Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

60,180 members•67,410 posts

Fibromyalgia I'm Giving Up

After 26 years of chronic pain & it's other associated conditions I've finally decided to give up.I've spent & wasted thousands on private...

After 26 years of chronic pain & it's other associated conditions I've finally ...

Fibroguy66

•19 days ago

91 Replies

how do you explain

Hi all, how do you explain Fibro to someone who simply doesn’t ever seem to understand how this condition affects you? How it makes you feel. I know it’s...

Hi all, how do you explain Fibro to someone who simply doesn’t ever seem to unde...

Legsandmore

•22 hours ago

16 Replies

Fibromyalgia Speech Issues?

HiHas anyone else since being diagnosed with CFS or fibromyalgia,found there speech or language field being somewhat slurred ? Or find it difficult...

HiHas anyone else since being diagnosed with CFS or fibromyalgia,found there spe...

Fibroguy66

•24 days ago

55 Replies

Chronic Fatigue syndrome

So, have fibromyalgia and now Dr has said I have CFS. Anyone else have experience with CFS with Fibro ? I'm just exhausted with it all Dr said just accept...

So, have fibromyalgia and now Dr has said I have CFS. Anyone else have experienc...

Mrdiagnosis

•1 month ago

51 Replies

Fibro and acupuncture

Hi all just wanted to ask if anyone has had acupuncture for their fibro? Did it help? Any advice I'd appreciate it

Hi all just wanted to ask if anyone has had acupuncture for their fibro? Did it ...

Tigger67

•28 days ago

45 Replies

Thought of the Day

Thought I would repost this from my post some 5 yrs ago. I’ve missed out the pre-amble as it’s irrelevant now but the sentiment remains the same; If the...

Thought I would repost this from my post some 5 yrs ago. I’ve missed out the p...

Dinkie

•18 days ago

34 Replies

hobbies

what does everyone enjoy doing in their spare time? when I am not working I enjoy watching documentaries about crime, health & illnesses (some say how...

what does everyone enjoy doing in their spare time? when I am not working I enj...

Flutterbye10

•17 days ago

32 Replies

Random call

Hi all, I have received a called this afternoon randomly from no caller id, I thought its my doctor but it was someone saying will you be ok for pip phone...

Hi all, I have received a called this afternoon randomly from no caller id, I th...

Fshak

•3 days ago

12 Replies

Fibromyalgia & IBS/IBD Going With Flow

Hello 🤗 Just a loose chat here but does anyone suffer with stomach issues 😞 etc. After having a near death ☠️ experience with a stomach...

Hello 🤗 Just a loose chat here but does anyone suffer with stomach issues 😞 et...

Fibroguy66

•18 days ago

27 Replies

Fentanyl Patches

hi I have been suffering with Fibromyalgia for over 15 years and currently taking Zomorph and Oramorph. Does anyone know if a GP can prescribe Fentanyl...

hi I have been suffering with Fibromyalgia for over 15 years and currently taki...

Marky

•11 days ago

21 Replies

Change of circumstances

Hi can anyone advise me please? Living in Scotland was on HR mobility and HR care... but the benefits for pip/dla have now migrated over to ADP jan25. In...

Hi can anyone advise me please? Living in Scotland was on HR mobility and HR car...

pinot

•5 days ago

13 Replies

Re Duolexetine

Hi all, My G.P has just prescribed me Duolexetine 30mg which is a low dose to start with so i believe. Pregabalin didnt work for me and luckily i didnt get...

Hi all, My G.P has just prescribed me Duolexetine 30mg which is a low dose to s...

Cooper02

•1 month ago

34 Replies

What benefits am I eligible for

Hi, 1st post. Can someone please advise me on what benefits i could be eligible for. I was diagnosed with fibromyalgia some time ago as well as being type 2...

Hi, 1st post. Can someone please advise me on what benefits i could be eligible...

Magpie68

•15 days ago

22 Replies

teeth & fibromyalgia

hi has anyone had problems with their teeth . I have awful toothache and my dentist can’t see even on XRay which tooth or why I have toothache. It’s a dull...

hi has anyone had problems with their teeth . I have awful toothache and my dent...

Suffering24

•8 days ago

15 Replies

Medication for Fibro

Hello, I have been diagnosed with fibromyalgia for many years but never had any treatmnet. What do you all take please? and does it help? Many thanks

Hello, I have been diagnosed with fibromyalgia for many years but never had an...

fluffmonkey

•25 days ago

27 Replies

Medication Help!

