Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

60,285 members•67,486 posts

All posts for November 2023

Getting told off . And things deleted.

Hi everyone. I first came on here about fibro and what had to me at the gp surgery. I am sorry I keep posting wrong apparently. According to the moderators....

Hi everyone. I first came on here about fibro and what had to me at the gp surge...

Bertjolly

•1 year ago

11 Replies

Is it just me !

So I had a viral infection in March and pneumonia that sent me into a really bad flare up of symptoms and I'm currently still in this flare up . Whenever I get...

So I had a viral infection in March and pneumonia that sent me into a really bad...

Jillgib

•1 year ago

4 Replies

Pip review

Pip was up for review sent in forms in August had a call today from pip consultation services we went few a few things with my mobility and they advised that...

Pip was up for review sent in forms in August had a call today from pip consulta...

Jillgib

•1 year ago

2 Replies

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Gp update

Hi everyone The practice manager rang yesterday. Me and my partner had a long chat with him and he is going to be talking to the gp tomorrow and I'll be told...

Hi everyone The practice manager rang yesterday. Me and my partner had a long ch...

Bertjolly

•1 year ago

2 Replies

Cold weather

I can empathise with anyone suffering with Fibromyalgia or Chronic Arthritis because if you haven't experienced it, then people don't understand

I can empathise with anyone suffering with Fibromyalgia or Chronic Arthritis bec...

doxie1

•1 year ago

10 Replies

Reasonable Adjustments

hi Everyone, I hope you are all keeping warm. The cold definitely makes things worse for me I know that! I was hoping I could get some advice really. I have...

hi Everyone, I hope you are all keeping warm. The cold definitely makes things...

Wumm

•1 year ago

25 Replies

hello

Hi I’m Mara (🇵🇹 ✈️ 🇬🇧) I haven't worked since August, I can't stand for long, I can't walk much and I have to walk with a cane. I suffer from anxiety and...

Hi I’m Mara (🇵🇹 ✈️ 🇬🇧) I haven't worked since August, I can't stand for lo...

Maraxa

•1 year ago

3 Replies

Pip change of circumstances review

I've been on pips a year - just standard daily living, but I've progressively gotten worse (I have fibro, psoriatic arthritis, bulging discs, plus many more)...

I've been on pips a year - just standard daily living, but I've progressively go...

Chocoronnie

•1 year ago

2 Replies

Virus or Flare

Hi everyone, I hope you are all doing well today. I wanted too ask you what you think 🤔. I have for the last 3 weeks been really ill. I have had all the...

Hi everyone, I hope you are all doing well today. I wanted too ask you what yo...

Smiler69

•1 year ago

13 Replies

telephone assesment

I received a text today saying I have a telephone assessment in a couple of weeks . This is my first and I don’t know what to expect been waiting since...

I received a text today saying I have a telephone assessment in a couple of week...

Juciy123

•1 year ago

27 Replies

Refusal of Pip application

I have applied for the 2nd for pip the first 2 yrs ago during COVID so was a telephone call and they basically called a liar saying I could do more than I...

I have applied for the 2nd for pip the first 2 yrs ago during COVID so was a tel...

Jan0860

•1 year ago

10 Replies

cod oil

Hi Can anyone tell me if the cbd oil has worked for them and if so which one would you recommend it’s all a mind field out there with all the different brands...

Hi Can anyone tell me if the cbd oil has worked for them and if so which one wou...

Inthepark

•1 year ago

8 Replies

Please give me some information

Hello.I have no idea about this community. Could you help me please? What should I do and what can I do about my illness? I am refugee and I got my visa about...

Hello.I have no idea about this community. Could you help me please? What should...

Soraya_masoomi

•1 year ago

24 Replies

The Dreaded MR

I think I posted a comment on someone else's thread months ago about having to go through MR, because in my review, they had taken me from enhanced on both...

I think I posted a comment on someone else's thread months ago about having to g...

ArtfulLyricist

•1 year ago

8 Replies

NERVE BLOCK INJECTION

Ive got neurological itch, which I am putting down to fibromyalgia, and I'm booked in for nerve block injections. Im worried it could possibly make things...

Ive got neurological itch, which I am putting down to fibromyalgia, and I'm book...

MrsFruitCake

•1 year ago

9 Replies

Pip first time applying

Morning, just a question, I had my assessment 13th November and awaiting result, which can be up to 8 weeks. Just wondering will I get a text telling me if I'm...

Morning, just a question, I had my assessment 13th November and awaiting result,...

