Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

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Medication Help!

Hi again! This morning I posted regarding a medication I found on google which isn’t prescribed in UK! Good old Google 🤣 So I’m currently taking 2700mg of...

Hi again! This morning I posted regarding a medication I found on google which i...

JoLouise88

•4 days ago

13 Replies

Burning scalp

Hello everyone. I'm new to this group and so glad I've found it. Xmas 2023 I had covid for the first time. Never recovered and in May last year was diagnosed...

Hello everyone. I'm new to this group and so glad I've found it. Xmas 2023 I ha...

Woofywags

•19 days ago

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Can fibromyalgia give you tendonitis?

I have been having issues with multiple tendons becoming inflamed and painful. Most recently, I seem to have developed both tennis elbow and golfer's elbow in...

I have been having issues with multiple tendons becoming inflamed and painful. M...

Twin4Life

•5 months ago

17 Replies

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Rock Hard Muscles

My sister is struggling with stiff muscles. They are all basically very stiff. But, her neck and shoulders are the worst. The muscles in her neck are solid....

My sister is struggling with stiff muscles. They are all basically very stiff. B...

Twin4Life

•5 months ago

16 Replies

Ankylosing Spondylitis? Negative bloods

Hello! I have been trying to get a diagnosis for my pain condition for around 7 years now. It's daily, I get pain and stiffness in my lower back in the...

Hello! I have been trying to get a diagnosis for my pain condition for around 7 ...

Jennyjenjen01

•5 months ago

3 Replies

Ibuprofen (Advil) and Desmopressin together?

I use ibuprofen to help with Fibromyalgia pain and PEM from ME / CFS. I've been prescribed desmopressin by my cardiologist for low bp, POTS and dysautonomia...

I use ibuprofen to help with Fibromyalgia pain and PEM from ME / CFS. I've be...

tnefeh

•6 months ago

2 Replies

New diagnose - GMG

Was diagnosed with FM January 2020, never got a follow-up because of COVID-19, just increasing the medication from GP. Previous winter 22-23 was BAD!!! Didn't...

Was diagnosed with FM January 2020, never got a follow-up because of COVID-19, j...

Polly-S

•8 months ago

8 Replies

Tummy cramps

Hi all Do any of you have bad tummy cramps to do with IBS (I hope) if so how do you ease it, paracetamol and hot water bottle haven't worked .... 🦋

Hi all Do any of you have bad tummy cramps to do with IBS (I hope) if so how do ...

Sleepyhead_

•10 months ago

13 Replies

In need of some help/suggestions please

Hi, this is my first time back on the forum after a few years break just bimbling along whilst struggling as we all do. But I've really hit a wall.I don't...

Hi, this is my first time back on the forum after a few years break just bimblin...

Wispymisty

•1 year ago

15 Replies

Phantom Smells

Hi All I'm just wondering if there is anyone who has phantom smells, tonight & many other times i can smell a faint gas smell i know its not as I had a gas...

Hi All I'm just wondering if there is anyone who has phantom smells, tonight & m...

Sleepyhead_

•1 year ago

40 Replies

Malar rash?

Hello dear friends 🧡 Here I am again with the same old 🙈2 years on and still getting this rash. It causes very bad headaches,stomach ache,body stiffness...

Hello dear friends 🧡 Here I am again with the same old 🙈2 years on and still g...

Socialbutterfly00

•1 year ago

29 Replies

Sitting pain not going away. Is it my pudendal nerve or something else?

Hello — if anyone has had experience with this, I’d appreciate some feedback. I have suffered with fibro, pelvic pain, bladder issues, and migraines for...

Hello — if anyone has had experience with this, I’d appreciate some feedback. ...

kellerfly

•1 year ago

3 Replies

Catching a cold when you have fibro - turns out it’s COVID fml

Do you find that when you catch a cold you are affected much worse than other people around you? I never get ‘just a sniffle’. I always say I’m a woman who...

Do you find that when you catch a cold you are affected much worse than other pe...

Brigga

•1 year ago

5 Replies

Fybo or cancer

Started having extreme fatigue and it was effecting my driving to the point I was falling asleep at the wheel no matter what I tried, lost about a stone and a...

Started having extreme fatigue and it was effecting my driving to the point I wa...

Heyyaall

•1 year ago

21 Replies

threadworm fibromyalgia link?

Morning all, I’ve recently been diagnosed with fibro and even more recently been researching if there is a link between it and thread worm as 5yrs ago I had...

Morning all, I’ve recently been diagnosed with fibro and even more recently be...

Emmybird2

•1 year ago

18 Replies

Diagnosis

Good Morning I have suffered with my condition for over 20 years and have also been told I was born with it, the doctor agrees I have all the symptoms of...

Good Morning I have suffered with my condition for over 20 years and have also ...

pixieraine23

•1 year ago

4 Replies

Feel like legs and feet are “Wrapped in Cling Film!”

It’s hard to explain but from the knees down both legs feel very numb and weird when I flex my feet. This has come on progressively and I now realise that I...

It’s hard to explain but from the knees down both legs feel very numb and weird ...

