Fibromyalgia Action UK

54,915 members • 63,822 posts

Fibromyalgia is in you head

Des has asked me to look at Facts. Here is a Fact.. What we all Know from a large majority of the posts on here is that "they" (the medical advisors) say...

Des has asked me to look at Facts. Here is a Fact.. What we all Know from a larg...

does-the-NHS-work

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131 Replies

Thoughts and opinions

GP recently told me that fibromyalgia is basically the medical term for - we have no idea what is wrong with you. Says it all really.

GP recently told me that fibromyalgia is basically the medical term for - we hav...

Ttatt

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89 Replies

Struggling with guilt

I really struggle with guilt because I can't cope with the house work. Does anyone have any suggestions?

I really struggle with guilt because I can't cope with the house work. Does anyo...

Elaine200756

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9 Replies

Physiotherapy and hydrotherapy questions

hi I have been diagnosed with fibromyalgia since March time it has taken 15 months to get this diagnosed with a rheumatologist. Anyway, I wanted to put this...

hi I have been diagnosed with fibromyalgia since March time it has taken 15 mont...

fibrogirl41

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42 Replies

IBS/Fibro

Hi. Can anyone help. Diagnosed Fibro 13 years ago but had problems for over 30 years. Always had bowel problems, ie. constipated and abdominal pain with...

Hi. Can anyone help. Diagnosed Fibro 13 years ago but had problems for over 30...

ShelWhitt

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14 Replies

PIP Appeal

Just had a letter from DWP, after chasing them up, as they should have responded by 23 April and they did not. They have said that I’m basically fine and want...

Just had a letter from DWP, after chasing them up, as they should have responded...

PenelopeClearwater

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67 Replies

Gain weight

Good morning.Is someone who has gained weight because of amitriptyline.How can I stop to not gain weight?

Good morning.Is someone who has gained weight because of amitriptyline.How can I...

adri_ela2000

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13 Replies

Fibromyalgia Cause

So I'm interested what is the cause for fibromyalgia to you?

Hidden

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57 Replies

Video pip assessment

I got a text message yesterday saying that my pip assessment was next Monday morning and it will be video assessment. They sent a test link for me to try but...

I got a text message yesterday saying that my pip assessment was next Monday mor...

Piddlysmam

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30 Replies

Does fibromyalgia get blamed for every ailment

I have CFS and fibromyalgia for the last 11 years and recently developed a new symptom which is quite unpleasant. I get extremely cold feet and hands and now...

I have CFS and fibromyalgia for the last 11 years and recently developed a new s...

Patdoyle

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41 Replies

Fibromyalgia

Hi. Just asking for any advice on pip assessment next week I’m booked for phone call . When filling in my form they ask to explain your worse days what u can...

Hi. Just asking for any advice on pip assessment next week I’m booked for phone ...

HARROP65

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14 Replies

Acupuncture…

Has anyone tried acupuncture? Just wondering what experiences people have had with it, as I’m interested in trying it.

Has anyone tried acupuncture? Just wondering what experiences people have had wi...

PenelopeClearwater

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47 Replies

I want my life back

I’m feeling really low and useless at the minute… I used to have miles of endless opportunities ahead of me, even if I was in a bad situation (bad...

I’m feeling really low and useless at the minute… I used to have miles of endles...

PenelopeClearwater

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37 Replies

Dry mouth

Please does anyone suffer with dry mouth. This started after I had covid however, it is getting worse especially at night. I have no thyroid and take...

Please does anyone suffer with dry mouth. This started after I had covid however...

cbraffe

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45 Replies

To be diagnosed with Fibromyalgia, does it have to be by a Rheumatologist? My GP diagnosed me, would I still be able to get PIP?

I was told (by a family friend who has FM) to be able to get PIP, I have to have been diagnosed by a Rheumatologist.

I was told (by a family friend who has FM) to be able to get PIP, I have to have...

JessFM

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24 Replies

Mouth ulcers

Hi, just a quick question. Does anyone suffering with fibro keep getting mouth ulcers? ❤️

Hi, just a quick question. Does anyone suffering with fibro keep getting mouth u...

Sdrh

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39 Replies

Carpal tunnel?

Hi everyone, I hope the sunny (sort of!) weather is making you all feel a little better. I was diagnosed with Fibromyalgia in June last year after many trips...

Hi everyone, I hope the sunny (sort of!) weather is making you all feel a littl...

