Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

59,451 members • 66,496 posts

All posts for January 2024

Sunbathing with Butec patches

I’m using Butec 10mg patches which do help slightly. The most benefit from changing from Co codamol is that I no longer feel bloated. I have recently read that...

I’m using Butec 10mg patches which do help slightly. The most benefit from chang...

Wilson16

•3 months ago

26 Replies

Hi, Before Christmas 2023 I was diagnosed with central sensitisation, and I’m starting to feel lonely/depressed/constantly tearful.

Would love to chat with anyone who’s been diagnosed with central sensitisation

Would love to chat with anyone who’s been diagnosed with central sensitisation ...

Tstarrr

•3 months ago

1 Reply

Feeling lonely and unsupported

I was diagnosed in August. I can't believe how debilitating it can be. It's effecting my mental health and I have no family support. It would be nice to hear...

I was diagnosed in August. I can't believe how debilitating it can be. It's effe...

MangoBlue

•3 months ago

7 Replies

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Research Opportunity: Can music help Chronic pain?

An investigation of the individual uses of music by those experiencing chronic pain. #FibroResearch Help Freddie with his PhD study looking at how...

An investigation of the individual uses of music by those experiencing chronic p...

desquinn

Partner•3 months ago

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Low Dose Naltrexone (LDN)

Hi, this is my first starter post although I have replied to a few questions from others. After being run over by a car 40 years ago and suffering multiple...

Hi, this is my first starter post although I have replied to a few questions fro...

Onceabiker

•3 months ago

17 Replies

Pip Renewal

Hi, it makes no sense these stories of people getting pip for years then an assessment takes it away from you . How can that happen if you have been awarded it...

Hi, it makes no sense these stories of people getting pip for years then an asse...

Mrdiagnosis

•3 months ago

10 Replies

Fibro my wifes diagnosis

Hi there my wife had the diagnosis yesterday fibromyalgia as she had been having pain everywhere for about 2 years My wife around 5 years ago had a tumour...

Hi there my wife had the diagnosis yesterday fibromyalgia as she had been having...

Ang4john

•3 months ago

6 Replies

new pain 😞

hi everyone Lately I noticed that I have pain on the tail of my spine, sitting, standing, walking, laying down nothing helps me and is increasing every day,...

hi everyone Lately I noticed that I have pain on the tail of my spine, sitting...

Alice2004

•3 months ago

11 Replies

foot pain

Does anyone have horrendous pain in the ball of their feet and sometimes in toes. Sometimes on one or the other and sometimes on both? It’s affecting me...

Does anyone have horrendous pain in the ball of their feet and sometimes in toes...

Merc19

•3 months ago

28 Replies

PIP and Blue badge

hi, I’ve had fibromyalgia for many years, I try to hide it and do as much as I can. But now I have to face the facts, I have to ask for help more and can do...

hi, I’ve had fibromyalgia for many years, I try to hide it and do as much as I c...

Off7

•3 months ago

37 Replies

flare ups after food

hi all Does anyone else find that symptoms seem to flare up after a meal and also an alcoholic drink?

hi all Does anyone else find that symptoms seem to flare up after a meal and a...

Myholly

•3 months ago

8 Replies

change of diet

Hi all, I’ve just had my diagnosis confirmed following a long period of ruling other conditions out. I’m a slimming world member and I am making small steps...

Hi all, I’ve just had my diagnosis confirmed following a long period of ruling ...

Dievans

•3 months ago

9 Replies

clothes too painful

Hi, just wondering whether anyone has the issue of finding certain clothes painful to wear? at the moment, just anything that touches me causes pain, so i’m...

Hi, just wondering whether anyone has the issue of finding certain clothes painf...

moonstyles

•3 months ago

24 Replies

Diagnosis looming, tight muscles

Hi ya GP thought symptoms were RA, heading now towards Fibro, I have such tightness in my fingers, hands and legs, find myself tensing up not realising then...

Hi ya GP thought symptoms were RA, heading now towards Fibro, I have such tightn...

Geolewpop

•3 months ago

5 Replies

Doctor's appointments

I didn't know the way to see someone ie, nurse or doctor has changed! Hubby and I took a slow (snails pace) walk to our docs yesterday ( about 20 houses...

I didn't know the way to see someone ie, nurse or doctor has changed! Hubby an...

Debsdelight72

•3 months ago

12 Replies

appointee

hi can someone please advise? My son has a pip review telephone assessment in 2 weeks time.I rang the pip telephone number to ask if he could have a face to...

hi can someone please advise? My son has a pip review telephone assessment in 2 ...

George1973

•3 months ago

6 Replies

Bit of advice and support

Am in early diagnosis of maybe having fibromyalgia. I have a review next week with the physiotherapy and also the pain clinic. When it was first checked with...

Am in early diagnosis of maybe having fibromyalgia. I have a review next week wi...

