Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

59,443 members • 66,489 posts

All posts for September 2021

Help and advice

Hi all After advice please I currently work.as a district nurse which is becoming increasingly difficult, not sure I would qualify for Pip. Just to add...

Hi all After advice please I currently work.as a district nurse which is beco...

Tuez

•3 years ago

4 Replies

Why does the profile not recognise Myalgic Encephalomyelitis (ME) to add on my file for other illnesses

Fibroplus

•3 years ago

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New and struggling

Hi all, I'm new to the group. This is a good way to while away my insomnia. I was diagnosed with degeneration of the spine when I was 11. It ended my dream of...

Hi all, I'm new to the group. This is a good way to while away my insomnia. I w...

koala84

•3 years ago

16 Replies

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Newbie

Just been diagnosed today. I also have had multiple spinal fusions/surgeries and an arthritic spine. Cannot bear to have another “label”. How do you all manage...

Just been diagnosed today. I also have had multiple spinal fusions/surgeries and...

Hidden

•3 years ago

2 Replies

Statutory sick pay

I have been off work now for almost 12 months. My employer has now stopped paying my wage ( been on 1/2 pay for 6 months). I am still employed and will be...

I have been off work now for almost 12 months. My employer has now stopped payi...

ChristineW18

•3 years ago

9 Replies

What meds?

What meds have people been prescribed? My doctor discounts my symptoms as fibromyalgia but has never suggested meds. Any help with this is great. Thanks....

What meds have people been prescribed? My doctor discounts my symptoms as fibrom...

sharroN42

•3 years ago

18 Replies

Migraines, Arthris and Fibro working as a team.

Hi everyone xx I've been getting really bad migraines just lately. I know when ones coming, my neck aches more, I feel sick, go off my food, then my head...

Hi everyone xx I've been getting really bad migraines just lately. I know when ...

Fibrogirl2

•3 years ago

18 Replies

Break from meds for 6 months as agreed with doctor as I had got to a good place , wish I ha dnt as now having a flare

Break from meds for 6 months as they affect my skin with hives and I'm all scared badly on one arm, now having a flare as expected. Knees and lower arms and...

Break from meds for 6 months as they affect my skin with hives and I'm all scare...

carol789

•3 years ago

8 Replies

Tens machinrs

Ex ruciating back psins lately..... not sure if i ve asked before... sorry if i have... cant find post but whats the thoughts on Tens machines? Am eating...

Ex ruciating back psins lately..... not sure if i ve asked before... sorry if i ...

cartama

•3 years ago

3 Replies

need a little advice.

good morning to everyone, im a newie, just been diagnosed with fibromialga ,im dixlexic as well as pardon with spelling, im struggeling with pain , i cant take...

good morning to everyone, im a newie, just been diagnosed with fibromialga ,im d...

lanzarote55

•3 years ago

7 Replies

Are joint hypermobility syndrome and ehlers-danlos syndrome the same?

Question for those of you who might have both fibro and joint hypermobility! I was asked by someone to clarify if I had ehlers-danlos syndrome and wasn't quite...

Question for those of you who might have both fibro and joint hypermobility! I w...

Lizardelle

•3 years ago

4 Replies

Panic

Does anyone suffer from anxiety or panic disorder I have only had that since having fibromyalgia,any change to routine and it all starts

Does anyone suffer from anxiety or panic disorder I have only had that since hav...

Meechan45

•3 years ago

20 Replies

survive

good afternoon, I wanted to thank you for your help, I wait for the repair service to contact me, no shower is terrible, my physical condition worsens, now I...

good afternoon, I wanted to thank you for your help, I wait for the repair servi...

Eagleflyalone

•3 years ago

11 Replies

Income worry causing me pain

Esa after 12months can you claim anything after I really feel I won't be able to return to work but stressing over income making all my pain worse I just don't...

Esa after 12months can you claim anything after I really feel I won't be able to...

Nicjy

•3 years ago

8 Replies

Fibromyalgia

Fibromyalgia Hi everyone, i have never been on this site before but have read some posts which sound so much like the struggles i experience in life. I was...

Fibromyalgia Hi everyone, i have never been on this site before but have read so...

Savannah1010

•3 years ago

6 Replies

so tired

Fibromyalgia, asthma, arthritis and uterine fibroids, I cannot eat gluten, certain fruits, certain vegetables, animal milk, or soy milk.If I walk for 10...

Fibromyalgia, asthma, arthritis and uterine fibroids, I cannot eat gluten, certa...

Eagleflyalone

•3 years ago

7 Replies

Has anyone used Dan Neuffers programme "ANS rewire"?

I have done 4 free lectures finding the approach comprehensible and avaiable long term .But I need to pay $200 and be disciplined about doing the lessons.I...

I have done 4 free lectures finding the approach comprehensible and avaiable lon...

Zivago74

•3 years ago

6 Replies

Does anyone else feel guilty they’re in pain?

