Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

59,451 members • 66,497 posts

All posts for September 2023

vitamin B12 high

hi , have just had my blood tests results back had to have them done because I take statins and metformin. My vitamin b 12 has come back at 746 which...

hi , have just had my blood tests results back had to have them done because I t...

Kjshep

•7 months ago

3 Replies

massages

hi guys does anyone know if massages are good for fibromyalgia. I had a full body massage today and now my body is in so much pain. My body felt ok when I was...

hi guys does anyone know if massages are good for fibromyalgia. I had a full bod...

Kazzza1976

•7 months ago

28 Replies

Newly diagnosed

Hi, this is all very new to me as only been diagnosed with fibro in the last few months. I originally was told about 3yrs ago that all my symptoms were down to...

Hi, this is all very new to me as only been diagnosed with fibro in the last few...

Animal99

•7 months ago

12 Replies

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I am so tired, what do I do

I was diagnosed with fybro in 2018 after many years of suffering. I have done 39 years in full time employment, having to travel on buses, trams,...

I was diagnosed with fybro in 2018 after many years of suffering. I have done 39...

Itgoesonandon

•7 months ago

7 Replies

hi all x

Hi all, just feeling really low and anxious at the moment and don’t have much support (or perhaps I do but just find it hard to ask for it!) I’ve been off...

Hi all, just feeling really low and anxious at the moment and don’t have much su...

Hidden

•7 months ago

19 Replies

New pain in hands and feet

Hi allJust looking for some help Dr seems fed up with me keep going to see him. Is leaving it to rhumatologist to help me . A mongh ago started to get electric...

Hi allJust looking for some help Dr seems fed up with me keep going to see him. ...

Slimjohn

•7 months ago

7 Replies

PiP ReAssessment

I received a letter for a reassessment one year early. Contacted them and explained that my present award has over a year to go, only to be informed that they...

I received a letter for a reassessment one year early. Contacted them and expla...

LhasaMomma

•7 months ago

9 Replies

Has anyone else had pain when breathing in, due to fibromyalgia?

hello to all my fellow fibro warriors, I’ve been living with this for over ten years but recently it’s moved from being dominantly on my left side to my right...

hello to all my fellow fibro warriors, I’ve been living with this for over ten y...

daisiemaiskye

•7 months ago

17 Replies

mobility aids

hi, I have ME/CFS and Fibro. I was diagnosed last year and fatigue and pain are a real issue for me. My biggest challenge is out of the house, doing school...

hi, I have ME/CFS and Fibro. I was diagnosed last year and fatigue and pain are ...

forkeeps

•7 months ago

12 Replies

Hair Loss

Does hair loss go hand-in-hand with Fibro? Or is it the Buprenorphine patches I am on that have caused it? Any information will be greatly appreciated.......

Does hair loss go hand-in-hand with Fibro? Or is it the Buprenorphine patches I ...

GillieGG

•7 months ago

23 Replies

Nothing to do with fibromyalgia

I changed my avatar to my kitten for no other reason cause she makes me smile. Also makes me feel happier

I changed my avatar to my kitten for no other reason cause she makes me smile. A...

Fmcr

•7 months ago

6 Replies

lost points on review even thou mobility has got worse

I lost 10 points from my mobility section on PIP even thou my condition has worsened. I lost the points on planning journey section. Has anyone had this happen...

I lost 10 points from my mobility section on PIP even thou my condition has wors...

Smudger119

•7 months ago

8 Replies

My Fibro specialist appointment - gut health

I posted last week about having an appointment with a pharmacist. My appointment was this morning and it was actually with a chronic pain specialist in...

I posted last week about having an appointment with a pharmacist. My appointment...

Brigga

•7 months ago

1 Reply

Fatigue, heaviness

First of all, thankyou for your kind messages for my earlier post, i still have a bit of fatigue but am struggling with heaviness like you are dragging round...

First of all, thankyou for your kind messages for my earlier post, i still have ...

fibrogirl41

•7 months ago

1 Reply

Recent Article in the Mail on Sunday

For the last couple of weeks we worked with Alex Singleton to get an article together that would highlight some of the suffering that people with fibro are...

For the last couple of weeks we worked with Alex Singleton to get an article tog...

desquinn

Partner•7 months ago

9 Replies

So depressed

Hi all not posted for a while im just so fed up with pain taking all medication. I have know life .partner has to work all the time i just feel so alone don't...

Hi all not posted for a while im just so fed up with pain taking all medication....

Shartaylor0264

•7 months ago

9 Replies

fibromyalgia and other conditions

hi I’m just wondering if anybody else has fibromyalgia and has been diagnosed with Chiari malformation type 1 also. I also have bulging discs in my back with...

hi I’m just wondering if anybody else has fibromyalgia and has been diagnosed wi...