Kat32A

•3 months ago

3 Replies

Gnashers

Dentist appointment this morning We said the pain when she was trying to get them out was unbelievable, No matter how much she injected, Then the...

Dentist appointment this morning We said the pain when she was trying to get th...

Debsdelight72

•3 months ago

2 Replies

Pillows for neck ache and hydrotherapy referral.

Hi i was wondering if anyone could recommend soft comfy pillows but supportive ones because i am currently looking for one but not sure, seen simba ones and...

Hi i was wondering if anyone could recommend soft comfy pillows but supportive o...

fibrogirl41

•3 months ago

19 Replies

Moving from ESA to Universal Credit

Hi I am being made to move from ESA to Universal Credit and getting really worked up about filling all the online forms out. I have heard some horror stories...

Hi I am being made to move from ESA to Universal Credit and getting really work...

Wolfee

•3 months ago

9 Replies

Fibromyalgia pain

My pain just never seems to go away something always hurts and completely exhausted but I'm so fed up already trying to explain things to people even my own...

My pain just never seems to go away something always hurts and completely exhaus...

lovemycatandbooks

•3 months ago

15 Replies

Blocked sinuses

idk if this will help, but you can try it. Tub of hot water with Vicks in it. Put a towel over your head, so it’s like the steam inhalation in a sauna, but...

idk if this will help, but you can try it. Tub of hot water with Vicks in it. Pu...

Saraia

•3 months ago

2 Replies

My symptoms and solution attempts for fibromyalgia

Hey there. I’ve had fibromyalgia for over 10 years now and a lot of other problems came with. So, I want to try to keep this brief and beneficial, so…wish me...

Hey there. I’ve had fibromyalgia for over 10 years now and a lot of other proble...

Saraia

•3 months ago

4 Replies

medication for fibro

I was diagnosed with fibromyalgia in October 2022. I’ve had numerous different meds - at the moment I take duloxitine 30mg, propanalol 80mg slow release and...

I was diagnosed with fibromyalgia in October 2022. I’ve had numerous different ...

whatsername11

•3 months ago

22 Replies

hi…newbie…overwhelmed…

How on earth do people with fibromyalgia navigate a whole day successfully? 56, female, wicked SoH, cerebral, ex clinician and business owner, currently so...

How on earth do people with fibromyalgia navigate a whole day successfully? 56,...

Artful_Bodger

•3 months ago

41 Replies

Pip review assessment

I have just had telephone pip review assessment, it went OK, lasted about 20 mins to half hour. as i didn't have anyone with me ,I asked for it to be recorded...

I have just had telephone pip review assessment, it went OK, lasted about 20 min...

Bue2

•3 months ago

2 Replies

Congestion and not the traffic kind!

Hi everyone I was diagnosed with fibromyalgia in 2018, however I believe it started years before. I have also gained 5 stone and I'm on waiting list for...

Hi everyone I was diagnosed with fibromyalgia in 2018, however I believe it star...

Seascapes31

•3 months ago

12 Replies

Thank goodness

My first actual good news for a while!! The OT came this morning (At last,over a year waiting) I forgive you Lady😀 I've been accepted to have my bathroom...

My first actual good news for a while!! The OT came this morning (At last,over ...

Debsdelight72

•3 months ago

15 Replies

marina

hi all I have had fibromyalgia for 2 years I have pain during day and night Don’t find any pain killers help Would be interested in what others find...

hi all I have had fibromyalgia for 2 years I have pain during day and night ...

Speedway99

•3 months ago

6 Replies

Check out our pinned posts and some moderator tips

The groups rules can be found here: sh.fmauk.org/FMA-HU-Rules but we also have a group of pinned posts that can be help in a number of situations. * Benefits...

The groups rules can be found here: sh.fmauk.org/FMA-HU-Rules but we also have a...

desquinn

Partner•3 months ago

Be the first to reply

Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

All posts for January 2024

Sunbathing with Butec patches

Hi, Before Christmas 2023 I was diagnosed with central sensitisation, and I’m starting to feel lonely/depressed/constantly tearful.

Feeling lonely and unsupported

Research Opportunity: Can music help Chronic pain?

Low Dose Naltrexone (LDN)

Pip Renewal

Fibro my wifes diagnosis

new pain 😞

foot pain

PIP and Blue badge

flare ups after food

change of diet

clothes too painful

Diagnosis looming, tight muscles

Doctor's appointments

appointee

Bit of advice and support

Gnashers

Pillows for neck ache and hydrotherapy referral.

Moving from ESA to Universal Credit

Fibromyalgia pain

Blocked sinuses

My symptoms and solution attempts for fibromyalgia

medication for fibro

hi…newbie…overwhelmed…

Pip review assessment

Congestion and not the traffic kind!

Thank goodness

marina

Check out our pinned posts and some moderator tips

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