Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

59,451 members • 66,496 posts

All posts for August 2023

Intense itching

Does anyone suffer intense itching and skint prickling? I feel like I get goosebumps and electric shock type pains then uncontrollable itching all over my...

Does anyone suffer intense itching and skint prickling? I feel like I get gooseb...

Helyely

•8 months ago

21 Replies

New here

Hi everyone, I am new here. I have had rheumatoid arthritis for a long time but was diagnosed more recently with fibromyalgia as my consultant explained to me...

Hi everyone, I am new here. I have had rheumatoid arthritis for a long time but...

ma73jon

•8 months ago

13 Replies

vertigo

does anyone suffer with really bad Vertigo? I have been in bed for four days with horrendous vertigo and being physically sick…I seem to be taking these...

does anyone suffer with really bad Vertigo? I have been in bed for four days wi...

Beverley1956

•8 months ago

24 Replies

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pip reviews

Good morning everyone.When the review pip form is sent back do they let you know they have received it? also is there still a back log? Many thanks 🥰🥰🥰🥰

Good morning everyone.When the review pip form is sent back do they let you know...

George1973

•8 months ago

11 Replies

If it’s not one thing, it's another! Update

Following on from the previous post, I had my appointment with the Ophthalmology Surgical Unit yesterday. Basically appeared to be a couple of pre-op tests...

Following on from the previous post, I had my appointment with the Ophthalmology...

Gulfstream_Maggie

•8 months ago

3 Replies

Changes

Hi, good morningI hope you're all as well as can be. Please advise if you can 🙂 I currently receive PIP.... However my circumstances have changed for the...

Hi, good morningI hope you're all as well as can be. Please advise if you can �...

FibroLee

•8 months ago

5 Replies

Reconsideration

I have been on the enhanced rate with pip. Had my review and they have taken that away and I now on standard. I have requested a reconsideration because they...

I have been on the enhanced rate with pip. Had my review and they have taken tha...

Tamsam22

•8 months ago

13 Replies

Vitamin B12 Supplements

I recently had a well-being check at my GP and had the usual bloods taken. My results were fairly normal but I noticed my B12 levels were quite low at 200 (...

I recently had a well-being check at my GP and had the usual bloods taken. My r...

InLiverpool

•8 months ago

8 Replies

Diagnosis

Good Morning I have suffered with my condition for over 20 years and have also been told I was born with it, the doctor agrees I have all the symptoms of...

Good Morning I have suffered with my condition for over 20 years and have also ...

pixieraine23

•8 months ago

4 Replies

Got the Covid

I got Fibro after have Lymes for 10 years undiagnosed. I got the lymes treated in the end but was told to keep well away from Covid. Now I've got the Covid....

I got Fibro after have Lymes for 10 years undiagnosed. I got the lymes treated i...

dinahdabble

•8 months ago

22 Replies

newly diagnosed and very confused!

Good morning! I received a diagnosis last week from the GP after having been going round in circles for a few years having my pain blamed on various things...

Good morning! I received a diagnosis last week from the GP after having been go...

SaaraMc

•8 months ago

22 Replies

visual snow and fibromyalgia

does anyone have strange vision. I see eye floaters all day and when I close my eyes but this has also developed into what I can only describe as black and...

does anyone have strange vision. I see eye floaters all day and when I close my ...

Loobyloo1966

•8 months ago

10 Replies

can’t get up

I have been with headaches since yesterday. Today I can’t get up my all body is in pain no energy pins and needles shakes etc… feel like being in the gym for...

I have been with headaches since yesterday. Today I can’t get up my all body is ...

Emacosta

•8 months ago

5 Replies

Fibromyalgia help! Please

Hiya, I was wondering if anyone knows of anything that can help symptoms from fibromyalgia, anything that isn't hard medication, I have heard cod liver oil,...

Hiya, I was wondering if anyone knows of anything that can help symptoms from f...

sunflower022

•8 months ago

99 Replies

Tired of being tired 🥱

I’m so sick of feeling tired and being awake at 3 in the morning and then when it comes to getting up for work I’m exhausted. I literally feel like I’m running...

I’m so sick of feeling tired and being awake at 3 in the morning and then when i...

Dash01

•8 months ago

17 Replies

CFS/ME research study

hi, I hope everyone is doing okay today? 😘 Just wanted to share this in case it helps anyone? I was referred to this study when diagnosed with cfs/me and...

hi, I hope everyone is doing okay today? 😘 Just wanted to share this in case i...