Zozo44

•7 months ago

3 Replies

Gym Circuits - good idea?

I manage my fibromyalgia through pacing and exercise so I swim, walk, run and do AquaFit. I have recently also tried to include pilates or yoga for stretching...

I manage my fibromyalgia through pacing and exercise so I swim, walk, run and do...

Ninapod

•7 months ago

9 Replies

Busy weekend

I had an amazing weekend celebrating my birthday 🎂, but am laid up in bed today, pain from head to toe, dizzy spells. It's so frustrating to be honest. Feels...

I had an amazing weekend celebrating my birthday 🎂, but am laid up in bed toda...

Meditationlover

•7 months ago

10 Replies

Fibro Fatigue

Please tell me how to best manage fibro fatigue? I've woken today almost unable to open my eyes, now I have to look after my 3 boys but I barely have the...

Please tell me how to best manage fibro fatigue? I've woken today almost unable ...

Yellowcat135

•7 months ago

3 Replies

Pip and winter fuel payment

Good morning Fibro Warriors. Am I reading correctly that the government are giving winter fuel payment of £250.00 to anyone receiving Pip for the winter of...

Good morning Fibro Warriors. Am I reading correctly that the government are g...

sueshepy

•7 months ago

22 Replies

First Rheumatology Appt - What to expect? (feeling quite anxious 🫤)

Hello everyone 🙂 I finally have my first appointment with a rheumatologist this coming Friday (sadly having waited 30 weeks for a consultation 🫤) I am so...

Hello everyone 🙂 I finally have my first appointment with a rheumatologist thi...

Blue_Clay

•7 months ago

14 Replies

Help to cope

Hi My name is Amanda I’ve had fibromyalgia for a few years but it is now getting worse the past few weeks have been really bad with pain and not sleeping I...

Hi My name is Amanda I’ve had fibromyalgia for a few years but it is now getti...

Endonurse58

•7 months ago

6 Replies

repeat Prescription query

hello to you all- I just wanted to know if there’s anyone else experiencing delays when making a request for my medications? I have been on gapapentin 300mg...

hello to you all- I just wanted to know if there’s anyone else experiencing dela...

Givemestrength65

•7 months ago

9 Replies

Shoulder pain

Morning!! I was wondering who else has this symptom and how you get relief if any? I have been suffering from really bad shoulder pain. It feels like someone's...

Morning!! I was wondering who else has this symptom and how you get relief if an...

LSHARPER

•7 months ago

29 Replies

is this fibro?! Please help!

Hi everyone. I’ve ended up here in my 4 month search to try and find out what is wrong with me. I would greatly appreciate your advice! Doctors have tried to...

Hi everyone. I’ve ended up here in my 4 month search to try and find out what is...

CaptainHowdy

•7 months ago

32 Replies

Fibro fatigue

Hi hope everyone is okay, i am suffering fatigue today, its not great, i havent had it for a while i hadnt been too bad, now i dont feel great, dont know how...

Hi hope everyone is okay, i am suffering fatigue today, its not great, i havent ...

fibrogirl41

•7 months ago

12 Replies

Duoloxetine

Anyone already on duoloxetine have they gained weight on it? Pain clinic suggested it but couple people I know say they gained weight with it

Anyone already on duoloxetine have they gained weight on it? Pain clinic suggest...

jojotom

•7 months ago

15 Replies

Ill Health Retirement

hi all, Hope everyone is as well as can be expected. I just wanted some advice on my application for ill health retirement. My application is being...

hi all, Hope everyone is as well as can be expected. I just wanted some advic...

FindingMyself60

•7 months ago

4 Replies

Fibro and hormones

Been a while since I have posted, just wondering if peoples hormones are effecting there flare ups

Been a while since I have posted, just wondering if peoples hormones are effecti...

Ellie1991

•7 months ago

2 Replies

Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

All posts for September 2023

vitamin B12 high

massages

Newly diagnosed

I am so tired, what do I do

hi all x

New pain in hands and feet

PiP ReAssessment

Has anyone else had pain when breathing in, due to fibromyalgia?

mobility aids

Hair Loss

Nothing to do with fibromyalgia

lost points on review even thou mobility has got worse

My Fibro specialist appointment - gut health

Fatigue, heaviness

Recent Article in the Mail on Sunday

So depressed

fibromyalgia and other conditions

Gym Circuits - good idea?

Busy weekend

Fibro Fatigue

Pip and winter fuel payment

First Rheumatology Appt - What to expect? (feeling quite anxious 🫤)

Help to cope

repeat Prescription query

Shoulder pain

is this fibro?! Please help!

Fibro fatigue

Duoloxetine

Ill Health Retirement

Fibro and hormones

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