Oh man. So my dog Lexi is wonderful and I adore her. I wouldn’t change her for the world. And I know we’re all still getting used to me being in this much...

Oh man. So my dog Lexi is wonderful and I adore her. I wouldn’t change her for t...

Bluelabelle

•3 years ago

17 Replies

Diagnosis

After a phone appointment with the doctor I was sent for blood tests. Said blood tests have ruled out things like arthritis, thyroid issues. In the follow-up...

After a phone appointment with the doctor I was sent for blood tests. Said blood...

Gulfstream_Maggie

•3 years ago

6 Replies

Pilates for Fibromyalgia

Hi, does anyone here do pilates for their pain and tightness symptoms? Does it help at all? I go running twice a week and try to walk 1-2 miles every day but...

Hi, does anyone here do pilates for their pain and tightness symptoms? Does it ...

Lauraaa

•3 years ago

6 Replies

Fibro fog conundrum

Hi all. I'm having a difficult time at the moment. I've lost 3 family members directly from covid and 2 more indirectly due to delays and lack of services...

Hi all. I'm having a difficult time at the moment. I've lost 3 family members di...

Lizangellus

•3 years ago

5 Replies

Is it just me or is anyone else having severe fatigue at the moment, it's my worst in over 20yrs of having fibro!

I really have no motivation to do anything and to be honest typing this is a chore. Any tips of what I could do would help as I go on my holiday in a few weeks...

I really have no motivation to do anything and to be honest typing this is a cho...

Bliss19

FMA UK Volunteer•3 years ago

8 Replies

What to do when employer keeps you on the payroll, but you can't work?

Hi all. Before I start I will let ye know that this might be a long read, so if yer up to it then read on. I have been employed since 2013 and for the last 3...

Hi all. Before I start I will let ye know that this might be a long read, so if...

trip77

•3 years ago

12 Replies

Does any one received Pip form from DWP?

Does any one received Pip form from DWP? I can’t get one they keep telling me they have sent one and I haven’t received since.

Does any one received Pip form from DWP? I can’t get one they keep telling me th...

LiimaY

•3 years ago

8 Replies

New to this

New 2 site /got fibromyalgia/ arthritis of spine /arthritis of knees not much going for me /just giving up work after 24years finding pain so hard to manage...

New 2 site /got fibromyalgia/ arthritis of spine /arthritis of knees not much go...

Katie1964

•3 years ago

13 Replies

Decode Your Fatigue 21 Day Challenge

Alex Howard is an author and therapist whose YouTube channel is a great, free resource. He suffered from Chronic Fatige/ME for six years and this has informed...

Alex Howard is an author and therapist whose YouTube channel is a great, free re...

MissMinto

•3 years ago

8 Replies

Aids & supports

Just a little tip went in to lidl today and the have a whole range of aids grabbers, Bath seats, shower seats, they also got a back and neck heat pad which is...

Just a little tip went in to lidl today and the have a whole range of aids grabb...

SamL7

•3 years ago

2 Replies

How do you all manage with heat?

I am very sensitive to heat and cold and only really comfortable in a very small temperature range because of my fibro. What do other people do to reduce...

I am very sensitive to heat and cold and only really comfortable in a very small...

Gaye1963

•3 years ago

13 Replies

PIP ASSESSMENT AND BIAS

Does anyone here know any research that has explored PIP outcomes influenced by either locality, assessment centre or race. I am asking this question because l...

Does anyone here know any research that has explored PIP outcomes influenced by ...

030973

•3 years ago

9 Replies

Use of painkilling gel

Hi. Apologies as this has probably been asked already but does anyone find relief from using pain gels such as Voltarol? Thanks so much

Hi. Apologies as this has probably been asked already but does anyone find relie...

Hidden

•3 years ago

39 Replies

Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

All posts for September 2021

Help and advice

Why does the profile not recognise Myalgic Encephalomyelitis (ME) to add on my file for other illnesses

New and struggling

Newbie

Statutory sick pay

What meds?

Migraines, Arthris and Fibro working as a team.

Break from meds for 6 months as agreed with doctor as I had got to a good place , wish I ha dnt as now having a flare

Tens machinrs

need a little advice.

Are joint hypermobility syndrome and ehlers-danlos syndrome the same?

Panic

survive

Income worry causing me pain

Fibromyalgia

so tired

Has anyone used Dan Neuffers programme "ANS rewire"?

Does anyone else feel guilty they’re in pain?

Diagnosis

Pilates for Fibromyalgia

Fibro fog conundrum

Is it just me or is anyone else having severe fatigue at the moment, it's my worst in over 20yrs of having fibro!

What to do when employer keeps you on the payroll, but you can't work?

Does any one received Pip form from DWP?

New to this

Decode Your Fatigue 21 Day Challenge

Aids & supports

How do you all manage with heat?

PIP ASSESSMENT AND BIAS

Use of painkilling gel

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