Tiggerlostherbounce

•8 months ago

3 Replies

Re pip

What should I do as a recently diagnosed with fibromyalgia and also a carer for my 19 yr old daughter is it worth my while applying for pip and is it hard to...

What should I do as a recently diagnosed with fibromyalgia and also a carer for ...

Cazzie69

•8 months ago

12 Replies

pip report

we’ll guys I have had my pip report back today which I am not happy about atall. Everything has been ruled out because I worked full time 3 months ago....

we’ll guys I have had my pip report back today which I am not happy about atall....

Kazzza1976

•8 months ago

28 Replies

PIP changes form AR1 UI

Hi there Feeling slightly terrified today! This is my first time completing the changes form and I’m wondering if anyone has any advice. My handwriting is...

Hi there Feeling slightly terrified today! This is my first time completing th...

Fibrofreak

•8 months ago

4 Replies

Pip review

I sent off my pip review form in February, adding worsened symptoms. my current award ends in a month and I've had letters about my bus pass and parking permit...

I sent off my pip review form in February, adding worsened symptoms. my current ...

Bue2

•8 months ago

8 Replies

What the Dr says...

Hi all , I hope everyone is doing ok. Just a question regarding what my GP said. I have Fybro, arthritis in my spine , had a hip replacement at 46, need a...

Hi all , I hope everyone is doing ok. Just a question regarding what my GP said....

Mrdiagnosis

•8 months ago

6 Replies

Tongue

Does anyone wake up on a morning realising that during the night they've been biting on there tongue. My tongue is swollen on both sides. All I can guess is...

Does anyone wake up on a morning realising that during the night they've been bi...

Debbs73

•8 months ago

21 Replies

The post new pip form

Hi Hope everything is okay 👍 just wondering has any one had the text to say pip Is in the post ? also has anyone had a phone pip assessment ? Thank...

Hi Hope everything is okay 👍 just wondering has any one had the text to sa...

Scoo1961

•8 months ago

15 Replies

Medications

Hi allMy gp has informed that the medical council has decided the pain meds will be shortly be phased out as they can cause more harm long term . Apparently...

Hi allMy gp has informed that the medical council has decided the pain meds will...

Ferndale

•8 months ago

20 Replies

Hoping to return to work worries

Hi i have had fibro for over 2 and a half years, and tried to cope with pain, panic attacks, being let go from work for a while, i want to go bsck to work soon...

Hi i have had fibro for over 2 and a half years, and tried to cope with pain, pa...

fibrogirl41

•8 months ago

9 Replies

Pain relief

HiCan anyone tell me what pain relief they are on for fibromyalgia? I currently take zapain which doesn't really do anything. I tried amitriptyline but it made...

HiCan anyone tell me what pain relief they are on for fibromyalgia? I currently ...

Chocoronnie

•8 months ago

12 Replies

Ice baths

I was wondering if anyone had any experience with the ice baths you can buy and use at home . My legs, arms and shoulders are so painful with my...

I was wondering if anyone had any experience with the ice baths you can buy and ...

Littlepicasso3

•8 months ago

6 Replies

anxiety

I have always been an outgoing person who has always worked with the general public, hotel meet and greet and shop assistant but since being diagnosed with...

I have always been an outgoing person who has always worked with the general pub...

Dieferam

•8 months ago

7 Replies

thankyou

thankyou all for your reply’s to my post, it really helps To know you are not alone doesn’t it. MyGP thinks the head pains are comingg from my neck and spine...

thankyou all for your reply’s to my post, it really helps To know you are not a...

Marielena2

•8 months ago

1 Reply

Feel like legs and feet are “Wrapped in Cling Film!”

It’s hard to explain but from the knees down both legs feel very numb and weird when I flex my feet. This has come on progressively and I now realise that I...

It’s hard to explain but from the knees down both legs feel very numb and weird ...

KneesRsore

•8 months ago

9 Replies

Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

All posts for August 2023

Intense itching

New here

vertigo

pip reviews

If it’s not one thing, it's another! Update

Changes

Reconsideration

Vitamin B12 Supplements

Diagnosis

Got the Covid

newly diagnosed and very confused!

visual snow and fibromyalgia

can’t get up

Fibromyalgia help! Please

Tired of being tired 🥱

CFS/ME research study

Re pip

pip report

PIP changes form AR1 UI

Pip review

What the Dr says...

Tongue

The post new pip form

Medications

Hoping to return to work worries

Pain relief

Ice baths

anxiety

thankyou

Feel like legs and feet are “Wrapped in Cling Film!”

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