Princess61

•1 year ago

9 Replies

hello, is there a FAQs section or Symptoms page I can refer to here please?

I beginning to suspect I may have fibromyalgia. I have Adult Onset Stills Disease which for me manifests as Rheumatoid Disease. I have other associated AI...

I beginning to suspect I may have fibromyalgia. I have Adult Onset Stills Diseas...

Stills

•1 year ago

5 Replies

Blue badge

I am awaiting a pip review. My pip ends January 2024. There seems a long wait for the decision at the moment. I understand that I will still keep getting my...

I am awaiting a pip review. My pip ends January 2024. There seems a long wait f...

VerityRoma3

•1 year ago

23 Replies

Axial Spondyloarthritis

Good morning, Hope everyone is as well as can be. Since about April my pain has increased tenfold especially in my lower back. At first I thought I was just...

Good morning, Hope everyone is as well as can be. Since about April my pain has ...

FibroLee

•1 year ago

10 Replies

FM/a blood test

Having suffered from fibro since 2001.A new gp said today he wants to do a fm/a blood test. Has anyone had this or any experience with it? I feel he doesn't...

Having suffered from fibro since 2001.A new gp said today he wants to do a fm/a ...

Bertjolly

•1 year ago

57 Replies

nerve block injections

hello all I hope you are all having a low pain day I saw my orthopaedic consultant yesterday about my increasing lack of mobility and intensified chronic...

hello all I hope you are all having a low pain day I saw my orthopaedic cons...

Noodlenan

•1 year ago

4 Replies

Advice

Hi, I wondered if anyone could help.I've tried duloxetine & even though it helped massively with the pain I had awful side effects. Any suggestions on other...

Hi, I wondered if anyone could help.I've tried duloxetine & even though it helpe...

Roxanne-40

•1 year ago

5 Replies

Rheumatology

Hi all I have now got to see a rheumatologist. Is this normal?

Hidden

•1 year ago

11 Replies

PIPs professional

Has anyone else received a text message saying that they have asked a health professional to help them review your case. And that I may need an assessment...

Has anyone else received a text message saying that they have asked a health pro...

Mowgli2121

•1 year ago

5 Replies

Fibro

I applied for pip for fibromyalgia and osteoarthritis and anxiety I got 8 points and got refused

I applied for pip for fibromyalgia and osteoarthritis and anxiety I got 8 points...

Myboyteddie99

•1 year ago

2 Replies

PIP REVIEW - DECISION GRANTED

Just want to say after waiting, since sending in my completed PIP review in January 2023 and having a telephone review call on 24th October, I have at last...

Just want to say after waiting, since sending in my completed PIP review in Janu...

Barb131960

•1 year ago

11 Replies

Fibro symptom

My balance and co ordination is terrible constantly tripping falling over I have to use brace on ankle to surgery to repair broken leg failed and I suffered 90...

My balance and co ordination is terrible constantly tripping falling over I have...

Jillgib

•1 year ago

1 Reply

Rejected mandatory reconsideration

Afternoon all I've just received my mandatory reconsideration rejection letter for pip. Scored zero on everything Since having my assessment on the 12/10 I...

Afternoon all I've just received my mandatory reconsideration rejection letter f...

Tigger67

•1 year ago

4 Replies

Pension credit

I was recently refused help with the payment of my glasses, even though I'm on pension credit and have always had a little help. This time they said i had to...

I was recently refused help with the payment of my glasses, even though I'm on p...

Tedy

•1 year ago

6 Replies

Pemphigus Vulgaris or Lichen Planus

Morning. Hope you lovely people with a wealth of knowledge are as well as can be. Sorry in advance for the long post. I was recently told I may have oral...

Morning. Hope you lovely people with a wealth of knowledge are as well as can b...

FindingMyself60

•1 year ago

14 Replies

Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

All posts for November 2023

Getting told off . And things deleted.

Is it just me !

Pip review

Gp update

Cold weather

Reasonable Adjustments

hello

Pip change of circumstances review

Virus or Flare

telephone assesment

Refusal of Pip application

cod oil

Please give me some information

The Dreaded MR

NERVE BLOCK INJECTION

Pip first time applying

hello, is there a FAQs section or Symptoms page I can refer to here please?

Blue badge

Axial Spondyloarthritis

FM/a blood test

nerve block injections

Advice

Rheumatology

PIPs professional

Fibro

PIP REVIEW - DECISION GRANTED

Fibro symptom

Rejected mandatory reconsideration

Pension credit

Pemphigus Vulgaris or Lichen Planus

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