Hoglover

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7 Replies

IBS & burning stomach

Hi all, I was just wondering if anyone else has this problem. I have fibro and IBS. I’m currently in an IBS flare and have got stomach burning, nausea,...

Hi all, I was just wondering if anyone else has this problem. I have fibro and ...

MrsRoo

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39 Replies

Costaconditis

Hello everyone Could I please ask if anyone suffering with costaconditis has any suggestions with dealing with this nasty corset squeezing, radiating deep...

Hello everyone Could I please ask if anyone suffering with costaconditis has an...

Earworm

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18 Replies

BBC survey on chronic pain

People with fibromyalgia experience this day after day. Options are being reduced, waiting times get longer, health professionals dismiss them, or deny access...

People with fibromyalgia experience this day after day. Options are being reduce...

desquinn

Partner•

17 Replies

Insulin resistance & Fibro

Hi everyone. Did anyone have heard about connection between insulin resistance and fibromyalgia? This leads to the next question: did anyone tried a low...

Hi everyone. Did anyone have heard about connection between insulin resistance a...

Puzzlin

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22 Replies

Fibromyalgia pain?

Hi there, im wondering if anybody gets frequent pain in their breasts which feels as though its a sharp/dull pain. It comes and goes when it pleases. Thank you...

Hi there, im wondering if anybody gets frequent pain in their breasts which feel...

Sas210319

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21 Replies

Is this normal? PIP CLAIM

I had a text from DWP on 4th May 2022 saying that they had got my completed form. I also sent it tracked. Has anybody else had this? Think I need to give them...

I had a text from DWP on 4th May 2022 saying that they had got my completed form...

JessFM

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8 Replies

Interesting research.

Has anyone read the Long Covid research by Cambridge university. They did a trial with a group of suffers. The whole group took a vitamin supplement. Multi...

Has anyone read the Long Covid research by Cambridge university. They did a tria...

Broadfield

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25 Replies

Giving up work

I’ve had a cleaning business for a few years now, I had three jobs before Christmas, I had to give up one in December then leave my other in Feb. My pain is...

I’ve had a cleaning business for a few years now, I had three jobs before Christ...

Iloveplants05

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22 Replies

8 MONTH waiting times…

I saw a pain clinic consultant two months ago and he referred me for nerve block injections in my abdominal wall and groin… after speaking with pain management...

I saw a pain clinic consultant two months ago and he referred me for nerve block...

PenelopeClearwater

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32 Replies

Fibromyalgia & Covid Positive

I tested a couple hours ago and the positive result came up instantly. Any advice? Thankyou in advance 🌺

I tested a couple hours ago and the positive result came up instantly. Any advic...

JessFM

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27 Replies

Fibro + insomnia

Morning everyone, I'm really struggling with sleep recently, despite how tired I am, I just can't nod off! I've never been a great sleeper, even as a baby but...

Morning everyone, I'm really struggling with sleep recently, despite how tired I...

jarbnsnmelts

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25 Replies

Mental health and Chronic Pain

The association between mental health and Chronic Pain is difficult to understand and the drugs prescribed to our group (fibro) are in the main to treat both,...

The association between mental health and Chronic Pain is difficult to understan...

does-the-NHS-work

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26 Replies

Any tips?

Hi, I'm new here. After any tips on soothing pain. I'm struggling with my ribs again today and I know all fybro sufferers can experience the pain differently...

Hi, I'm new here. After any tips on soothing pain. I'm struggling with my ribs a...

ChunkyGuacamole

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14 Replies

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Fibromyalgia Action UK

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About

Posts

Members

Fibromyalgia is in you head

Thoughts and opinions

Struggling with guilt

Physiotherapy and hydrotherapy questions

IBS/Fibro

PIP Appeal

Gain weight

Fibromyalgia Cause

Video pip assessment

Does fibromyalgia get blamed for every ailment

Fibromyalgia

Acupuncture…

I want my life back

Dry mouth

To be diagnosed with Fibromyalgia, does it have to be by a Rheumatologist? My GP diagnosed me, would I still be able to get PIP?

Mouth ulcers

Carpal tunnel?

IBS & burning stomach

Costaconditis

BBC survey on chronic pain

Insulin resistance & Fibro

Fibromyalgia pain?

Is this normal? PIP CLAIM

Interesting research.

Giving up work

8 MONTH waiting times…

Fibromyalgia & Covid Positive

Fibro + insomnia

Mental health and Chronic Pain

Any tips?

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What changes would you like to make in 2020 to improve your health and quality of life?

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