Hi again! This morning I posted regarding a medication I found on google which isn’t prescribed in UK! Good old Google 🤣 So I’m currently taking 2700mg of...

Hi again! This morning I posted regarding a medication I found on google which i...

JoLouise88

•3 days ago

9 Replies

Hi, I’m new here

Hi I just thought I’d introduce myself. I am new to this forum and to Health Unlocked. I have had ME/CFS for approx 25 years and I was diagnosed with...

Hi I just thought I’d introduce myself. I am new to this forum and to Health Un...

SleepyBabySloth

•23 hours ago

5 Replies

pip assessment

Hi everyone , hope everyone is doing well, I know the first time I posted I was doing great working (nurse) . By doing well I meant go to work running late...

Hi everyone , hope everyone is doing well, I know the first time I posted I ...

Noura1985

•10 days ago

16 Replies

Missing test results?

Hi, Hope everyone is doing ok. I have had a test result go missing at a hospital, same with my referral. As far as I'm aware the gp has emailed the hospital...

Hi, Hope everyone is doing ok. I have had a test result go missing at a hospi...

CookieMunch22

•7 days ago

13 Replies

utter fatigue and sudden body temperature drop

anyone experiencing utter fatigue pretty much daily when suddenly it hits you that you can not function anymore for few hours, is not tiredness is like...

anyone experiencing utter fatigue pretty much daily when suddenly it hits you th...

Martina777

•20 days ago

22 Replies

Another hobby !

Blimey I've found another craft I enjoy😊 I didn't think I could,but I can, Hubby brought me a bed thing so I can eat while I'm still in bed, I'm still aiming...

Blimey I've found another craft I enjoy😊 I didn't think I could,but I can, Hub...

Debsdelight72

•19 days ago

21 Replies

amitriptyline side effects after stopping them

I was on 10mg of amitriptyline for 6 weeks for sciatica. As it’s a low dose I didn’t really ween myself off them for long enough I don’t think. Just over a...

I was on 10mg of amitriptyline for 6 weeks for sciatica. As it’s a low dose I di...

Black16

•6 days ago

11 Replies

P.M.A (positive mental attitude)

Negativity - I personally find this really hard, I know we always cannot be positive a million % of the time but being negative is so tiring, and drags us down...

Negativity - I personally find this really hard, I know we always cannot be posi...

Choco-holic37

•18 days ago

19 Replies

How to cope with CFS Fibromyalgia with Singles

Have had severe cfs for 30 years, fibro for 7 now have shingles due to stress. Just not much hope, have been in care homes for several years. Any comments...

Have had severe cfs for 30 years, fibro for 7 now have shingles due to stress. ...

Boardercolly

•21 hours ago

4 Replies

Fibromyalgia Getting Worse

Although they say & state that fibromyalgia is not a progressive illness etc,do you think 🤔 that fibromyalgia does get worse etc ? In my own personal...

Although they say & state that fibromyalgia is not a progressive illness etc,do ...

Fibroguy66

•27 days ago

22 Replies

Fibromyalgia changing...

I had ME for years and lost my professional career; the subsequent years of 'Why me?' and the anger led me down and down...Many yrs on, I then realised the...

I had ME for years and lost my professional career; the subsequent years of 'Why...

Wobblygirl

•15 days ago

16 Replies

I've just about had it

It's just a giant pain in the butt, Been in hospital for a little while and feeling so overwhelmed, Just getting into a hospital routine and they let me go...

It's just a giant pain in the butt, Been in hospital for a little while and fee...

Debsdelight72

•1 month ago

23 Replies

hitting targets !!

yayyy I’m hitting my walking targets , had another good walk yesterday even though it was raining and bloody freezing 🥶 lol , pushed through it , got a slight...

yayyy I’m hitting my walking targets , had another good walk yesterday even thou...

Prettywings

•9 days ago

12 Replies

Worried about my cousin's winter wedding

My cousin is getting married in just over a week's time. And, I am dreading it. She is getting married in an old church that is very cold. And, my mother told...

My cousin is getting married in just over a week's time. And, I am dreading it. ...

Twin4Life

•10 days ago

12 Replies

For long time members who remember our troll

We have a friendly and supportive group here that we run like our facebook group (https://www.facebook.com/groups/fibroaction) with a good set of rules and...

We have a friendly and supportive group here that we run like our facebook group...

desquinn

Partner•19 days ago

16 Replies

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Up to 2.7 million people in the UK live with Fibromyalgia (Fibro) & the awareness of this condition remains ve...

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