KneesRsore

•2 years ago

9 Replies

Gabapentin or Duloxetine

Hi all, has anyone had any luck with duloxetine? currently taking gabapentin bug heard good experience with duloxetine! Any advise would be fab!

Hi all, has anyone had any luck with duloxetine? currently taking gabapentin bu...

JoLouise88

•2 years ago

16 Replies

hot flushes

I work in a hospital for a few hours which is great for my fatigue and pain levels. Here’s the kicker I need help I get terrible hot flushes where I can be...

I work in a hospital for a few hours which is great for my fatigue and pain leve...

Bubbles_3

•2 years ago

38 Replies

Trouble breathing

Afternoon all my breathing trouble is getting worse feels like I'm not getting enough air its scarey - also hurts my chest and back when I breathe in but it...

Afternoon all my breathing trouble is getting worse feels like I'm not getting e...

Sleepyhead_

•2 years ago

14 Replies

Fibro & Physio treatments UK

Physiotherapy is uneffective for me. Also a physiotherapist who I visited for sciatica treatment stated it. I asked about hot wax or anything like that and she...

Physiotherapy is uneffective for me. Also a physiotherapist who I visited for sc...

Polly-S

•2 years ago

12 Replies

Newly diagnosed

Recently diagnosed by msk but given no information and no treatment. Suffered since July 2020 after getting covid in March 20 and GP very little help. Had...

Recently diagnosed by msk but given no information and no treatment. Suffered si...

Aka-Ice

•2 years ago

20 Replies

Fibromyalgia causing breathlessness?

I had covid pneumonia in 2021 and suffer with long covid. But since getting covid my fibromyalgia flare ups are alot worse.I have breathlessness and chest pain...

I had covid pneumonia in 2021 and suffer with long covid. But since getting covi...

eightieslass

•2 years ago

5 Replies

Fybro & CBD - homemade cream

I have been diagnosed with FM 3 years ago, just before the first COVID-19 lockdown . As almost everyone here - lots of changes in medication, no real GP...

I have been diagnosed with FM 3 years ago, just before the first COVID-19 lockdo...

Polly-S

•2 years ago

7 Replies

Advice Needed

For years I’ve been suffering from pain in my bones, sleeplessness, depression and sometimes inability to do general things. I’ve seen my GP who has given me...

For years I’ve been suffering from pain in my bones, sleeplessness, depression a...

WelshWitchy

•2 years ago

5 Replies

No energy and motivation

I have Fibromyalgia, Hashimotos,Litchen Sclerosis. I take morphine, cocodamal and amitryptaline 30mg in the evening for nerve spasms. I spend most of my...

I have Fibromyalgia, Hashimotos,Litchen Sclerosis. I take morphine, cocodamal...

usbrit

•2 years ago

21 Replies

Weight loss with fibro?

Hi all, had anyone experienced large weight loss with fibro? I can't attribute it to my medication as it started before i was taking the duloxetine.I've now...

Hi all, had anyone experienced large weight loss with fibro? I can't attribute i...

Tassadar

•2 years ago

10 Replies

Fibro flare + teeth grinding

Hi everyone, any helpful advice/solution for severe teeth grinding and clenching? I tried different types of nightguards and botox and the situation didn't...

Hi everyone, any helpful advice/solution for severe teeth grinding and clenching...

Dodo21

•2 years ago

16 Replies

i know this is very tabo but i wanted to know 🤓

Good Morning Everyone, I have tried most drugs now and am currently coming off withdrawals from Duloxetine, which by the way is horrendous!!!!! When i...

Good Morning Everyone, I have tried most drugs now and am currently coming off...

Rosco14

•2 years ago

61 Replies

who diagnoses fibromyalgia? I’m new here 👋

I am currently going through some tests at hospital, I have just had my bloods done and I’m due for a CT scan soon. For so long I’ve been in pain, my lower...

I am currently going through some tests at hospital, I have just had my bloods d...

nicnak86

•2 years ago

3 Replies

Write a post or ask a question

Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

Symptoms|Treatments posts

Medication Help!

Burning scalp

Can fibromyalgia give you tendonitis?

Rock Hard Muscles

Ankylosing Spondylitis? Negative bloods

Ibuprofen (Advil) and Desmopressin together?

New diagnose - GMG

Tummy cramps

In need of some help/suggestions please

Phantom Smells

Malar rash?

Sitting pain not going away. Is it my pudendal nerve or something else?

Catching a cold when you have fibro - turns out it’s COVID fml

Fybo or cancer

threadworm fibromyalgia link?

Diagnosis

Feel like legs and feet are “Wrapped in Cling Film!”

Gabapentin or Duloxetine

hot flushes

Trouble breathing

Fibro & Physio treatments UK

Newly diagnosed

Fibromyalgia causing breathlessness?

Fybro & CBD - homemade cream

Advice Needed

No energy and motivation

Weight loss with fibro?

Fibro flare + teeth grinding

i know this is very tabo but i wanted to know 🤓

who diagnoses fibromyalgia? I’m new here 👋

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