with fibromyalgia. I was brain fogg...

madwriter

•10 months ago

1 Reply

many thanks!

I would just like to thank everyone who responded to my post - forewarned is forearmed so I can now approach the GP with confidence. I will request a referral...

I would just like to thank everyone who responded to my post - forewarned is for...

caz1812

•10 months ago

1 Reply

Uc health assessment call.

hi folks hope yous all well as can be. I have had fibromyalgia for years now and it’s been really hard to deal at times. I have never claimed benefits for this...

hi folks hope yous all well as can be. I have had fibromyalgia for years now and...

Tommy5865

•10 months ago

7 Replies

Denial

Hi my name lee I am 42 , 2 kids 6 and 15 . My fibromyalgia symptoms started June 21 and I was diagnosed in march 23 . I am having accepting I won't be tha same...

Hi my name lee I am 42 , 2 kids 6 and 15 . My fibromyalgia symptoms started June...

Hidden

•10 months ago

8 Replies

how can I get GP to listen???

After years of all sorts of health problems and countless wasted trips to the doctors who've said "its her age" or "she'll grow out of it" my 18 year old...

After years of all sorts of health problems and countless wasted trips to the do...

caz1812

•10 months ago

7 Replies

Fibro diagnosis finally

Hi everyone, I have finally been diagnosed after 8 years of doctors and hospital etc nothing adding up, and everything else possible ruled out. I wondered if...

Hi everyone, I have finally been diagnosed after 8 years of doctors and hospital...

Ritatali

•10 months ago

6 Replies

Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

All posts for June 2023

Occupational health

Tremor in right hand and arm

struggling to sleep

head shakes

Motorhome

feel let down by pip

Pain Killers - Fibromyalgia

EESA!

insomnia is getting too much

Been in so much Pain.

Constant head pain blocked ears pain in eyes

Research Opportunity - Important encounters on the road to fibromyalgia wellbeing

Fibro - flashes of nerve pain throughout the body or not?

EESA.

Fibro and FND (Functional Neurological Disorder)

Report to the mods any issues with posts

ESA support group

Vitamin D

Gooddaysagain

Vit D tips please

Is fybro coins as Disability?

Rage at GP

Gabapentin or Duloxetine

with Fibro do you have sensitive reflex or no reflex?

Brain fog's funny side

many thanks!

Uc health assessment call.

Denial

how can I get GP to listen???

Fibro diagnosis finally

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